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Showing posts from July, 2015

Things Eternal

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Following Paul's advice in Colossians 3:2 can be difficult for the caregiver; beneficial, but difficult. He told us to set your mind on things above - Our days are filled with tons of caregiving tasks to do and when life itself is blaring in your face it can be difficult to set our minds on things above . Any given day our minds can be full and busy getting tasks associated with caregiving lined up and done. Take my week for example. It's the last week of the month and it seems like all the health professionals wait until the very last second to do their visits. Then they expect m to jump through hoops rearranging things to make room for them in an already tight schedule. Fortunately and unfortunately they are all doing them today. A new aide, the doctor and the case manager are all coming today. I don't see getting anything done today. These kinds of busy days it can be difficult to get your mind on anything other than just surviving. How am I supposed to be able to

Everything Changes - Nothing Changes

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As a caregiver, we can play many roles and wear lots of hats all at the same time. People looking in often don't realize that there is a lot more to us than just caregiving - even though it consumes a lot of our lives. Sometimes I feel totally scattered; my thoughts and life feel like they are going in many different directions all at once. The caregiver can be caught in a very fractured life. Colossians 2:10 says that we are complete in Him.  Even though our lives can feel shattered or scattered, and we don't enjoy some of the "freedoms" others seem to have, we are not fractured.  We are whole. In many instances caregiving brought hurt and confusion into our lives and quite honestly, in many cases it never goes away we just learn to deal. I'm still trying to come to grips with the fact that this is what my life looks like from here on out. And one of my biggest challenges is trying to prepare for when I'm gone. It's not a fun thought - but it has to

I Can Work with That

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In many instances, caregivers can feel out of touch or out of sync with the "real" world simply because most of our lives are lived in a cave. We can tend to be on either side of the spectrum. One, we are trapped there; or two, we feel safer in our caregiver's cave even though we are alone. Personally, there have been periods of time when I didn't have the capability to get out and there have been times I've preferred being tucked away in mu cave. But God's word does not know any boundaries whether they exist only in our mind, or if they are an invisible barrier we put up ourselves. God can reach all the way into the depths of despair. He can see past the walls we build to keep ourselves in, and others out. His love can reach all the way into our life-mangled hearts. In Colossians 1:5-6, Paul is speaking to the Christian believers when he says that the Word of God bears fruit from the time we first hear it. And guess what! His word does not stop bearing

Our Most Basic Need

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Philippians 4:19 is going to finish out our little journey through Philippians. My God will supply all your need  according to His riches in glory. Those of us who grew up in church know we learned this one early on. It was also used by our parents when we didn't get or couldn't have something we wanted. As we learn to be content in Him and with Him as we talked about in yesterday's devotion, our list of needs begin to shrink. I think some of that comes with age too as we learn to distinguish the things that have true value. We all have the same basic needs like food, shelter and love; but beyond that our needs can vary greatly. 1 Timothy 6:6 reminds us that godliness with contentment is great gain. I have to admit that during this caregiving journey I've had some very tight almost suffocating financial situations. Anxious thoughts try to take over my mind and infiltrate my life. But in those moments I stop and talk myself through it by saying things like I have foo

I Can do "All" Things?

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Caregiving is one of the hardest things I've ever done; and I've done a lot of "above average" things. I have started and ran my own freelance business, taught junior high math, hiked 10 mile wilderness trails and run a marathon. I also got rid of all my stuff at one point and picked up and moved half way across the country all by myself to stay with people I had never met. But as I read this familiar scripture one more time, it didn't seem to fit exactly like it did before. In Philippians 4:13 Paul says I can do all things through Christ who strengthens me.  Paul wrote it while sitting in jail. He wrote it to encourage the Philippians. What did he really mean? If we look at it contextually, it might not mean what we thought. We've used it for every tight spot in life and for an encouragement to get things done that we thought we couldn't do. While that might not be a bad thing, it doesn't seem to be the context of the verse. Looking at the enti

Think About It

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I enjoy taking pictures of nature and BC (before caregiving) I used to enjoy hiking. One of the things I liked so much about being out in the wilderness area was when nature would surprise me with a burst of color. It was always amazing to me how I'd be in the deep woods miles from anything, maybe even climbing a relatively rough terrain scattered with rocks and out of nowhere would pop up the daintiest little flowers. It always made me smile. This morning when I was looking for some sort of picture to put here I had my choice between just 2 or 3 I'd taken from my small backyard. Then I had this thought, none of these flowers are there - not one of them exists today. It almost made me sad to think that they are just here for a short time and then they faded away. it can seem like our whole lives are that way at times. Honestly, sometimes I feel really cheated  by life. It can seem like I had several spots in my life where there were colorful bursts  only to be denied my h

Not a Fair Trade at All

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Be anxious for nothing.  That's what Paul told the believers in Philippians 4:6. Obviously they didn't have a handicap van and people parking in the way of the lift in a clearly marked restricted area! (People wrongfully taking handicap spots is one of my pet peeves btw.) As a caregiver you know how anxious life can be at times, or all the times sometimes. Surely Paul would rethink these instructions were he here today, or maybe he wouldn't.  Every single day there are constant opportunities to be anxious, sometimes it even feels like we are living anxious. If we do not guard ourselves we can be one huge bundle of anxious as we walk through the day. And it can take the smallest thing to cause us to explode. One of the strategies I use for dealing with anxious thoughts is to turn them into prayers. Sometimes, when I remember, I turn them into thankful prayers. Then not only do I have peace in my heart, but His peace invades it as well. And when I give Him these crazy,

A Few "Forevers" to Help You Rejoice

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When writing to the Christians in Philippi, Paul reminded them to rejoice in the Lord.  He must have really wanted to emphasize it because he said it twice in Phil. 4:4 - rejoice in the Lord always, and again  I say, rejoice. Many might think that as caregivers we do not have a lot to rejoice about or that we have a right  to be sad or upset. After all, life "cheated" us. We really cannot afford to buy into that lie. Sometimes I have to admit when someone who I think lives in an ivory castle so to speak tells me to rejoice or be thankful, I would like to just punch them. They don't understand real life. Many appear to live a highly protected life free from a lot of the struggles we have to face everyday. And it is true that they are not dealing with our situation. But even among caregivers each of our situations has very different features and circumstances. No two journeys are alike even though we are caregivers. It can be easy to compare ourselves among ourselves an

Life's Not Fair - But He Is

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One of the things I prayed when I started this caregiving journey was that it would not make me bitter. I didn't want to grow old and angry at life. My prayer was that God would use the pressurized situation to make me a softer person and that it would temper me into a vessel He could use. But let's face it, we have a lot we could complain about. After all, life has dealt us what many would call an unfair blow; our lives will never be considered "normal" again. But I can't complain; or can I? Paul told the Philippians to do all things without grumbling or complaining. (Phil. 2:14) Why did he have to say "all" ? There's not much leeway there - and absolutely no exceptions or disclaimers. But... the caregiver might argue - we have a lot to complain about: we gave up our lives for our loved ones...and we miss it! our helpers didn't show up today medical professionals are not listening to us we've called the doctor 3 times and they a

Grace for the Journey

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"Humble" is not a word many use to describe me! I'm rambunctious, loud, crazy and full of energy. (I run half marathons for fun on my "days off"! lol) Humility or the action of being humble has been misinterpreted. Moses wrote in Numbers 12:3 that Moses was very humble, more than any man on the face of the earth. But by our definition, writing about being humble is in direct contradiction to humility. Humility really means knowing who you are. For the Christian it means knowing who we are in Christ and who God has called us to be; then just walking in it. In Philippians the second chapter, Paul gives us a picture of Christ-like humility. A Christian, one who is Christ-like will: do nothing out of selfishness regard others more important than themselves not look out solely for their own interests Paul goes on to say in verse 5 that these are the attributes of Christ.  This just lets us know that as caregivers, we look like Him as we have discussed m

Making Plans

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Making plans can be difficult when you are a caregiver. Whether you are taking your loved one out for the afternoon, on a longer trip or going out yourself and leaving a sitter with them, it's a lot of work. There can be so many things that have to be thought out and arranged. And then because there are so many unexpected things that can happen in the caregiving situation, plans can easily be thwarted. Having plans interrupted can be particularly frustrating, especially for those who are not able to get out much to begin with. But it happens all the time. Philippians 1:6 is a reminder that God never  has his plans interrupted. It simply states He who began a good work in you will complete it.  BC (before caregiving) I had dreams and actual plans of traveling internationally. I was headed to Africa in a few short months and had a heart to reach many nations. My plans were dropped when I received word my son was medi-flighted from the scene of an accident. For awhile it remained

Caregiver's University

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As caregivers we are able to get in there and get things done. It sort of comes with the territory. No matter what our basic personality is, in just a short time of caregiving is good schooling on this topic. We learn rather quickly that in many cases, advocating for our loved one means rolling up our sleeves and getting 'er done. Too bad there's not a Caregivers   University w here we can go to learn the skills needed. We could get a diploma once we learned it all and of course passed our internship  where we learned all the ropes using a hands-on approach. Of course I am speaking tongue-in-cheek as it would be impossible for someone to teach us what we've learned. Of course there is no such school and we are not going to get a diploma for our learning. But we do a lot of learning about a lot of things once we become a caregiver, including things about ourselves. Even though I'm pretty high strung and hyper most of the time I let a lot of things slide as a person

Present Continuous Action

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At the end of the day, we have to be honest with ourselves about everything. I have to look back and wonder if I fully trusted Him or if I tried to take the control of situations on myself. Yesterday, we discussed Psalm 91 and today I want to look at one little phrase: I am trusting Him.  It's found in the last part of verse 2. It demonstrates the present continuous tense. It means, I am trusting Him right now - and I will continue to do so into the future. There are so many things in the caregiver's day/life that are unpredictable. We never know when our loved one might become ill, or suffer a fall even though we are careful and take the necessary precautions. Shipments of supplies often get lost and we have to make purchases to make up the difference; or aides don't show up at their scheduled time. I've had case managers and nurses call to come by at the drop of a hat. And in my instance, I never know exactly how my son is going to take any given day. Some days

What do you need that for?

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Something as simple as a flower can be a bright spot in a day. When we walk through the park behind our apartments, we often find wild flowers growing sporadically along the side of the trail. It's been my practice for many years to simply enjoy this random beauty and allow it to lighten my heart. If that's the only reason God made wild flowers, then I am thankful. He usually has a reason or purpose for just about everything, we just don't always discover it right off. This morning I was reading through a psalm that I grew up knowing. My mom read it to me when I was scared or troubled. As an adult I read it to my children as well. Psalm 91 I believe has been misinterpreted over the years to mean that nothing  is going to happen to us if we stay hidden in Him. On one hand, I agree with the concept - our soul (being)  is safe in Him. It is safe from any type of harm. Our body on the other hand, is susceptible to life. As I was reading this familiar passage I paused to t

When the journey gets Long

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The hospital is a familiar place for many caregivers. We lived there for over 4 months after my son's accident. And then there are times when it seems like we make so many trips they should offer us rewards like frequent flyer miles or something. (smile) Feeding tubes fall out, O2 levels drop below 90, falls or any number of things specific to an individual's care can send you running right back up there. Initially we had tons of friends coming to sit with us. But when the journey got longer they seemed to start disappearing quickly. After the hospital stay we were in two nursing homes and a couple of rehab facilities before we were able to settle in at home. Even though our lives were still changing and evolving everyone seemed to make the assumption that we were home, so everything was okay. They thought things were returning to normal. But in reality we were just trying to find a new normal . And of course, caregiving is a whole different world. Friends seemed to disap

When the Word uses Words

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Many people think the life of the caregiver is one full of constant distress. In one way this is true in that there is never a dull moment and always something or someone to tend to. But once the initial shock is over, and we accept our role and find a new normal,  life just goes on like it does for everybody else. That's of course not to say that the caregiver's life is an easy one or that we are not concerned and busy with many different tasks....daily. Even though our minds and bodies go a hundred miles an hour all of our waking hours, there can still be an underlying heart peace. John 14:27 tells us that God gives us a peace that is not like the world's version of peace, which is not peace at all. I have to be the first one to say that not letting my heart be troubled and not letting  my heart be afraid are not easy tasks and it takes a lot of effort on my part. He gives us His peace; a peace that is way beyond our understanding (Philippians 4:7.It is up to us

Rest? Who Needs Rest?

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When I first brought my son home I soon realized that a good night's sleep was a thing of the past. It was like having an infant again where even if they sleep well, you wake up with every little sound they make. I finally adjusted and relaxed a bit until now I do get some sleep. In case you hadn't noticed, I'm pretty high strung and very active inside and out. I hate to sleep - I know I need it but it seems like such a waste of time. Do you know what all I could get done in that 6 hours? Yes, 6 hours, that's what I try to give myself because I just can't stand to sleep away one-third of the day. Actually, sleep and rest are two different things and as I have battled my own medical conditions of late (perhaps brought on by lack of sleep? *smile*) I have learned the importance of sleeping and resting. Sleep is the way we rest our bodies so they remain strong and fight off disease. But rest  is an inside thing. Maybe that's why Jesus said in Matthew 11:29 t

Un-sacrificial Sacrifice

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There is no picture perfect view of a caregiver as each situation is unique. Some caregivers spend time looking in on a loved one and checking to make sure things are going along smoothly while others provide total care for their loved one. No matter where we fit on that scale caregivers give up  some portion of their lives to take care of another. In 2008 I was perched to explore the world. I had gotten rid of everything, moved to Chicago and was scheduled to go to South Africa the following January with a Bible school. Those hopes and dreams faded after I received the phone call about my son's wreck. Instead of flying to Africa, I was headed back to Louisiana to be with my son. Although it was quite the process to work through- It doesn't feel like a sacrifice; it's just what needed to be done. In Philippians 3:7-10 Paul talks about how he gave up everything to know Christ. Verse 10 states he was conformed to His death.  As a caregiver we allow ourselves to &quo