Daily Devotions for Caregivers

Do you feel like you are in a constant state of change? Sometimes I am afraid to put my feet down so to speak, as everything is bound to be different before I get them settled. Today will be different too, as each day is unique and yet redundant at the same time. We do the same caregiving tasks over and over, day after day. Today, though I have the promise of an aide. And now that I have settled in to an aide-less routine, that means changing it all up again. It sounds silly and like it wouldn't matter, but it really does change a lot. For instance, I want to make sure our laundry is sorted out because when aides are not coming regularly I do some of it together. I also have to get Chris fed, bathed or up (depending on his sleeping schedule) before the aide comes - or figure out when it fits in. I pretty much have to change the way I do my mornings since I have word he's really going to come. (His boss told him if he didn't show up today, she'd restaff him. Why sh

Have you ever felt like no one really understands? It seems like it hurts most when it's people who are supposed to be helping. For example, last week my son was up for re-certification in the Advantage program. I was sitting at the table with his case manager and the nurse who will be overseeing his case. They are cutting the hours an aide will come to help because they just don't see what needs to be done.  They are cutting the aide from 17 hours to something like 6 or 8 per week. On one hand I could care less because I've found working with an aide to be more of a hassle than it's worth - unless you get a good one. I was dumbfounded at the ignorance of the situation and I sat and just listened to them talk back and forth about the things the aide is and is not allowed to do. While there are some limitations there are plenty of tasks they can help me with, if they want to. Most of them just want a paycheck. I felt so unimportant and defenseless and very  unsure of w

Do you ever wonder why life can't be easier? Why can't things go smoother? Life can get so hectic - and do so suddenly with no warning at all. I'm sure you've had those days. You know - things are rocking along pretty good and Bam! Out of nowhere it's helter-skelter. Now it's anything but smooth sailing. And since the caregiver lives on the edge - it really doesn't take much, does it? What do you do when life makes a sudden change? How do you handle it when the day is going along smoothly and the aide doesn't show, you realize you're out of wipes (that's serious y'all!) or you didn't get the right formula? Usually, the aide shows up fine as long as you don't plan anything, right? But decide you're going to run to the store for some necessities like coffee or toilet paper and she won't show up - guaranteed. We really do have to just laugh about it (later though because when it happens it's usually traumatic!). Usually,

Do you ever feel like others don't have the time to deal with you? I know the world is a busy place and it is no different for the caregiver; but wouldn't it be nice if someone had a few minutes to share a cup of coffee with you?  Aides do not come even though they are scheduled because they had something more important  to do. They do not say it that way - but that's the raw truth. And getting someone to sit for a couple hours here and there (even for pay) can be difficult because it seems that everyone already has plans. Many times it adds to the solitude of the cave - that feeling that you can't get out - And yet at the same time it's easier to just adjust to being in the cave than it is to try to find someone to help...because it seems no one has time.   There are days where it seems like we ourselves do not have time to turn around twice. The chores and tasks associated with caregiving can easily suck a day away. We must feed, bathe, and transfer our loved