Daily Devotions for Caregivers

  Yesterday was so pretty out that I decided to take the afternoon off and head to the shores of Lake Hefner. It was great to get some fresh air and a little Vitamin D therapy! But I also needed to go to the store. Since I don't have an aide - I am the aide - I've just ordered deliveries but not gone to the store. Navigating the apps has become a huge frustration and I rarely find what I need. Or better yet (sarcasm alert) - I make an order because I need this ONE item - and it's the only item the store doesn't have. What a waste. lol So, I decided to go to the store with Chris for the first time in a LONG time! I was so excited that we were going to do something that looked more like "normal!" But by the stares and gawks I observed as we shopped - I realized we are far from normal. It's quite interesting actually. I push Chris in front and pull the grocery cart behind me making my way through the aisles of the store like an awkward train. I've gotten ...

 This morning I was reading through the psalms called the Song of Ascents.  These psalms include Psalm 120 through Psalm 134. As I understand them, they were sung as the journey to Zion or Jerusalem was made. They most likely sang them happily as they were excited about returning to the temple and the gathering of the people. Psalm 133 talks about dwelling together as brethren. David penned that it was pleasant and good to be together. I am sure for the church crowd the next couple of weeks will be like that. As the coronavirus winds down and things return to some sort of normal, people are excitedly returning to their church services. For the last few months, churches scrambled to have Sunday School, Bible Study, small groups, and services online. I had a slight sense of disappointment when it all started. Why? Because I'd been shut off for so long and none of this was available. But once they needed it - it became the new norm. Now that they won't need it again - thing...

Several things have occurred lately that remind me of the social isolation so many caregivers experience. Even in a crowd, many times we are alone. Even when people do talk to us on outings (if we can even get out!) they can't connect with us beyond the obvious. They only see us as a person behind the chair. I've done a few other blogs about being more than a caregiver and life behind the chair. But as we've been able to get out more frequently, it's come to light again - that invisible feeling. I'm starting to wonder if I'm just the invisible woman. lol It's not easy to do normal  things others take for granted. Things we really want to  do - but just are not feasible. Take going to church for example. Often, there's no fellowship - no one knows how to reach out because we stand out as so different. It's not their fault - they really don't know that they can still ask you out for coffee or lunch. Personally, I find myself in situations ...

One of the difficult things for caregivers (or at least for me) is the emptiness and sense of loss we can deal with on a daily basis. For me, when I look at all the cool things other runners get to do and how they travel and participate in some of the most creative or scenic races - while I sit here in flat Oklahoma and don't get to play....it can get discouraging. Seeing all the things I don't get to do can wear on me and I can battle lots of negative emotions.  But when I came across Psalm 119:5-6 this morning it helped me refocus. It says this: Oh that my actions would consistently reflect Your principles! Then I will not be disgraced when I compare my life with Your commands. Why am I comparing myself with others?  What if I compared myself with the word? Can we find ourselves in these ancient pages? I think so. I have shared before that as we lay down our lives day after day for our loved ones -  we look like Him.  I'm reminded of the script...

The hospital is a familiar place for many caregivers. We lived there for over 4 months after my son's accident. And then there are times when it seems like we make so many trips they should offer us rewards like frequent flyer miles or something. (smile) Feeding tubes fall out, O2 levels drop below 90, falls or any number of things specific to an individual's care can send you running right back up there. Initially we had tons of friends coming to sit with us. But when the journey got longer they seemed to start disappearing quickly. After the hospital stay we were in two nursing homes and a couple of rehab facilities before we were able to settle in at home. Even though our lives were still changing and evolving everyone seemed to make the assumption that we were home, so everything was okay. They thought things were returning to normal. But in reality we were just trying to find a new normal . And of course, caregiving is a whole different world. Friends seemed to disap...

When I first brought my son home I soon realized that a good night's sleep was a thing of the past. It was like having an infant again where even if they sleep well, you wake up with every little sound they make. I finally adjusted and relaxed a bit until now I do get some sleep. In case you hadn't noticed, I'm pretty high strung and very active inside and out. I hate to sleep - I know I need it but it seems like such a waste of time. Do you know what all I could get done in that 6 hours? Yes, 6 hours, that's what I try to give myself because I just can't stand to sleep away one-third of the day. Actually, sleep and rest are two different things and as I have battled my own medical conditions of late (perhaps brought on by lack of sleep? *smile*) I have learned the importance of sleeping and resting. Sleep is the way we rest our bodies so they remain strong and fight off disease. But rest  is an inside thing. Maybe that's why Jesus said in Matthew 11:29 t...