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Showing posts with the label caregiving journey

Sandwiched

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 I love the Psalms. The psalmists are all so open, raw, and real with their emotions. Reading the Psalms has let me know that it's okay to tell God anything  and everything.  During my growing up years, I was toted off to church any time there was a service. Sometimes, we traveled, and I got to miss school to attend minister's meetings with my mom. I learned so much at the height of the Charismatic move. I wouldn't trade anything for that upbringing. As the movement evolved, we found ourselves in the middle of the Faith movement. I've seen some of the greats like Lester Sumrall and Pop Hagin many times.  But the "faith movement" was lacking a bit and got off center. It was indirectly taught that if we had faith, we didn't get sick, we wouldn't be poor, and bad things wouldn't happen to us. You can imagine my personal conflict when I got sick. And when my son had his wreck, and I started my caregiving journey, it took some time to reshape and redefi...

When I Can't See

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 This morning, it's cloudy and rainy here. I like a nice rainy day now and then. When I was a kid, I'd curl up with a book or two and read the day away. Boy, how I wouldn't love one of those kinds of days right now! But for the caregiver, it is not meant to be. Lol. But the cloudy day did help spark some deeper thoughts that I've been rolling around. Do you ever go through those times when you can't see or feel God? One thing I've tried to do with this blog is to be gut-level honest about emotions, thoughts, and all the crazy parts of being caregivers. There are days when I don't see or feel God's hand at work in my life. Many of my middle-of-the-night experiences have led to me crying out to God and asking Him if He sees us. If He hears us. And IF He does, why isn't He answering? But in most Christian circles, those raw emotions and legit questions are not allowed. They show a "lack of faith." But do they? On this cloudy day, I cannot see ...

The Back of the Cave

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  This morning I let my mind and heart run around in Psalm 57 for a while. It's been a long-time favorite as I "found" it during one of the darkest storms of my life in 1986. I find myself going back there a lot. David penned this psalm while running for his life from Saul. He was hiding in a cave. Do you ever feel like you live in a cave as a caregiver? I know I did when I first brought Chris home. I found myself all alone almost all the time.  What David did in the cave is an example for us all. He wasn't shy about expressing his emotions or concerns. But he also wasn't shy about declaring his faith and trust in God, even in the tough times. He declared from the back of the cave I will hide beneath the shadow of Your wings. I cry to God! I will sing Your praises. Be exalted O God above the heavens. Even while navigating a difficult time in his life, he put his trust in God. I think we do that a lot. David also declared in verse 3 that God was going to send forth...

Behind the Wheelchair

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There were a lot of things that changed about my life when I became a caregiver. I used to run on "go" all the time, loved to be in a crowd, and enjoyed hiking, a lot. The social isolation has been one of the most difficult aspects of caregiving for me. But I didn't really change that much as "me" - I just had to change a lot of what I did. I was still the same person who loved the same things I did before caregiving became my lot in life. I just had to stop many of the things I was doing because something more important needed to be taken care of, my son. Even though I've always been a very (and I mean very) social and personable person, it's more difficult to develop relationships now for me. I know one reason is that we can't do  some of the things others do to build relationships. You know, there's no meeting up for a movie, a cup of coffee or a walk in the park. Even if we do schedule it we have to be willing to drop our plans at the...

A Few "Forevers" to Help You Rejoice

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When writing to the Christians in Philippi, Paul reminded them to rejoice in the Lord.  He must have really wanted to emphasize it because he said it twice in Phil. 4:4 - rejoice in the Lord always, and again  I say, rejoice. Many might think that as caregivers we do not have a lot to rejoice about or that we have a right  to be sad or upset. After all, life "cheated" us. We really cannot afford to buy into that lie. Sometimes I have to admit when someone who I think lives in an ivory castle so to speak tells me to rejoice or be thankful, I would like to just punch them. They don't understand real life. Many appear to live a highly protected life free from a lot of the struggles we have to face everyday. And it is true that they are not dealing with our situation. But even among caregivers each of our situations has very different features and circumstances. No two journeys are alike even though we are caregivers. It can be easy to compare ourselves among ourselves an...

Caregiver's University

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As caregivers we are able to get in there and get things done. It sort of comes with the territory. No matter what our basic personality is, in just a short time of caregiving is good schooling on this topic. We learn rather quickly that in many cases, advocating for our loved one means rolling up our sleeves and getting 'er done. Too bad there's not a Caregivers   University w here we can go to learn the skills needed. We could get a diploma once we learned it all and of course passed our internship  where we learned all the ropes using a hands-on approach. Of course I am speaking tongue-in-cheek as it would be impossible for someone to teach us what we've learned. Of course there is no such school and we are not going to get a diploma for our learning. But we do a lot of learning about a lot of things once we become a caregiver, including things about ourselves. Even though I'm pretty high strung and hyper most of the time I let a lot of things slide as a person...

Present Continuous Action

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At the end of the day, we have to be honest with ourselves about everything. I have to look back and wonder if I fully trusted Him or if I tried to take the control of situations on myself. Yesterday, we discussed Psalm 91 and today I want to look at one little phrase: I am trusting Him.  It's found in the last part of verse 2. It demonstrates the present continuous tense. It means, I am trusting Him right now - and I will continue to do so into the future. There are so many things in the caregiver's day/life that are unpredictable. We never know when our loved one might become ill, or suffer a fall even though we are careful and take the necessary precautions. Shipments of supplies often get lost and we have to make purchases to make up the difference; or aides don't show up at their scheduled time. I've had case managers and nurses call to come by at the drop of a hat. And in my instance, I never know exactly how my son is going to take any given day. Some days ...

Rainy Days and Mondays

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I'm a 70's child and I remember when "Rainy Days and Mondays" was popular on the radio.It's got such a smooth sound it can get stuck in your head. For the caregiver "Mondays" doesn't mean too much really, since everyday  can look pretty much the same. We get up on Monday mornings with just as much to do as we had when we got up on Sunday morning. The caregiver's responsibilities don't change much, if any, from day to day. I usually try to make some small variances on the weekends, like letting my son sleep in just a little bit longer; but the primary responsibilities do not change with the day of the week. When you are caring for another whole person these do not change much. There's still bathing, pureeing foods, feeding, transferring, dressing, and lots of other things that have to be done every single day. If we are blue because it's Monday, we are likely blue every day of the week! I went in search of one of the scriptures w...

My Times are In His Hands

I can't even begin to imagine what Job went through. If you go back and read the first chapters of Job you'll see how he lost his children, his wealth and sustenance, his possessions and even his health. Sometimes I read Job when I think I can't handle anymore. Early on in my caregiving journey (and sometimes even now) I feel a great sense of loss. I had rid myself of my possessions and was headed to the mission field when my son was involved in the accident. When he was going to be released to "go home" I had nowhere to take him. Add that to losing who he was and I dealt with a heavy sense of loss for a long time. I compensated for the losses I felt by buying anything I wanted. I'd see a movie, a book or a piece of furniture I liked and I'd buy it. It took me some time to realize I was making purchases and other allowances in my life to try and make up for the great loss I felt. I say that to say only on a very small scale can I begin to understand the ...

Breath of Life

You can probably tell by now (assuming you're still reading) that I like Psalm 119. It's the longest chapter in the Bible but it is so rich. Today we'll look at verses 153 to 160. David starts out with a plea for the Lord to consider his affliction. Ever felt that way? There are times we can feel very loved and watched over and the next thing you know we feel like He's packed up, moved away and left us to ourselves. (or maybe that's just me!) David must have felt some of those emotions to ask God to consider him once again. Something that seems to stand out in these few verses is David's request to be revived once again. It's noticeable throughout the entire chapter but three times in this passage he asked for the lord to revive him. revive me according to Your Word (v. 154) revive me according to Your judgments (v. 156) revive me according to Your mercy (v. 159) It makes me think that David didn't care what means God used to do it -- he jus...