Daily Devotions for Caregivers

As a caregiver do you ever feel like you live in a bubble? I sure do. For the most part, if I'm home I don't realize how un-normal my life is. Probably because it's become my new norm. It's a norm filled with lots of visits from case managers, nurses, doctors, and deliveries with a few surprise runs to the ER like yesterday. although each of our stories and days has differences, our norms include changes, dressing an adult, pureeing foods, tube feedings, spoon feedings, transfers, standing frames and range of motion exercises. Most of the time, we probably don't even think about those things - we just do. But when we get outside our comfortable norms, it can seem like we are in a bubble. Many times in public we are ignored. People cut in front of Chris' chair without a second thought. Others let doors go just as I am getting there - which is fine - I CAN do it myself - but it's just rude. Some of it, I'm sure, is my own awkwardness - conversations ar

Yesterday, while I was out on a run, I had some music playing. I don't recall which artist or song it was but at some point in the song it referred to God as the "chain breaker." I have a very vivid imagination, and I could see His huge, very strong hands breaking a thick chain. For a little bit, I thought about the strength it would take for hands to break chains. But then another pictorial thought entered my mind. I thought of these two same huge, strong hands. But instead of a display of raw strength, it was with great tenderness they picked up the pieces of my broken heart. The contrasting image moved me in a strange way. God is big enough and bad enough (even without our help) to break off the chains that bind us. In one motion, He can crush them with His powerful hands and set our hearts and souls free from bondage. Yet at the same time, His strong hands can tenderly, gingerly, with compassion and love, pick up the pieces of a broken heart to bring comfort and

Ever have One of those days?  That's a funny thing to ask a caregiver since every day is pretty much  one of those. Our best days and altered-normals are what some might consider Mondays every day. We can live on such an emotional edge that the slightest seemingly smallest thing can tip us over the edge. It doesn't mean there's something wrong with us - it's the nature of the situation. Dealing with the broad range of emotions can cause great conflict because religion can be condemning. But what are we supposed to do with that? I guess I am thinking along these lines because this has been one of those weeks. An already tough spot has been majorly complicated by taking on the added responsibility of caring for my aunt. While dealing with our elderly loved ones who can no longer use the logical processes to reason can be difficult it's not going too badly. But I won't lie - I'm tired. No, I'm exhausted. I can't ever quite keep up. Working as in job

There are lots of reasons for caregivers to be tired. Sometimes, we stay tired. It takes all our strength to keep putting one foot in front of another to make a day. Lately, I've had times it feels like it takes everything I've got to just to breathe.  I kinda hope I'm all alone on that - and kinda hope someone understands at the same time. In the photo with me is my dear Aunt Polly. She's been living in a home provided by a wonderful ministry that takes care of widows. However, at this point, her care needs have exceeded the scope of their capacity. I went to pick her up last week. She's staying with me until "we" whoever that is, can figure out a plan for her care. What an honor it is to be trusted with both her and my son's care. My heart is full - but so are my hands! In the complexity of the situation and the overwhelming emotions, stress, and thinking, I've reached a conclusion that may seem unrelated. I want to live outside this box. O

In many instances, caregivers can feel out of touch or out of sync with the "real" world simply because most of our lives are lived in a cave. We can tend to be on either side of the spectrum. One, we are trapped there; or two, we feel safer in our caregiver's cave even though we are alone. Personally, there have been periods of time when I didn't have the capability to get out and there have been times I've preferred being tucked away in mu cave. But God's word does not know any boundaries whether they exist only in our mind, or if they are an invisible barrier we put up ourselves. God can reach all the way into the depths of despair. He can see past the walls we build to keep ourselves in, and others out. His love can reach all the way into our life-mangled hearts. In Colossians 1:5-6, Paul is speaking to the Christian believers when he says that the Word of God bears fruit from the time we first hear it. And guess what! His word does not stop bearing

Caregivers have unusual enemies. I say that because our circumstances in life offer different perspectives of the battle. We have unique concerns that others perhaps can't even understand. Day-to-day decisions can become very complicated for the caregiver and simple tasks like making meals or figuring out how to go buy groceries can be huge tasks. It can be a huge undertaking to complete the things most people don't even have to give a second thought to. For me I either have to figure out how to do things like buy groceries or supplies inside a very limited time frame while an aide is here or make ride arrangements 24 hours in advance. It's not a simple thing to just go buy a bag of groceries. And what if I'm about out of eggs and the aide doesn't show up? Let's get real with it - what if I'm out of toilet paper and today's the day I gotta get to the store; and the aide doesn't show up? While others are worrying about their jobs, which coffee to bu

I heard a chorus last week that had this phrase in it: brokenness that separates . It really made me think of a lot of different aspects of brokenness and I came to the conclusion that there are two kinds of brokenness, and I am acquainted with both of them. There is a brokenness that God is near - the kind that says, Lord, I am broken before You and I need you. But there is a time when we are broken and in our self-preservation we draw away from Him. It is not a bad thing to be broken before Him in humility. This is the type of brokenness that He is near, this is when we can come to Him bleeding and needing help. But the other brokenness is sustained by our departure from His presence. This separation comes as we try to hold on to the hurts in our lives and not release them to Him and allow Him to mend. I have experienced this kind of broken - the kind that makes you mad and so you withdraw from Him in anger. I did not understand why these things had to happen (my son's autom

Early in the mornings I go in and feed my son through his peg tube, change him and get him comfortable. Shortly after that he usually goes off into a deep sleep; a restful sleep. I checked on him just before starting to write this morning and he was out ! I thought, he's getting good, restful sleep...healing rest. I figure that when he is sleeping real good and letting his mind and body rest that he is healing. We know rest and healing are connected.  What does that mean to the caregiver? Because as a caregiver, we have pain every day. It never real goes away because we are dealing with a stressful, painful situation all the time; so it hurts all the time. We see our loved one not able to function fully on their own and to need help with simple, daily living skills. They are not who they were and in my case I grieve a lot over the loss of my son - even though he is still here. Yet he's not still here - not like he was. And as we walk out each day, each step along the way