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Showing posts with the label caregiving

What? No White Horse?

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 Early on in my caregiving journey - before I even realized I was on the journey - I kept thinking God was going to ride in on His white horse and rescue me. I recall sitting in the SICU waiting room thinking I would either wake up and it'd be a horrible bad dream. Or that Chris would just wake up and start getting better. I never dreamed I'd be still caring for him 13 years later. There was no way I could have even imagined here - from there. I had no idea what here  looked like. Needless to say, there was no white horse; and there was no dramatic rescue.  However, what did happen was that time after time, day after day, moment after moment, God kept rescuing my soul from the emotional dungeon that was trying to drag my heart into its pit. He never abandoned me or left me no matter how bad it got or how badly I behaved. (Yes, I did that.) Instead, I found His calming presence always nearby waiting for me to calm down enough to accept and embrace His peace. God didn't ride

How Long?

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Do you ever feel like you've reached the end of what you can do? It may stem from pure exhaustion, but it feels like it's a "that's it" moment. It feels like God doesn't hear. It feels like He has moved away. There are just those times of overwhelm. Or maybe it's just me. I do think that the psalmist was feeling these types of emotions when he penned Psalm 13. It's not clear what type(s) of circumstances David was facing, but his emotions are clear. His soul is crying out for God to intervene. In the New Living Translation, Psalm 13 reads this way: O Lord, how long will you forget me? Forever? How long will you look the other way? How long must I struggle with anguish in my soul, with sorrow in my heart every day? How long will my enemy have the upper hand? Turn and answer me, O Lord my God! Restore the light to my eyes, or I will die. Don't let my enemies gloat, saying, "We have defeated him!" Don't let them rejoice at my downfall. B

At Day's End

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Caregiver's tasks are endless and almost every evening I have this sinking feeling like I didn't get enough done. It doesn't matter how much I did  get done in a day, I feel like I fell far short of all I needed  to get done. Does anyone else ever feel that way? We already have enough on our plate just in taking care of another whole person or two. I say this as I not only take care of my son who is total assist, but am shifting into a caregiving role with my parents as well. My son can do absolutely nothing on his own but breathe. I not only have to puree all of his food or blend up shakes to put in his tube, but I also have to take the time to feed him. Each day I bathe him, dress him, get him up, stretch him, stand him, entertain him, etc. It starts early in the morning and goes until late at night. Even when he's in the bed early mornings or late evening he has to be bolused, changed, turned, and kept comfortable. It's my pleasure. Add to the daily chores

Mind and Heart

Have you ever twisted a dish rag to wring all the water out of it? Have you ever felt like    a wrung out dish rag that's had all the water rung out of it? That describes my last day or two for sure and unfortunately describes the caregiver at the end of all too many days. We talk a lot about the numerous tasks we have to do everyday and how adding one more no matter how small thing can tip the whole boat. Sometimes it tips us physically other times it can tip us emotionally. Either one can be detrimental. But you know what? Because we are caregivers - we just keep going, and going, and going. My already busy days got messed up by a minor wrist injury that occurred during my taekwondo session last week. Why does it take an act of God and congress to make a doctor's appointment and grab a quick xray? A busy day gets more hurried finding sitters and making arrangements to take care of these little extras . Eventually, I sat down with a cup of coffee and a big "Whew!"

You Think He Knows?

As caregivers some days are better than others; as with life itself. Some days it's easy to find that groove and stay on schedule to get everything completed. And then there are days where it seems like everything just piles up on top of you. We carry a constant load; even on our best days - or our infrequent days out - it remains the same. Some days we can simply take in stride and then other days little things pile up. (The aide doesn't show up and you planned on running to the grocery store, to the bank to deposit a check for covering expenses, or to the pharmacy to fill prescriptions. Or you plan a day out and the person who is supposed to watch your loved one bails on you at the last minute.) Any little thing can topple us on any given day...and it can all add up to a much heavier load emotionally. But it's okay. We are like the energizer bunny..we just keep going and going and going...you do not get to stop being a caregiver. So how do we deal with the day to day

When We Are Tired...

Ever have one of those days where you just wake up tired? Caregivers don't always have the option of getting a day to "sleep in." And many of us don't get a full night's sleep... ever ! Top that off with all the transfers and physical moving we have to do and you can have a tired, sore body upon waking in the morning. And what do we do about it? We just go about another day! That's because there is no other option. Caregivers can't decide to just take Saturday off because it's the weekend. Many of us know nothing different about any day they are all the same to us! So what do you do when you are tired? I know, you suck it up and push through the day anyway! Our loved ones have to be cared for whether we are tired, weary, have a cold or virus - those things do not change their daily needs! So we keep going. There are different kinds of tired. Of course I am speaking here of being physically tired. We know that there is also en emotional tired, menta

Jeremiah 29:11...Really?

For much of my adult life I have quoted this scripture found in Jeremiah 29:11. You probably have heard it thousands of times yourself. He  has good thoughts about us, plans for a future and a hope. But sometimes  when tragic things happen we struggle to figure out what's so good about it. Caregiving can be so stressful on our entire being, physically, mentally, emotionally and even spiritually. It's really hard sometimes to see the good things that He has planned for us. And actually at times, it is impossible! But then you have to remember the audience. God was telling this to people who had been taken captive. They were basically overtaken by another king and their city was captured and destroyed. Yet here we have God telling them all about the good plans He has for them. Just interesting to me! The thing is for me that it is so easy to get my eyes on the immediate surroundings. I have all the responsibilities of caregiving, PLUS trying to figure out how to make mon

And Boy Do I Need the Help!

This morning I came across a scripture in Hebrews 13:6. It is actually a quote out of Psalms. It simply says The Lord is my helper I will no be afraid, what can man do to me. I didn't so much think about what effect other people may have on me as I really am worrying about that less and less. But I focused on the first part of the verse... the Lord is my helper.  I can think of a couple of other verses about that just off the top of my head. Psalm 121 says I will look to the Lord where my help comes from. And then in Psalm 30:10 is a plea for help Lord, be my helper! It's not that I am so Bible smart - it's just that I've needed lots of help! lol! I am to the place in this walk that I really do not know how to go on without His help. A caregiver runs on overload all the time. There isn't a "break" actually. Because if you're like me, even if you sit down to enjoy a cup of coffee you feel guilty because surely there's something you need to