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Showing posts with the label caregiver's cave

Tired & Sleepy

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  Tired and sleepy are not the same thing. Some evenings, I am exhausted, but not sleepy. I don't like that combination, because my brain is still running 100 miles per hour but my body says, no. It's totally unproductive. But when I am tired and sleepy, I am totally useless. My body is down for the count and it will not rise until it has to, if I'm lucky enough for a quiet moment. Yesterday, we talked about how God never sleeps. He watches over our souls constantly and intently. He's intimately connected to us and is invested in our care. But He also doesn't get tired of doing it. I can imagine not getting sleepy - I actually have a love-hate relationship with sleep. I do NOT like wasting the time, but my body insists. Lol. God doesn't get sleepy or tired! Psalm 121:4 says the One who watches over us will not sleep and will not get tired.  He loves to watch over His children and never gets tired of doing it. In Isaiah 40:28 the prophet reminds us that God never...

Ups and Downs

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  Maybe it's just "that time of year" for me, but I've struggled a lot the last few weeks. I still affectionately  call it the caregiver's fog. Lol. Okay, maybe it's not-so-affectionately. I know I can share my true feelings with you guys because you get it. You understand the day-to-day grind of caregiving. The military has a saying about there being no easy day. I think we live in that reality. It's just not easy caring for another whole person, is it? Caregiving presents many difficulties. We can find ourselves alone, so very alone on this journey. It doesn't just go away. We don't just work through it. It seems to go on and on. There are lots of ups and downs - and that can be about every 90 seconds some days. Right? (smile!) As I've been working through this emotional maze the last few days, I turned my thoughts to Daniel. Let's take a realistic look at his circumstances because as we read his story in the Bible, we tend to glamorize i...

Full Of It

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  This morning during my private devotions, I started studying 1 John to prepare for an upcoming live Zoom Bible study I'm hosting. (Let me know if you'd like a link to join!) I John is very connected to the gospel of John and I found myself reading the first chapter of this gospel over and over. It amazes me and pretty much blows my mind how God has orchestrated all this. Before He said, "Let there be light" He had already done everything. He'd already prepared the way for us to get back to Him, even before the fall happened in time. Jesus was crucified and raised to sit on the throne. Our sins were already forgiven before we ever even committed them. (We just need to accept His forgiveness.)  So I'm reading through John chapter one with my mouth wide open in awe! My mind is running around crazy just thinking about all the wonderous works of God. The Word of God - His very breath become flesh and walked among man for a brief 33 years. In verse 14, it says He ...

The Back of the Cave

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  This morning I let my mind and heart run around in Psalm 57 for a while. It's been a long-time favorite as I "found" it during one of the darkest storms of my life in 1986. I find myself going back there a lot. David penned this psalm while running for his life from Saul. He was hiding in a cave. Do you ever feel like you live in a cave as a caregiver? I know I did when I first brought Chris home. I found myself all alone almost all the time.  What David did in the cave is an example for us all. He wasn't shy about expressing his emotions or concerns. But he also wasn't shy about declaring his faith and trust in God, even in the tough times. He declared from the back of the cave I will hide beneath the shadow of Your wings. I cry to God! I will sing Your praises. Be exalted O God above the heavens. Even while navigating a difficult time in his life, he put his trust in God. I think we do that a lot. David also declared in verse 3 that God was going to send forth...

How Long?

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Do you ever feel like you've reached the end of what you can do? It may stem from pure exhaustion, but it feels like it's a "that's it" moment. It feels like God doesn't hear. It feels like He has moved away. There are just those times of overwhelm. Or maybe it's just me. I do think that the psalmist was feeling these types of emotions when he penned Psalm 13. It's not clear what type(s) of circumstances David was facing, but his emotions are clear. His soul is crying out for God to intervene. In the New Living Translation, Psalm 13 reads this way: O Lord, how long will you forget me? Forever? How long will you look the other way? How long must I struggle with anguish in my soul, with sorrow in my heart every day? How long will my enemy have the upper hand? Turn and answer me, O Lord my God! Restore the light to my eyes, or I will die. Don't let my enemies gloat, saying, "We have defeated him!" Don't let them rejoice at my downfall. B...

Cause and Effect

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  We learned about cause and effect in elementary school. As life progressed, we learned it from life lessons. If I don't pay my electric bill - they will shut it off. You know? In scripture, there are lots of examples too. But I want to look at the other side of this coin.  When the king had Daniel thrown into the den of hungry lions, the effect was supposed to be his death. But God had other plans. He disrupted the cause-and-effect system of man with His own plan. In Jeremiah, God foretold the Babylonian captivity. Then He explained that He had thoughts of peace, and not evil, to give you a future and a hope. He explained that His cause and effect system works like this - you call on Me - I answer. Period. I like that. Sometimes we can get pushed so far back into the caregiver's cave that things like hope, a future, and peace are hardly discerned. The Enemy likes it that way. But God offers hope on top of hope. Life can throw us some curveballs and caregiving isn't for th...

True Confidence

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  Do you ever have those mornings where you know you have a ton of things lined out to do but you just want to stay under the warm covers a little while longer? Most days, we just can't. Personally, I always regret it later in the day when I don't get as much done as I wanted to. But that is nonetheless where I was this morning.  Usually, I get up and put on coffee and let it make while I change Chris and bolus him some water. Then, I crawl back into bed with my coffee cup and Bible in hand. Sometimes, I wish I had the choice to sit there all day. But my coffee would run out. And then there's that there is just too much that has to be done - and I'm the only one to do it. lol While sitting there this morning, I felt my emotions try to take the dive into the caregiver's abyss. The fog was trying to overtake me. But I just don't have time for it today. Like you - I probably just need a day off. But of course, they don't happen. And their rarity is even rarer s...

No Get Out of Jail Free Cards?

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  Do you ever feel like life just doesn't let up? Sometimes it seems like caregivers should get some sort of exempt card. You know? Something that lets us stay in the cave without having to deal with all the craziness that's going on in the world. Well, it was just a thought. I guess there are no "get out of jail free cards" in life. A pandemic rages on and we didn't get an exempt card, did we? Political and civil unrest didn't qualify us for one either. We have to deal with all the craziness in the world plus our caregiving responsibilities. Isn't caregiving enough? Dealing with aids who don't show, people and family who do not know how to help so they avoid us, and the traffic of health care professionals of all sorts is enough for any given day. Yet it happens over and over again. How do we stay sane?  Caregivers are resilient - we just keep going. Every night I go to bed feeling like I failed. I didn't get enough done. It's easy to focus on...

The Seeker

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  This morning I found myself reading in Ezekiel. Although I love the OT prophets and read them often, I must admit I had no inspiration and my Bible literally opened to it and I began reading. I am so glad I did. God was warning the people of Israel and giving Ezekiel a rundown on the true state of their hearts in chapter 33. Then He begins to talk about the shepherds who were supposed to be caring for the sheep but were instead taking care of their own needs and scattering the sheep. Even some of the sheep were being inconsiderate and unkind to other sheep. God was not too happy with the "fat sheep" who had gotten that way by pushing other sheep out of the way. They crowded their way to a "blessing." He said He would judge between the sheep and the shepherd as well as between sheep and other sheep. Why? He's the seeker. So for the sheep suffering from neglect from the shepherds and bullying of other sheep - God said He would step in. He said He'd make sure...

The Corona Virus and Faith

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No matter what you believe about the Corona Virus and the “pandemic” declared by WHO, it’s a concerning situation. While the virus itself doesn’t pose much threat to the general public, and recovery is expected, to those most vulnerable among us, it can be fatal. That puts a bit of stress on us as caregivers as we strive to take the necessary precautions to try and shield those we care for from exposure. Where do we run in times like these? As a caregiver fear knocks at my heart’s door. I want to batten down the hatches, spray everyone with disinfectants and move further back in the caregiver’s cave. The social isolation of being quarantined isn’t scary – many of us have been living like that for years. I discussed this in another blog I maintain by stating, Welcome to My World . We hold on to faith every day as caregivers. It takes faith most days for us to continue living and moving forward. But add something like this crazy virus on top and we have to dig down just...

A Tender Chain Breaker

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Yesterday, while I was out on a run, I had some music playing. I don't recall which artist or song it was but at some point in the song it referred to God as the "chain breaker." I have a very vivid imagination, and I could see His huge, very strong hands breaking a thick chain. For a little bit, I thought about the strength it would take for hands to break chains. But then another pictorial thought entered my mind. I thought of these two same huge, strong hands. But instead of a display of raw strength, it was with great tenderness they picked up the pieces of my broken heart. The contrasting image moved me in a strange way. God is big enough and bad enough (even without our help) to break off the chains that bind us. In one motion, He can crush them with His powerful hands and set our hearts and souls free from bondage. Yet at the same time, His strong hands can tenderly, gingerly, with compassion and love, pick up the pieces of a broken heart to bring comfort and...

Thoughts of Peace

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To be honest, I'd pretty much dismissed the promise so many claim out of Jeremiah 29:11. I'd wondered how that particular verse could possibly be applicable to the caregiving situation. When I'd see it or hear it quoted, I just didn't think I could apply it. It's easy to get tucked away in our caregiver's cave and seriously think there are a few scriptures or passages that do not apply to us. But this morning as I was reading through this chapter I realized something I'd been missing. I went back up to the first part of the chapter. Jeremiah starts out explaining who he was sending the letter to  the remainder of the elders who were carried away captive - to the priests, the prophets, and all the people Nebuchadnezzar had carried away captive from Jerusalem to Babylon. So, I read the chapter again with new eyes. Jeremiah first offered some instruction for those in captivity. Sometimes, caregiving can seem like captivity. We cannot always go places we...

Everything is Everything

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Do you ever feel like life has sort of passed you by? I talked about how I sometimes feel politely ignored  in another post. Maybe you feel like you drew the proverbial short stick. Maybe it's just me - but I had so many dreams and plans that were jerked out from under me with that one phone call. It can feel like no one really understands what we are going through, not that they are expected to. The caregiver's cave becomes an alone place - but a safe place for us. I was thinking along these lines this morning and a verse came to mind. It took me a few minutes to find it as it's not really a super familiar one, to me anyway. It's in Exodus12:40-42. The New Living Translation reads this way:   The people of Israel had lived in Egypt for 430 years. In fact, it was on the last day  of the 430th year that all the Lord's forces left the land. This night has been reserved  by the Lord to bring his people out of the land of Egypt... What stood out to me was that...

You Are Valued

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As caregivers, there can be a lot of things we struggle with, things that are often difficult to talk about. It can be hard to know where to put our emotions. We oftentimes feel like we cannot share what's really going on in our heads because our thoughts are so well, all over the place.  (Maybe that's just me!) Lately, I've settled a few issues with my own heart and begun to sing again. That's huge. You know how I love the caregiver's cave. We can all get comfortable there, can't we? There are two things that pulled me out of the musicless part of the cave. One, I found my grandmother's handwritten music scores from the '40s in some of my aunt's things. Secondly, we had to move her piano to our house. It's in the living room... in my face all day long begging to be played. When everyone is gone but Chris and me - I play my heart out and lift up my voice to Him once again. It's been refreshing. I like it now because it's personal, jus...

Where'd you leave it?

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If anyone understands the busy-ness of a caregiver's world, it's other caregivers. Using the word busy  is possibly an understatement. We certainly have our hands full, all four of them. lol. I remind myself of this as I try to return to being more regular with this blog. The move is behind us, my aunt is in an assisted living facility. So now I am a full-time caregiver for my son as well as a long-distance caregiver for my aunt. These are two very different dynamics. But we press on. I've struggled with feelings of inadequacies and learned that sometimes I really can't do it all. Evidently, I misplaced my cape. Smile so did you, Superman! The last few days I've been in prayer about the "call" God placed on my life. I have struggled so much with what I thought  that was going to look like. Finally, I just put in His hands and asked Him to tell me what to do. So, this morning when I opened my Bible to Isaiah 49 I found myself. Isaiah starts this c...

Peeking Out of the Cave

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Do you feel like you are in a constant state of change? Sometimes I am afraid to put my feet down so to speak, as everything is bound to be different before I get them settled. Today will be different too, as each day is unique and yet redundant at the same time. We do the same caregiving tasks over and over, day after day. Today, though I have the promise of an aide. And now that I have settled in to an aide-less routine, that means changing it all up again. It sounds silly and like it wouldn't matter, but it really does change a lot. For instance, I want to make sure our laundry is sorted out because when aides are not coming regularly I do some of it together. I also have to get Chris fed, bathed or up (depending on his sleeping schedule) before the aide comes - or figure out when it fits in. I pretty much have to change the way I do my mornings since I have word he's really going to come. (His boss told him if he didn't show up today, she'd restaff him. Why sh...

Whether or Not You "Need" It

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The last few days have been more hectic than usual around my house. I've had friends and family in and out to celebrate my birthday in one way or another. It's been a wonderful weekend and I'm all birthday-ed out. As we go into a new week, I think about how I'll deal with the alone-ness that is surely to creep back up on me. I think one of the things we have to deal with as caregivers is being alone. As a single caregiver, I can spend a lot of time all alone and since my son is non-verbal I used to go days without even hearing other's voices except on TV. Thankfully, my online jobs have changed that and I see and talk to people via video calls frequently. I have also had my health coaching classes I watch via video. It's certainly not as good as in-person, real discussions - but it's been better than nothing. Oddly enough, sometimes if I have a lot of outside  contact now - I actually deal with over stimulation. I have to chuckle at that, but it's ...

Beyond the Cave

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As I was going about my early morning routine of making coffee, bolusing and changing my son etc. I just felt heavy. Over the last few weeks I've been toying with the idea of getting rid of stuff... my house is so full. I do think this is a factor. I simply have too much to keep up with. As I walked through the apartment with one eye open (this is BC - before coffee), I thought of how I need to just go through and get rid of stuff. Lots of stuff. As I walked through my living room, my medal rack caught my eye and I though about how I carry as little as possible with me when I run. I strip down to shorts and a light t-shirt, put my phone in an arm band to keep my hands free, and wear a small runner's belt to hold my keys. I do not wear long pants even when it's cold. And if it is chilly out, I still wear as little as possible because I don't want anything  to weight me down. With a big sigh, I wondered if I got rid of stuff in my life that was weighing me down, c...

Outside the Cave

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It seemed as though Philippians 2 was written just for me this morning even though Paul penned it years ago to Christians in very different circumstances. I found a few nuggets to think about today, and a couple of them stung just a bit. I ended up thinking about verse 1 a lot more than the others because these can be very real questions for the caregiver. The NLT reads Is there any encouragement from belonging to Christ? Any comfort from his love? any fellowship together in the Spirit?  And Paul goes on to talk to the believers at Philippi asking them why they are not getting along. While my focus isn't on getting along with other believers, I did think about these questions as a caregiver. Obviously, believing in Him hasn't kept difficult times from visiting. Knowing Him didn't "protect" us from being caregivers, and it didn't keep us from having to face some very difficult situations in life. Just think about Job - his faith didn't protect him fro...

When Nothing Changes

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This morning my devotions led me to Psalm 104. It's been a long time favorite of mine so I read through it slowly and tried to let some of it just sink in. I'm a huge nature buff - or at least was BC (before caregiving) so I love the description of nature and creation. My mind really gets going when I go through all the different ways He provides for animals - and for us. One of my favorite verses is 19, the New Living says this: You made the moon to mark the seasons and the sun knows when to set.  The sun never reaches high noon and then forgets which way to go! The things He set in order - are still working perfectly today. As a caregiver, sometimes remembering these seemingly little things helps, and sometimes it doesn't. Change is a big part of the world, of nature, of caregiving. But it's not always those things that change that bothers us - it's the things that don't.  For the most part our day-to-days don't change a lot; it's always chaotic....