After 7 years I have grown somewhat accustomed to this new normal. I'm not so self conscious about taking Chris out - even feeding him in public is becoming easier. I hate to admit it - but I will to you - but I have all these pre-prepared speeches ready to go if anyone dares to say a word! lol
Even though we can battle constantly with "negative" emotions like frustrations or depression - it's not like we are all wallowing around crying and moaning about our situations all the time. Yes, we have a very different life than most others. And for those of us who can take our loved ones and get out more - it's just not the same. It's taken me 2 years to be able to plan outings time wise. I learned how to allow time for getting Chris in the van and his chair strapped in properly - then of course time for taking him out once we get where we are going -- these types of things are finally easier and manageable. But most people do not have to think about that sort of thing. They don't have to worry about carrying extra rags around to keep drool cleaned up; or what you are going to do with that rag once it's soaked.... you know? It's a whole different set of challenges from here -- and I won't even mention those unspeakables we have to deal with on a daily basis... you know! I will just say we have a lot going on and unless someone rolls up there sleeves and marches into our worlds - they will never know! We face many giants every day....and we keep on moving.
Thinking about all we have gone through to get where we are - and all we have yet to go through to make it to the end of each day - we can use a little comfort. Paul says in 2 Corinthians 1:4 that God comforts us in all our affliction. And Paul would have a clue since he wrote 2 Corinthians in one of the darkest moments of his soul. This means God's got us covered and does not measure out just enough comfort for part of our struggles, but all.
He goes on to say in verse 5: For just as the sufferings of Chris are ours in abundance, so also our comfort is abundant in Christ. For me that says that there are equal measures - we get enough comfort to cover our affliction. It's kind of like His grace is sufficient - God knows how to measure out grace, comfort and peace so that they match whatever we are going through. When we have rougher days - He measures out more comfort to match it. He's not going to leave us hanging unbalanced with more affliction, trouble, frustration or anguish than we can handle. He will measure out the perfect amount of grace and comfort to cover us.
In my mind I see God sitting in the heavenlies holding a huge ladle. As He sees the worry-meter go up as we face today's giants, He just pours out more grace and comfort to match. There's no gap, no lack. So today I am going to meditate on this phrase: His grace is sufficient for me. It's sufficient for everyone else too - but I am going to keep my thoughts on the fact that He has the right amount of grace to help me make it from point A to point B today. My meditations will be on His comfort and how He is watching me closely in order to make sure it matches what I face today. To me - this means He is up-close-and-personal in my life and conscious of my every move and thought; and I will rest in that truth. Will you join me?