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Showing posts with the label rejection

Between the Lines

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  I have recently discovered that I say a lot of things and expect people to read between the lines.  You may do it too whether you realize it or not.  As caregivers, it can be difficult to find the words for our emotions. We can't always adequately describe our situations with words. And even if we can, there are many things we deal with daily that are taboo topics. Or, of course, we don't deal with some topics as we want our loved ones to have some dignity. So we speak in riddles and only those who really know - fully understand. What we really mean. I was thinking about this a lot yesterday and here are a few examples that I came up with, maybe you've got a few of your own. I need to get out more. - Really means I am so lonely. Wanna come over for a cup of coffee? - Means I am at the end of my rope. I feel neglected, alone, and I need a friend. I am eating myself out of house and home lol - Really means - I'm experiencing emotional eating and I don't know how to ...

Our Shield

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  As a new year unfolds, I take a soul inventory. I think about the things I  "invested" in last year. Maybe I invested some money, time, or just thought. My goal is to see what things merit continued investment. As a caregiver, you know how limited our time is each day, so we have to make the most of it. Some things can't be compromised like our own health (mental and physical), our jobs, other relationships (if we have any!), and our spiritual wellbeing. But some things can be cut for sure. I was thinking along these lines in terms of how I care for Chris. What things do I need to make sure are in his days and which things are unnecessary? Right now, I want to focus on keeping him as comfortable as possible and as mobile as possible even with his limitations. I want to help him have more "experiences." He seems bored and unengaged here at home, but as soon as we get in the van - he pops his head up and looks around like crazy - more outings are on tap if it...

Self-Reminders

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  Are there days you get lost in the shuffle? Who am I talking to? lol - As caregivers, it can feel like we are always  lost in the shuffle. We can get lost in taking care of our loved ones and forget who we are. It took me a long time to be able to figure out things I liked  - and just as long to allow myself to enjoy them. It was quite a while after the tragedy and trauma of Chris' wreck that I was able to feel okay about laughing and smiling. Eventually, I learned it was okay for me to live too - even while being a caregiver. But it's so easy to get caught up in their care that it becomes our identity. Right? Or is it just me? Before the pandemic, I tried going to a local church. I enjoyed it - even though I had a little attitude about it. It was very difficult to get both of us ready and out the door to be on time. Sometimes I heard myself think, boy, this better be worth it. lol. I'm sure I'm the only one. But what troubled me is that they couldn't see past me ...

Who Am I Really?

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It's so easy to get lost in the shuffle. We don't have to go through the list of all the things we have to do in a day, or the numerous people who come through weekly to check on our loved one, or the paperwork we have to keep up with - all to provide proper care. But most of these activities are based around the one we are caring for - not around us. My "love language" is time. If you spend time with me I feel loved. You can lavish gifts on me  (not that anyone has tried that recently! lol) and I won't necessarily be able to translate that as love.  But spend time with me and I will feel like you care. The social isolation of caregiving and the always feeling like you're out of step with normal  can start to wear on you. Lately, I'm so much more comfortable with caregiving - and not struggling as much about going into public places. I guess that happens when you don't have an aide for an extended period of time and you just have to adjust. I ...

Quietly Discarded

There are times that I joke about living in a cave ; and even though things are said in jest it really can seem that way at times. Many times the caregiver lives a very isolated life where activities outside the home are very limited. For awhile this used to wear on me but it has finally settled in and my cave is a very safe place, a peaceful place and I am actually finding that I do not do as well outside the cave as I used to. Others really do not understand the caregiver's cave. There's just no way for others to understand the lack of freedom that can be experienced. You cannot just jump up and go grab a few things from the store, have coffee with a friend or go to an afternoon matinee. The things that are commonplace for the majority are rare for the caregiver, if they exist at all. We cannot expect others to understand our situations - they are not living the experience with us. We do not fit society's mold and sometimes we can feel quietly discarded. No one will...

Do You Fit the Mold?

One thing that really surprised me when I began the walk of a caregiver was the rejection. We try not to take it personal by telling ourselves it's not on purpose, just that people do not quite know what to do with us. We do not fit the normal mode. We cannot always just get up and go out for a cup of coffee, grab a quick brunch with a friend or attend church like we used to. But we still have the same desires and need for friendships and relationships as those who are not caregivers. Rarely does someone cross that line and actually bring us  lunch or a cup of coffee. And there are few (and I thank God for them!) who will come and sit for a few minutes just to chat. But overall there is this rejection that must be dealt with.  We are in good company. 1 Peter 2:4 has this to say of Christ: and coming to Him as to a living stone which has been rejected by men , but is choice and precious in the sight of God ... Jesus had crowds of people following Him until He hit what was p...