Showing posts with label caregiver's cave. Show all posts
Showing posts with label caregiver's cave. Show all posts

Mighty Warrior

Have you ever had someone tell you they admire you and how they think you, as a caregiver, are so strong? It happens all the time - but I really don't feel strong at all. It feels like I am just surviving and not doing that very well some days. And then sometimes, like this weekend while on our first big walking adventure - I notice people looking at us with such sympathy - like they feel so sorry for us and our situation. How people see a caregiver relies a lot on the types of life experiences they have had themselves.

Maybe they have had their shot at caregiving and they feel like it takes an enormous amount of strength. Or maybe some have never been in the position and think there's no way they could do it. (I was in that class BC -before caregiving.) The truth is we may not feel strong at all - but others likely see us that way.

We know as caregivers that we have moments where we can take on the world. These usually occur after winning a loooong fight with a health care professional who doesn't understand our situation or an aide who doesn't want to do their job or a person without a disability who took a handicap parking spot! These I-can-take-on-the-world-and-win!  moments are sparse and short-lived as in a matter of minutes we can go from this high back to the harsh reality of not knowing how to face the next moment of the day.

Sometimes we are zooming along full speed and everything is going well - again a rare moment for many of us! - and WHAM! outta nowhere comes something that knocks us off our  feet. Maybe we get a horrifying call from an insurance company who threatens to drop us or our loved one, our handicap vehicle breaks down after a doctor's visit or our loved one's tube just pops out! (All of these have happened to me! lol) We don't even take time to think about having or finding strength we just kick into gear and get 'er done - whatever it takes! Then we promptly collapse into a pile of tears and exhaustion when we are done... experience speaking. That doesn't seem all that strong to me.

I had someone in one of my support groups say something that made me think of it she said, "She's shown us all a thing or two about digging down deep and getting things done." I just stared at that text on the screen and thought Is that how she sees me? To me - I'm flailing around trying to survive! How people see us is not usually how we feel about ourselves.

God doesn't see us like we see ourselves either. It makes me think of the story of Gideon in Judges 6. He was hiding from the enemy and the angel of the Lord came to him and said, hail, mighty man of valour! Really? He's hiding and God sees him as a mighty warrior?

Sometimes it's easier for the caregiver to try and hide in the caregiver's cave than it is to deal with the world outside - and even though we may see ourselves as a bit shaky, or frightened or weak - He sees us as He intended and He sees us as filled with the power of Christ.

Today I will meditate on the strength He has put inside of me instead of my own weakness. I will turn my thoughts to how He fills me with Himself until there's nothing left of me. And I will think about His mighty indwelling presence and how strong I am in Him. Will you join me?

Can You Find One?

I noticed something different starting with Psalm 144. David changes the tone and starts these last few pieces with praise. Before that, he started several of them with feelings of despair and cries for help. I will be the first to say that when trouble pops up I'm going to go straight to Him first, there's no other refuge or shelter to run to for me. For several psalms David has been asking for the Lord's help and for the last few he shifts his focus to praise.

As caregivers we have good and bad days inside our cave. Our emotions can run very high and swing from one end of the spectrum to the other in a matter of a few minutes. Some situations, like mine, we deal with a living grief. My son is gone, but he's still here. For many, it's not going to get any better and there is no relief in sight. This can make for a rocky emotional situation. If you are like me some days you can handle it fine; other days - we just won't talk about! Suffice it to say that our emotions can be all over the place!

If we, like David, can turn our focus to praising God even in our very difficult situations we can help ourselves out. I will be the first to admit that some days I just don't feel like it. Period. But if I can talk myself in to picking up the guitar and strumming a few chords and maybe singing something like Psalm 61 I can find myself resting in His arms and filled with praise. Psalm 61 is a prayer for help that goes like this:

Hear my cry, O God
Attend unto my prayer
From the ends of the earth will I cry unto You.
When my heart is overwhelmed
Please lead me to the rock
That is higher than I.
For You have been 
A shelter from the storm
A high tower from the enemy.

And just those few phrases can give us a place to start. Sometimes we have to purposefully look for something to praise Him for. Honestly, I've had days where I've been angry with God for not taking me out of the situation. But if I take the time to look hard enough and long enough - there's always  something to praise Him for. When I start my day off with praise it's going to go a lot smoother. 

Sometimes we can get bogged down and have to find a "praise spot" during the middle of the day too. On one hand it can seem difficult to find something in our situations to praise Him for. But I can always start with Psalm 61 and thank Him for always being present, for being a safe refuge to run to when I'm on overload and for sheltering me during the storm.

Today I will purposefully praise Him for just being God. I will turn my thoughts to His ever-abiding presence in my life and for always being there to run to. My meditation will be on how He is that rock that is bigger than me and my situation and I will praise Him. Will you join me?

Quietly Discarded

There are times that I joke about living in a cave; and even though things are said in jest it really can seem that way at times. Many times the caregiver lives a very isolated life where activities outside the home are very limited. For awhile this used to wear on me but it has finally settled in and my cave is a very safe place, a peaceful place and I am actually finding that I do not do as well outside the cave as I used to.

Others really do not understand the caregiver's cave. There's just no way for others to understand the lack of freedom that can be experienced. You cannot just jump up and go grab a few things from the store, have coffee with a friend or go to an afternoon matinee. The things that are commonplace for the majority are rare for the caregiver, if they exist at all. We cannot expect others to understand our situations - they are not living the experience with us. We do not fit society's mold and sometimes we can feel quietly discarded.

No one will actually say anything - not that it would help. Have you ever just felt politely ignored? When people do not know what to do with you they are not impolite - they just ignore! Even the church can be this way. They do not know what to do with those of us who are homebound and cannot fit their church-going mold. So we do not exist to them. I won't bore you with the details of all the churches or church people who have politely ignored us. lol. But I will tell you that one pastor asked me what I needed and I replied with one word: fellowship. He eagerly said they could do that. (I think he was relieved that I didn't ask for money lol!) But most of those who live in situations with continual pain whether it's physical or emotional have probably already guessed what happened. I never saw him or any people from that church again. I'm not mad - they just don't know what to do with us so they politely ignore us. We become quietly discarded because we can't function in their world. No blame -- just the way it is.


The term that came to my mind earlier this week was cast away. There are times when the caregiver can feel like society or even life in general has just cast us away. We are here - we are breathing - but we don't really exist. When I started meditating about being cast away and realizing that our existence is not in this world but in Him, my mind went straight to 2 Corinthians 4. The apostle to the early church Paul says this we are afflicted in every way...but not crushed. Now for those faithers out there -- they would call this admission a negative or faithless confession. It is not. Paul is stating the obvious. Until we can view where we are in honesty - we'll never be able to view Him in truth. Paul did not stop at this he went on to describe the utter despair he was feeling:  perplexed but not despairing; persecuted but not forsaken; struck down but not destroyed. That about sums it up.

I would like to add quietly discarded - but not rejected. Even though much of the world ignores our situation - God is still fully aware. He has not rejected us - He has not left us. Life may have struck us down but we are not destroyed!! Even though it feels like life has cast us away - to live in the caregiver's cave - God caught us and holds us even now.

Today I will meditate on how He is my present help - He holds me - cherishes me and loves me. I will picture Him holding me...and then I'll rest in Him. Will you join me?











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