Showing posts with label loneliness. Show all posts
Showing posts with label loneliness. Show all posts

Talking to Myself

Aunt Polly talking to chris - both of them in wheelchairs

 Do you ever catch yourself talking to yourself? I suppose we all do it to some degree. Since my son is nonverbal, I talk to him a LOT, constantly. I'm sure when he starts talking, the first thing he'll say is something about me shutting up. Lol. As I've grown accustomed to being the only voice in my apartment, I have caught myself talking to myself more often. Sometimes, I mutter something about my lack of intelligence under my breath. I may hear myself say, well, that was dumb. Oftentimes, I find that I tell myself how silly I am or how I did something wrong or offer myself some other negative input.

Not long ago, I decided to try to put an end to negative self-talk. I got a fresh notebook and began to write affirmations. So far, I've got about 21 affirmations for caregivers. I hope to turn it into an ebook and make it available in my bookstore soon. 

This morning, I heard myself again, so I decided to change the dialogue. As caregivers, we need to be our own best friends, not enemies. Too many of us walk a lonely path. It's too easy to fall into self-condemnation because, many times, there's no one there to lift us up. That's where the Word comes in!

Thankfully, I stopped myself from bludgeoning my soul with negative words this morning. I decided that if I'm going to talk to myself (LOL), it's going to be good. So, I pulled out my small collection of affirmations and began reminding myself that there are some things caregiving doesn't have the power to change. 

  • I'm still a child of God.
  • God continues to extend His peace to me.
  • The power of the cross did not expire when I became a caregiver.
  • God's grace is still sufficient for these circumstances.
  • I am a champion, and I've championed every day of my life to be here today.
  • God still protects my heart, and He remains the keeper of my soul.
If I am going to continue talking to myself  - it's got to be good! David encouraged himself in the Lord at one of the lowest points of his life. (1 Samuel 30:6-8) The KJV says that David was "greatly distressed" in that moment. But he turned the dialogue around and found a way to encourage himself when he had every right to be discouraged.

Today, I will protect my heart from negative self-talk. When negative thoughts or emotions begin to surface, I'll remind myself of who I am in Him, and how caregiving doesn't change our spiritual inheritance. My thoughts will be on how He continues to carry me, protect me, provide for me, and more. Isn't that how we make it through these difficult days? I will declare that I will continue to trust Him because He continues to care for me. So, I will trust Him with one more day. Will you join me?

Tidying Up the Cave

 

chris standing and looking at wiley post park

Do you ever just feel alone? Social isolation is real for caregivers. Now that we are mostly post-pandemic and things are going back to something like normal, it reminds us that our lives are anything but normal. I've started taking Chris out more - mostly for stimulation. He acts differently when we are out - I think he's bored with our little 2-bedroom apartment. Lol. And while getting out is so good for both of us, pushing his chair around social settings and outings just serves to remind me how different we are.

Most people have no idea what caregivers deal with on a daily basis. But what's worse is they don't want to get close enough to know. And having no one close is what seems to eat away at us many times. Now, I hope you have plenty of friends and family who are close and keep in touch with you. But sadly, too many caregivers feel stuck alone in their caves. That's where I have been this week. It's okay - I just have to adjust a little, so I don't get swept away in that emotional tide. So, I'm tidying up my cave.

Self-reflection and evaluation are good for us generally. So, I'm taking a look around my own cave to see what I want to keep and what doesn't belong. In the alone times, when we feel like we are tucked away in a cave from the norms of life, we'll find that He is there too. I love that God meets us where we are. 

Think about that a bit. He met Adam and Eve in the garden, even after they sinned. He met Abraham at his tent. God "found" Hagar not once but twice. He came to Moses on the back side of the wilderness and spoke to him from a burning bush. And get this - Moses had been out there for 40 years! Alone. But God came. So, while I am tidying up my cave and adjusting once again, I can trust that He will find me too. 

Whether I feel like my life is being lived by a beautiful stream of living water, or I feel like I'm just trying to survive on the back side of the wilderness, He knows. And He'll come anyway. No wilderness is too barren. No cave is too dark or deep. He can find us - and better yet - He can reach us.

Today, I'll remind myself that God is even present with me in my caregiver's cave. He has time to listen when human ears don't. He understands. He gets us. And He still whispers, My grace is enough. So, I'll trust His grace to carry me through one more day. Will you join me?



                                                                                                                                           


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Our Shield

 


As a new year unfolds, I take a soul inventory. I think about the things I  "invested" in last year. Maybe I invested some money, time, or just thought. My goal is to see what things merit continued investment. As a caregiver, you know how limited our time is each day, so we have to make the most of it. Some things can't be compromised like our own health (mental and physical), our jobs, other relationships (if we have any!), and our spiritual wellbeing. But some things can be cut for sure.

I was thinking along these lines in terms of how I care for Chris. What things do I need to make sure are in his days and which things are unnecessary? Right now, I want to focus on keeping him as comfortable as possible and as mobile as possible even with his limitations. I want to help him have more "experiences." He seems bored and unengaged here at home, but as soon as we get in the van - he pops his head up and looks around like crazy - more outings are on tap if it's just driving around in the country! (That is beneficial for us both, I'm sure!)

Most of all, though, I want him to feel genuinely loved. I have no way of knowing if he "misses" his friends or not. But I did show him a picture of his last girlfriend - he stared at the picture for a very long time and heaved the longest sigh I think I've ever heard. Can I shield him from the pain of wondering where she went? Can I protect him from the rejection of all his former friends? (I cannot and will not blame them - they had to move on with their lives, of course!) 

Then I realized I am not exactly his shield. I cannot shield him from rejection, loneliness, or any other emotion, especially since I really don't know what he feels. But that sense of desiring to protect and shield him is how God feels about us. He won't interfere. He won't always "fix" every situation to our satisfaction. But His heart longs for us to feel His love and care. He wants us to know that He's going to bat for us in ways we cannot see or may never know. 

David said in Psalm 3:3 - But You, O Lord, are a shield around me, My glory, and the One who lifts my head. (NASB) He's got us covered today - and every day.

Today, I will make an effort to realize His shield around my life and my heart. I'll meditate on His great love for me - far greater than the love we feel for our loved ones. I'll be thankful that He is near - because He wants to be - no one is demanding that He be near  - He chooses to come near us even when we feel most broken. I'll thank Him for His nearness and trust Him for one more day. Will you join me?



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When Normal is Not Normal

 This morning I was reading through the psalms called the Song of Ascents. These psalms include Psalm 120 through Psalm 134. As I understand them, they were sung as the journey to Zion or Jerusalem was made. They most likely sang them happily as they were excited about returning to the temple and the gathering of the people.

Psalm 133 talks about dwelling together as brethren. David penned that it was pleasant and good to be together. I am sure for the church crowd the next couple of weeks will be like that. As the coronavirus winds down and things return to some sort of normal, people are excitedly returning to their church services.

For the last few months, churches scrambled to have Sunday School, Bible Study, small groups, and services online. I had a slight sense of disappointment when it all started. Why? Because I'd been shut off for so long and none of this was available. But once they needed it - it became the new norm. Now that they won't need it again - things look likely to return back to their normal - and the normal for many caregivers - isolated again.

That normal hasn't worked for many caregivers for a long time, and now it may be the new normal once again. I feel for caregivers who cannot get out. Maybe we should start a Caregiver's Church - all virtual of course. At least we would be isolated together!

Social isolation is a real concern and many caregivers, elderly individuals, and those who are very ill suffer from it every day. That's the norm for too many people. And lately, I've seen more people who are alone even though married, or living in the same house with others. It's sad that we are not more together. However, I can say this - we are not alone. You are not alone. Even though we do not have the luxury of gathering with the brethren in unity and enjoying the pleasantness that provides, God is with us.

As we adjust back to a normal that is still not normal, may we remember that we aren't alone - and we've never been alone. Jesus said He would not ever leave us. He is with us always. My prayer today is for the caregivers and those they care for who are forced into living an isolated life. May we all recall that God is everpresent. He sees. He knows. He cares. (I wonder if He would do a virtual meeting! lol - you know I'm kidding!)

Today, I will keep my focus on the One who never leaves us. My meditations will be on His ever-abiding presence. He won't walk away - He won't abandon us to go back to "normal." I'll be thankful that He is always as near as our breath. I'll take a deep breath now and then to remind myself. I thank Him for being near. Will you join me?

Forgotten

Have you ever felt forgotten? I have. We can easily get sucked into the caregiver's fog and the rest of the world goes on without us. Today is my son's 35th birthday. These days are difficult. I opened up his facebook to read him his greetings only to be flooded with his friend's who have "gone on" with their lives, and they should.

They stopped visiting and calling long ago when he couldn't answer them. I don't blame them, they were all so young when he was injured. But it still hurts my heart that he is forgotten and left to just deal.

Then some caregivers have to deal with another side of being forgotten. It can yield a host of emotions from a totally different angle. That is when we care for loved ones with dementia or Alzheimer's. They forget us. My mom hasn't quite forgotten me yet, but most of the time it takes her a few minutes to figure out I'm not just someone who works there. Mid-conversation she'll look up and go, "OH! You're my daughter!" It's funny -but it's not.

It is emotional to be forgotten, no matter what the circumstances. We want to be remembered. It's not anyone's fault but it can still wear away at our emotions. I have to remind myself that there is One who has not forgotten. God never forgets. He knows what we walk through each day as caregivers. He understands all those seemingly little things that wear away at our minds and emotions.

Isaiah 49:15 asks, Can a woman forget her nursing child and have no compassion on the son of her womb? Even these may forget - but I will not forget you.

In Psalm 27:10, the psalmist says for my father and mother have forsaken me, but the Lord will take me up.

Caregiving can be a lonely walk. We can feel forgotten by men and God. We can't fix the human part -  but we can rejoice in God's part. He will not forget us - He will not forget our afflictions. Instead, He comes running to us to help us - and carry us when needed. Let's just acknowledge that He is here and encourage ourselves in the truth that He has not forgotten us.

Today, I will remind myself that He hasn't forgotten the hand life dealt me. I will meditate on His care of my heart and mind. I'll be thankful that He is the keeper of my soul. This will be my meditation today as I lean a little more into Him on this emotional day. Will you join me?


So Easily Forgotten

chris and mom
Yesterday, a post by a friend got me to thinking. (That's not unusual, and it's very easy to do.) They stated how they are dealing with a serious condition and how lonely they were feeling. As their condition had progressed and they were sent home from the hospital, visitors waned until they were left all alone to deal with their own emotions and thoughts. Not only do those in these situations have to sort through such a wide range of emotional changes, fears, thoughts, and decisions - on top of all that they are left to deal with the loneliness of being forgotten.

Those on the outside don't always see it that way. They would quickly say, Oh, you're not forgotten. I think of you all the time. I pray for you daily. But this doesn't erase or dilute the sinking alone-ness that the ill or caregivers deal with.

Reading her post reminded me of the day I was informed of my son's wreck. I had to fly from Chicago where I was living to Shreveport, LA where he had been medi-flighted earlier that day. When I finally got there after an all-day ordeal, the ICU waiting room was still full of people. For the three weeks he was in ICU there was a constant flow of people in and out. Once we moved into an isolation room on the regular floor, visitors became fewer. Then even less came when we finally transitioned to a nursing home 4 months later.

After we finally made it "home" (which had to be recreated since I'd been headed to the mission field) there was no one. As if we were fine now. Today, even when we are in the hospital there are few visitors if any at all. It's like everyone thinks you are okay now that the initial crisis or initial diagnosis is over. But that's not really the truth. Caregivers live in crisis mode, we just adjusted - nothing went away.

Since God knows everything, we can assume He knew we would have those times when we feel forgotten, forsaken and all alone. Those times just come as caregivers. It's easy to feel like we have the weight of the world on our shoulders because we sort of do - on behalf of another.

The scripture, When my father and mother forsake me, then the Lord will take care of me is nestled in an interesting passage. I'm going to assume for clarity's sake that he's speaking of when his parents pass away. He precedes the thought with do not hide Your face from me, do not turn Your servant away in anger, You have been my help. Do not leave me or forsake me. What a plea for God's ever abiding presence to remain. Then the acknowledgment that even if his parents forsake him, he knows God has him. He follows it all with teach me Your way O Lord.

I then turned my thoughts to this verse in Isaiah 49:15 God asks the prophet, Can a woman forget her nursing child and have no compassion on the son of her womb? The obvious answer is no. It's not natural to forget or neglect a child. But God follows the question, which He didn't ask just to receive information with Even these may forget, but I will not forget you. What a promise!!

We can feel so easily forgotten, forsaken and like we are having to forge through caregiving on our own. But He sees. He knows. He will never forget or forsake. He draws near and answers our unspoken prayers, fears, cares and cries with a simple I am here. 

Today, I will meditate on His nearness, whether I feel Him or not. I'll turn my thoughts away from the crowds who left to the One who stays. I'll be thankful for that and trust Him just for today. Will you join me?

Excitement By the Wayside

old chest of drawers
Yesterday while I was out on my run I found this discarded chest of drawers. It was outside the fence at an apartment complex, just next to a dumpster. I took a picture and sent it to my daughter and asked yeah or nay. We decided it was a yes, so I brought it home.

The more I thought about this discarded piece, the more excited I became. Lots of thoughts ran through my head about how to fix it up. I could strip it down and restain it, or paint it as it is. Finally, I decided to strip it down and paint it cream. The indentions and knobs will be green and then my daughter can do her fancy artwork and paint some vining leaves along the edges. In my head - it's beautiful! I can't wait!

Then, I started thinking about where I'm going to put this beautiful piece once I've redone it a bit. I got so excited thinking of all the places it will fit right in.

On a personal note, this morning I was down. I'm tired. No, exhausted. No, fatigued... which is worse? That's what I am. lol.I'm stressed out over numerous things... Depression was trying to swallow me up when I looked out my patio door this morning and saw this chest.

You know what? God is more excited about His plans for us than we can imagine.

When I look at this discarded chest, I don't see it as such. I see the potential. I see all the places I can use it - all the ways I can enjoy it. When He looks at us, He doesn't see a discarded piece either. He is so excited about having us in His house. Just like I am thinking of all the places I can put this chest and all the ways I can use it and all the ways I can enjoy it - that's how He thinks of us.

He is filled with excitement about what is to come even if we feel discarded by the wayside. He's making plans on where to put us in His house. And He can't wait to enjoy us.

Today, I'm going to turn my thoughts to how overjoyed He is when He looks at us. My meditations will be on His excitement about what is to come. I won't consider my short-sightedness. I'll think about His wonderful plans for me. My focus will not be on my feelings of loneliness, despair or exhaustion. Instead, I'll think on His hope and plans for a good future for me. And I'll just rest right there  - will you join me?

Forever is a Long Time

I've been lost in thought the last few weeks, and of course busy with the holidays. Now that Christmas is past, I've turned my thoughts toward a new year. This morning I woke up thinking about some of the rough times that occurred this year. I immediately thought - but the word of God stands forever. It doesn't change due to our circumstances.

I looked up the scripture reference and found it in 1 Peter. But he was simply quoting the verse from Isaiah 40. Verse 8 says this: the grass withers, the flower fades, but the word of our God stands forever.

Since I like to look at things in context, I backed up a bit and started reading the first verse of the chapter. It's about comfort and how He is bringing an end to our warfare. Quite honestly, I got nothing on that. Caregiving is still going on. It's still complicated. It's still hurtful. It's still discouraging. However, in verse 3 I found something I could meditate on.

Verse 3 of Isaiah 40 says this: A voice is calling, "Clear the way for the Lord in the wilderness; make smooth in the desert a highway for our God."  And that's when it hit me. If I am to clear the way for the Lord in the wilderness - He must be planning on visiting me in that wilderness. And if I am to make a smooth highway for God in the desert - He must be planning on visiting me in that desert.

He comes right into our wilderness and desert and brings His word - which never fades. Never fails. Never goes out of date. Never misses. But stands forever. Through time. Through deserts and wildernesses. His word endures forever. He is able to bring refreshing in the midst of the desert. He speaks in the wilderness.

Throughout the word we see Him taking the prophet in particular, to the wilderness. It was always for the purpose of speaking to them. When I used to go hiking (BC), I hiked through some wilderness areas. They aren't called a wilderness because nothing grows there - it's because of the absence of the human touch. When we are in the wilderness of life - it's just God and us on a personal level.

He doesn't wait until we are out of the wilderness or desert to speak. He speaks during that season. He brings comfort, refreshing our souls. He doesn't abandon us to the wilderness or desert. We just need to prepare our hearts for the entrance of His word. His word endures forever. The heat of the desert doesn't render it ineffective in our lives. The loneliness of the wilderness doesn't weaken its power in our lives. His word endures.

Today I am going to go back to the basics of the word of God. I'm going to rejoice that His word is not changed by my circumstances. My thoughts will be on how He sends His word - and it accomplishes what He says. Period. I'll meditate on the word today and let it minister to me in the wilderness. And I will trust Him for one more day.Will you join me?

Whether or Not You "Need" It

The last few days have been more hectic than usual around my house. I've had friends and family in and out to celebrate my birthday in one way or another. It's been a wonderful weekend and I'm all birthday-ed out. As we go into a new week, I think about how I'll deal with the alone-ness that is surely to creep back up on me.

I think one of the things we have to deal with as caregivers is being alone. As a single caregiver, I can spend a lot of time all alone and since my son is non-verbal I used to go days without even hearing other's voices except on TV.

Thankfully, my online jobs have changed that and I see and talk to people via video calls frequently. I have also had my health coaching classes I watch via video. It's certainly not as good as in-person, real discussions - but it's been better than nothing. Oddly enough, sometimes if I have a lot of outside contact now - I actually deal with over stimulation. I have to chuckle at that, but it's true. When you live in a caregiver's cave the world can be an overwhelming place.

The good thing is that I've had a wonderful few days filled with phone calls, visits and even an outing. But now we are back to the grind. I'm already feeling like I'm in back to the cave mode as I adjust to the many hours alone once again. It was a nice break.

So what's a caregiver to do as the solitude threatens to swallow them up? For me, I'll slide right back into that place I've found in Him. In Psalm 73:28, the psalmist said this But as for me, how good it is to be near God! I have made the sovereign Lord my shelter, and I will tell everyone about the wonderful things you do. (NLT)

The caregiving journey is similar to any other journey through time - we have the choice whether or not we make Him our shelter. On the rough days I am certainly glad to run to Him and hide from the harshness caregiving can dish out. On the nicer days, I still need the calm of being in His presence and letting Him shelter me.

Today I will be meditating on how He is the ever-present shelter. He protects my spirit and soul from being overcome by the complicated daily routine of caregiving, even when I'm overwhelmed. I will make Him my shelter today (and everyday), and any chance I get to tell someone about how His grace sustains me on this journey - is going to get an earful. But I am going to start with myself. Yes, today I will remind myself of how He has been carrying me for this 8 year (so far) journey. And I will tell myself how He will carry me for another day today. I will rest in him one more day - will you join me?

What is "Normal" Anyway?

One thing common to caregivers is the feeling of alone-ness. For me, it's somewhat different than just feeling lonely. It's more intense, more enduring and the social isolation can chip away until it feels like there's nothing left. This morning I opened my Bible to see what I could find that might fix the draining feelings of being alone, My mind went first to Hebrews 13:5 where the writer is reminding the readers that God promised to never leave or forsake us. But since I always like to read verses in their context, I backed up a few verses and my attention focused on verse 3.

Verse 3 instructs the reader to remember the prisoners, as though in prison with them;  and the verse ends up telling them the "why" behind the instruction -  you yourselves also are in the body. It struck me as rather odd that the writer of Hebrews was having to remind the body of Christ that they were to visit the prisoners. I found it odd because they were in the midst of great growth as far as the body of Christ was concerned. We might call it a revival today. And yet right in the middle of huge church growth the believers are having to be reminded to visit those in prison.

Then he worked his way down to verse 5 where he has to remind them to keep themselves free from greed and the love of money. He tells them to be content with what they have because He will never leave or forsake us. Odd things to be reminding believers of in the midst of a move of God, don't you think?

I would think prisoners could understand some of the caregiver's feelings of being alone. They are often forgotten and feel isolated I'm sure. And there's not much you can do about feeling alone, is there? Even if we can go do something normal we are so different and can feel like we stick out like a sore thumb. Our lives are just different, and there's not much we can do about it. We can't expect others to understand our situation either. And so here we sit alone. Again. And Again.

At times it an feel like no one is willing to come into our worlds; and it's not always possible for us to go into theirs. But God is not scared of our situation, caregiving and caregivers do not make Him want to stay away. We make Him want to draw close. He is near the brokenhearted. He wants to bind up the brokenhearted not throw them away or ignore them. Get this: He comes to us. And then He won't leave!

Today I will meditate on His enduring presence in my life - even when I feel like I'm a mess. In my alone-ness, I will remind myself that my life is not too scary for Him - He chooses to walk this out with me. When I feel alone today - I will turn my thoughts to this scripture and remind myself that He has already taken up residence in me - and He is not going to leave. And once again, I will rest in Him. Will you join me?

He Never Gives Up

As a caregiver, emotions can be all over the place. I find that one second I'm feeling okay about everything, I have a positive outlook and I am ready to take on the world. The next second for no apparent reason, I'm upset, mad at the world and ready to call it quits. On everything. One second I'm in love with God and so thankful that He continues to strengthen me to do what I need to do; the next second I'm angry with Him for letting this happen. This can all be in a matter of a few minutes, or seconds depending on the day.

But you know what? None of that scares God off. As to this date, He has never thrown up His hands, said I can't deal with this anymore and walked away. People have told me that "not everyone can handle a large dose of you." Seriously - I was told that, by my mentor. Add things like that to living a life so totally different from the rest of the world and it's easy to have an identity crisis.

One thing that caregivers have to deal with and face is the fact that not everyone can make the journey with us. And for me, my heart hurts for my son too. Why? Because friends can only be friends if nothing changes. On one hand - it's totally understandable - he can no longer "contribute" to the relationship, right? He can't laugh, play, tell jokes, make his deeply philosophical statements anymore. So there's nothing.

For the caregiver, our lives are different than everyone else's too. Maybe we can or can't freely do things the rest of the world does - and many walk away. Or my favorite - they watch our lives from a distance, totally disconnected.

On both counts there can be such a sense of abandonment and alone-ness that swallows us up whole. It's not an easy journey to make alone, or with someone else.

I say all this to share a scripture that came to mind this morning during my devotions. I actually was looking at Joshua 1:8 about being of good courage. I read it in my NASB, then looked it up in the Message. And here is what I found a few verses back:

I won't give up on you;
I won't leave you. (v.6)
Strength! Courage! 
Don't be timid; don't get discouraged.
God, your God is with you every step of the way. (v. 9)

While this whole passage spoke deeply to me this morning - that one phrase I won't give up on you is what really got my attention. No matter who observes from a distance, because they don't know what to do if they get closer; no matter who walks away from us or our situation - for whatever reason - God will not give up on us!  He is in it for the long haul; and that is exactly what I needed to hear this morning.

Today I'm going to meditate on His determination to be with me on this journey. I'll think about how He does not get too frustrated at me, never throws up His hands and never quits because I'm too much for Him to handle. My thoughts will be on how He is pleased with me, loves me and carries me even when I am being stubborn and resistant to His grace. He patiently waits for me to settle back down and come back to Him for peace. Today - I will be re-positioning myself in His lap; and settling in His embrace. Will you join me?

Not Invisible to God

How many times have we been places and it seems like we are invisible in the crowd? We actually went to a church one Sunday and not one person spoke to us, they all just walked right around us like we were not even there.

This past Sunday we visited a church and so many talked to both of us - they spoke to my son and get this - they even touched him. Unless you've been there you won't understand that. It can start to seem like we have leprosy or the plague. I actually fought back tears as I saw person after person touch his shoulder and speak directly to him even though he didn't seem to care. (I think he wanted to stay in bed!)

Many times people encourage us to "get out of the house" without realizing what it really costs. Most of the time we are totally alone in our struggle. Over time, I've gotten used to taking up a whole aisle in a store as I push Chris in front of me and pull the basket along behind. We are quite the sight. This is just one setting where we can feel like we stick out like a sore thumb. But add to that the fact that we are primarily politely ignored and it can feel like we are in an emotional vacuum. Standing in the middle of a crowd we seem invisible.

Being acknowledged this week as real people had me thinking along these lines. I started thinking about how He is intimately acquainted with all our ways; and that He saw us while we were forming in our mother's womb. He really does see us; even if we are invisible to the world. (Psalm 139)

My thoughts raced back to Hagar in Genesis 16 where Hagar had been forced out from Sarah after she got pregnant and cocky.The angel comes to her and tells her that the son in her womb is going to be a donkey of a man and that he's going to live a life at odds with basically everyone. But her response is perfect. To me the angel didn't say real "nice" stuff about Ishmael - which by the way means "God heard."

Even though the angel told her Ishmael is gonna be a wild one - Hagar says this: "You are a God who sees." She was seen she was not invisible to God. That's what she got out of this angelic encounter - that God could see her and where she was. That's so important for us caregivers I think - just to know that He has not abandoned us like so many - He is here, He knows, He hears, and He sees us.

Today I will meditate on the truth that God knows right where I am and He knows the true condition of my heart. He sees the situation and can see into my heart - He sees the confusion, the loneliness, the frustration...and it's okay. My thoughts will be on His ever abiding presence and His habitation in me today. Will you join me?

More Than What Meets the Eye

Yesterday I talked about the flowers along the trail and it made me want to get back out there and get a few pictures. So when the aide got here I went out just to enjoy running the trail and stopping to get pictures. I found this solitary flower along the way.

I think it grabbed my attention because just a while back there were rows and rows of flowers and this one was standing there all alone. My mind went off on its own rabbit trail when I saw it.

My first thought was how it was alone with no other flowers around it to add or detract from its beauty. But then I thought about all that it takes for this single plant to survive. Maybe that small cluster of flowers thinks its all alone in this small, but harsh wilderness; but there is a more than what meets the eye.

Many elements come together for this little flower. The leaves use the process of photosynthesis to keep the flower alive and the stem helps it stand tall so the sun and leaves can do their work. And there is an entire root system underground supporting this little guy and supplying it nutrients just so it can bloom, just so I can enjoy its beauty while I am out on a run! And besides all that there is the process of pollination going on to make sure this and other flowers have what is needed to survive. Nature has multiple systems going on that help keep this flower alive and beautiful.

Sometimes the caregiver can feel all alone and deserted. All the other flowers are enjoying each other's company in a different location but this one just stands here. Social isolation is one of the most crucial areas the caregiver has to deal with and it's real. We find our lives redefined by our social activities or the lack thereof and it can be a very lonely place.

When we look at this plant, we don't see the harsh, cold spring it endured. We don't see the dry spells it lived through during the hot summer. And we don't see how it lays over in the strong Oklahoma winds or how it endured the last tornado. And we can't see the entire system God has in place just to make it shine.

When God looks at us though - He knows. He knows about those long sleepless nights, the loneliness we endure, our fears, and all the other things that we fight day in and day out as we care for our loved ones. And He sees the beauty of the flower the troubles have produced. I couldn't see anything this flower endured - I only saw its beauty today. That's how He sees us. The flower has no idea how beautiful it is or that it made me stop and smile today - but it did.

My meditation today will be on how He gives us beauty for ashes. I'll turn my thoughts to how He loves us and how He sees beauty in us even when we feel like we are dry and living in the midst of a wilderness. I'll think about how His heart smiles when He looks at us...because he sees us blooming, beautiful and standing tall in faith. Will you join me?

Always on His Mind

It's easy to get lost in the shuffle of caregiving, isn't it? There are so many  tasks required to take care of someone else that we can forget to take care of ourselves. Aides, doctors, nurses and other professionals focus on our loved ones, and they should. But we can slowly slide back out of view and be nearly forgotten. It's easy to feel insignificant and small in the scheme of things.

There have been times since I became a caregiver that I would go days without talking to another person. Perhaps this is due to the age of technology. I might text with someone or "chat" via a social media outlet; but I've literally gone days without speaking to someone. Sometimes I miss the art of conversation. I want to hear someone laugh not just type "lol." We need to hear inflections in their voice and see facial expressions. When we don't, we can begin to feel so very alone and wonder if anyone cares, if anyone sees; or if anyone even thinks about us at all.

The good news is that we are always on His mind. As a matter of fact, God told Jeremiah that He knew him before he was formed in his mother's womb. In Jeremiah 1, the Lord spoke to the prophet and said Before I formed you in the womb, I knew you. And before you were born I consecrated you. God knows us intimately even when people don't take the time to get to know us well. He is aware of our darkest, loneliest moments and we are on His mind. We are not forgotten. The truth is that we don't even know what people may be praying for us or thinking about us at any given time. But we can rest assured that God has us on His mind all the time.

David said it this way in Psalm 139 - How precious are Your thoughts about me, O God! They are innumerable! I can't even count them; they outnumber the grains of sand! And when I wake up in the morning You are still with me! (NLT) 

Today I am thankful that He is always with me and I am always on His mind. My meditation today will be of His ever-abiding presence and His continuous thoughts of me! I will rejoice today that He does not forget me or my situation - but I am always on His mind. Will you join me?

Joseph's Journey

Yesterday I spent more time thinking about how adversity can open the door of hope. My thoughts led me to Joseph. God had given him dreams when he was a young boy and his family had made fun of him and judged him for it. I am sure he wondered some about those dreams as he was imprisoned for something he did not do.

Joseph's situation was dire. First of all, prisons back then were nothing like they are today. While our prisons are not pleasant, they are humane. I figure it had to be a very lonely place for Joseph. His family was far away and they weren't coming to look for him. Did he think back about those childhood dreams?  I wonder if he thought about his brothers and family while he was there. Did he ever think about what it would have been like if he hadn't been betrayed and sold by his brothers?

I also wonder if forgiveness and acceptance were daily choices for Joseph. In my situation, someone else caused the accident which injured my son and made me a caregiver. Sometimes I think about what my son would have been doing if the accident hadn't occurred. This can easily make forgiveness a daily choice. Just like Joseph most likely sat in a dark prison, caregiving can seem very dark and lonely at times. But it doesn't mean the dreams are dead.

God didn't say, I know I gave you dreams Joseph, I just forgot this other stuff was going to happen. He didn't erase the dreams because of life's adverse situations. Instead, the prison became its own door of hope. Of course, we read these chapters in a few minutes while Joseph lived out years of his life. In one chapter we see that he is brought out of prison and becomes a great leader. In another his brothers come seeking food and there is a great reunion. And then they lived happily ever after.

Joseph's dreams came true but not in the way he thought they would; and not in the time frame he would have probably preferred. His adversity became a door of hope for his whole family. And in the end, his dreams played out just like God had promised.

Caregiving can be a lonely place and it can seem like there is never a light in the end of the tunnel. But just like Joseph we have choices even in our situation. We can choose to forgive, and keep trusting God or we can quit. It's as simple as that. Maybe life isn't playing out like we thought, and maybe our dreams seem on hold. But we have a choice over our attitude and whether we will use adversity to find hope or use it as an excuse to become bitter. Me? I choose to look for the door of hope each day. Some days I have to look harder than others to find the positives, to find hope. But it's there if we look for it.

Today I will meditate on the hope that knowing Him brings. I will purposefully look for the positives today and rest in hope even in adversity. I will set my mind on things above and let God handle the big stuff. I will choose to forgive and I will keep dreaming even when it looks impossible. Will you join me?

Sandwiched by Faith

I love reading the Psalms and particularly enjoy the ones written by David. He seems so open and honest with his feelings and doesn't typically hold anything back. David doesn't worry about what everyone else might think about him, he just lays it all out there. Sometimes it can seem like he goes from one emotional extreme to another all in one psalm. That's something many caregivers are very familiar with. Each day can bring a wide range of emotional challenges and changes until we start to think we are losing it for sure. But we are in good company it seems.

In Psalm 31, David makes a lot of "I" statements. In the first few verses, David is declaring his trust in God. He says some things like:

I have taken refuge (in You)
I commit my spirit (into Your hands)
I trust in the Lord
I will rejoice and be glad in Your lovingkindness

These are some very powerful declarations and worth grabbing a hold of in our own lives. They are perspective changing declarations that can help us get our attitude in the right place when things have gone crazy in our lives. But at the same time David is making these powerful statements he lets loose with some honest and raw emotions. He says things in the next few verses like:

I am in distress
My life is spent in sorrow
My strength has failed
I have become a reproach
I am forgotten...
I am like a broken vessel

What caregiver has not gone through this range of emotions? On any given day we can feel like we just can't make it one more second, our strength is gone. And oh how familiar we can be with being forgotten. Loneliness can be one of our greatest battles along with depression. We can feel reproached, forgotten and alone...like we are broken and beyond repair. I'm so glad that David took the time to preserve this psalm because we can start to feel not-so-alone knowing that our emotions are not foreign - others have experienced them too and were not afraid to write about it.

In the church world these feelings are oftentimes forbidden. We are told it is because of "lack of faith" that we feel them. We are further reproached because we can't seem to get a handle  on things. So we stuff it all inside and become more recluse. But if David felt them and God approved that they be in our beloved scriptures - they must be a normal part of life. While we need to work through them like we see David do- we should not be shunned or condemned for feeling them.

We do see David get past his emotional hurdles. He begins to turn his focus off his situation and onto God. After he lays it all out there (which is really good to do sometimes) he starts to  encourage himself by saying things like:

I trust in You, O Lord
You are my God
I will call on You
Save me in Your lovingkindness
How great is Your goodness
You hide us in Your secret place

It's sort of funny that he sandwiches his emotions between his statements of faith. Seems like a really good place to put them to me! So it's okay to acknowledge how we really feel - actually it's healthy. Just remember to turn your thoughts back to God when you're done. We can pour our hearts out to God and be totally honest about things that are common to caregivers: anger, depression, hurt, and loneliness. And then declare who God is - whether we feel it or not!

David ends up speaking to the reader and reminding us to trust the Lord who preserves the faithful.  And he offers hope for those who hope in the Lord. 

Be strong and let your heart take courage
all you who hope in the Lord.

Today I will acknowledge the areas where I struggle. And then I will declare that He is my God and my hope is in Him. I will I let  my heart be encouraged and I will declare I trust in You O Lord, You are my God!  Will you join me?


Standing Alone?

All of our Bible heroes faced some type of adversity. The stories about how they overcame or endured that adversity is what makes them our hero, isn't it? Noah is among those listed in the Hall of Faith in Hebrews 11. The writer reminds us that was warned by God about things not yet seen. Noah took a huge leap of faith to obey God and began building the ark. He faced his own circumstances and lived in a generation of people who did not believe him. As far as we can tell no one helped him build the ark and no one stood with him. According to Genesis 6, Noah lived in a very wicked generation; he most likely lived in a very lonely place.

The caregiver can live in a lonely place too. In many ways, even if we are able to get out some there are times of isolation. When we do have the joy of getting out it can look so much different than others. For me, it means dealing with my son in his chair. In some settings, that can be isolating enough - no one knows what to do with us; so they do nothing. Yesterday, we walked down to a church in our neighborhood. Only one person greeted us - the speaker. We were sitting in the back to make room for his chair as I didn't want to block an aisle. People coming in the entrance had to walk right past us to get to the seating area. Not one of them spoke to us; not one of them greeted us. The children stared and adults looked away. In that moment I felt so isolated although I was in a crowd of "believers."

Noah faced a different type of isolation in that he was ridiculed for his beliefs. He lacked people to stand with him in his pursuit of God, godliness and righteousness. But he continued to stand.In many instances, the caregiver has to stand alone much like Noah. We must hold up a standard of righteousness even though no one stands with us; and we must do it alone. But verse 8 of chapter 6 it states: Noah found grace in the eyes of the Lord. Last week we talked some about how God's eye is on the righteous - He's watching over us. And like Noah, we have found grace in His eyes.

We are given the grace to make it one more day - whether we walk the caregiving journey alone or in a crowd. God's grace is sufficient to carry us through the toughest hours. Even those situations where no one knows quite what to do with us; His grace holds us secure in  Him.

Today I will meditate on His sustaining grace. I'll let Him worry about carrying me through today - and I won't work so hard. When I get tired, I will turn my thoughts to His mercy and grace and I will rest in Him once again. I will also meditate on the truth that I am accepted in the beloved and I won't look for man's approval. I'll just rest in His love, mercy and acceptance. Will you join me?

On Our Own?

Life can bring with it many afflictions - sometimes life just hurts. And it doesn't need any help from unexpected tragedies or sickness - it's just painful. It is really up to us how we choose to respond to pain life deals out. And don't you hate it when someone tells you it's a character building  experience? What experience is not a character builder? In each circumstance we face we are staring down a choice - how are we going to handle this?

Are we going to fall apart? Run crying to a friend? Give up and quit? Shut down our emotions? You may list anything else here that is your MO (Mode of Operation)! I'm not saying that these are right - or wrong - just typical responses when we don't know how to deal with situations. But no matter what - eventually we have to work through it and live. Caregivers are no different. We don't get a separate instruction manual than the rest of the world! Our choices are the same as everyone else's and our decisions just as individual as the next guy.

In Psalm 119:50 the psalmist states: This is my comfort in my affliction: for Your word has given me life.  I clung to this scripture years back as the very fact that His word still "quickens" me, still speaks to me, still brings healing, hope and peace even in my affliction - is a very comforting thing. Wouldn't it be awful if when we faced trials His word shut down and waited for us to come around? Thankfully it's not that way! His word is alive, the writer of Hebrews said.

Verse 52 says basically that the psalmist comforted himself by remembering God's word. Ever been there before? Caregiving can be a lonely place and we can live in social isolation. There may not be anyone nearby to help lift your hands and your heart during those dark nights of the soul that are unavoidable. But when we are on our own - we still have His word and we can comfort ourselves.

As a matter of fact, verse 55 gives us another clue to how rough it was for the psalmist. He states I remember Your name in the night. It's those dark, lonely times that can get us isn't it? That's when we feel  the most alone - but when we are "on our own" is when we have to dig down and let His word comfort us. That's right - we actually have to be willing and yielded to His word to receive His comfort.

Today I will meditate on being yielded to His word. I will turn my thoughts to Him and put my heart in His hands. I will let His word bring me comfort, peace direction and correction today. (Correction? who said anything about that?!)  Will you join me?

Not What it Looks Like

Sometimes the life of a caregiver can seem very barren. We can suffer from loneliness and social isolation even in this technologically "connected" world. Personally, I can go an entire day without holding a conversation with a real person even though I have plenty of interactions online. Online is certainly better than nothing but it does not replace actually hearing someone's voice, seeing their facial expressions or sharing laughter. It can seem very barren sometimes like we don't exist even in the world in which we live.

Isaiah 54 says Sing O barren, you who have not borne! Break froth into singing and cry aloud, you who have not labored with child! For more are the children of the desolate than the children of the married woman, says the Lord. God is able to take what looks and feels empty and make it full. He has sort of specialized in the field.

Think about two women: Sarah and Mary. Sarah was considered too old to be fruitful and Mary was in a way too young to be fruitful. God took these two extreme "barren" situations and made them fruitful. And He did it way beyond both of their imaginations. What looked fruitless to man God touched and made fruitful.

Even though our lives may look unfruitful and we can feel barren, God is behind the scenes doing something. We may not know what He is up to - but He's always doing something. Paul reminds us in 2 Corinthians 4 to keep our eyes on the things we cannot see - instead of the "lack" we can see.  Paul also reminds us in Ephesians 3:20 that God is able to do exceedingly abundantly above all we can imagine. (I have a pretty good imagination too!)

Today instead of concentrating on the lack, or the barrenness that can accompany a caregiver, I will meditate on what I can't see.  I will look harder and find what God is doing behind the scenes. I will think about what He is doing in me instead of around me. Are you up for the challenge?

Feeling Disconnected

Being a caregiver can often mean long hours shut in at home; this can leave you feeling disconnected from mainstream life. There's no doubt that we cannot enjoy some of the "normal" social activities of life but there are days when this can wear on you more than others. With very little social interaction there can come this "social isolation" that just leaves us feeling alone.

When I battle with this type of disconnection from life's normalities, I let my mind wander through some of my favorite Bible heroes who likely felt the same thing at times. I often think and speak of Joseph whose own brothers sold him into slavery to get rid of him - to try and crush his dreams. And then after he maintained his own integrity and held on to God through that type of struggle, he was unjustly imprisoned. Talk about the epitome of being socially isolated! Yet Joseph never gave up on God. He sat for long periods of time in prisons that are a far cry from the discomfort of prison today - and just held on. He refused to become disconnected from his source - God.

Today I am encouraging myself to hold on to Him even in this place free from social interactions. Like Joseph (most likely did..) I have questioned the dreams that I thought He had given me. And you know what? He's big enough to handle my questions. And even though I cannot see the future and I question if I even received dreams from God or not, I do not question His existence. I know Him too well to let Him go...and that keeps me connected to Him.

No matter if we are feeling lonely, disconnected or isolated like Joseph - there is a foundation of God that stands sure - He knows those that are His. (2 Tim. 2:19) Time is no problem for God and He knows we are His. Today I will meditate on this truth - that He knows me. And I will be content with that. Will you join me?

The Stare

  Do you ever just find yourself sitting and staring at the wall? It doesn't really happen too often because, quite frankly, who has tim...