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Showing posts with the label God is faithful

Beyond Words

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  Sometimes, for caregivers, there are no words to express our emotions. We often deal with living grief over a loved one who is still alive, but they are not who they used to be. Personally, I deal with this with my son who is certainly not the person he was before the wreck, he can't do the things he did. Often I avoid Facebook as I see his friends getting married, having kids, enjoying life, and music. It can spark great grief for me as I am thrilled he is now turning his head from the left to right in response to activities. I'm happy when he takes a step when I used to watch him in the marching band. He is gone - but he's still alive. On the other hand, my mom is in some stage of dementia. She usually still remembers us, but she doesn't recall our lives at all. She doesn't remember the ministry trips we took, the times we played music together, and all the things we shared. She has lost the ability to hold a simple conversation although she can answer some simp...

Streams in the Desert

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Yesterday, I paid for a sitter so I could go on a day hike. I chose to go to the Wichita Mountain Wildlife Refuge. It's a vast place with many areas I have not yet covered even though I've been there exploring many times. I always learn from nature, maybe that's why I am so drawn to keep going back. Several things stood out to me but one thing I kept noticing was beautiful little flowers growing along the rocky terrain.  Over the miles, I kept seeing these colorful patches of flowers in such unlikely places. I wondered how they grew in such adverse conditions. But all it took was a little bit of soil and a few drops of rain here and there to make a desert, wilderness area pop with beauty. Of course, I drew the parallel to our lives as caregivers. We live in what can be very rocky circumstances as caregivers. On one hand, each day is the same over and over. Yet there are so many unexpected things that become the norm too. I know you understand that! We never know when an aid...

What's the Difference?

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It seems kind of funny for a caregiver to be exploring this being quiet  thing since our lives are pretty much anything but  that, doesn't it? I mean, come on, most of us get up before the sun to get our daily stuff started and we retire long after the rest of the world is down for the night. There's just a lot to do, period. Add to the "regular" stuff the fact that this is the last week of the month and all the "regular" people like nurses and case managers want to get their visits in all at the same time - and you've got anything but  a quiet week! How in the world is the caregiver supposed to calm their souls  when the world around them is constantly in a topsy turvy  state? Some days I'd give a million bucks for 5 seconds of sit-down-and-be-quiet-ness. Wouldn't you? I do think it is entirely possible to quiet our souls  while the world around us, in our own homes nonetheless, is crazed and spiraling. There's a place we can hide in H...

Patient and Passionate

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I like organization. But I'm beginning to think caregiving and organization are distinctly opposed to one another. No matter how much I try to organize or make a schedule to try and keep up - the further behind it seems I get. Playing "catch-up" is a daily game - and I keep losing, or so it seems. Don't get me wrong - I am SO thankful for my jobs and being able to take care of my son. It's just that it seems like I put off the thing I feel is the most important to me. God. It's not like I don't want to spend time with Him, it's just that when I get up at 5 each morning I make my coffee (real priorities here!) and bolus and change Chris. By the time I get set down to drink my first cup, there's tons of things in the forefront of my mind needing to be done, NOW! And so it begins - the circus I call a morning. The aide comes, there's errands to run. Every time I turn around it's time to feed Chris, which means pureeing another meal; or c...

Still Can't See!

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I've been thinking about Joseph a lot over the last few weeks. He was another Bible hero who spent some time not being able to see just what God was doing in his life. It had to be so hurtful and difficult to deal with not only the rejection by his brothers, but being sold into slavery. If all that weren't bad enough he ends up going to prison for something he didn't do. Honestly, I'm sure somewhere along the way I might have quit. While Joseph's intense struggle isn't described in scripture, we can imagine that he endured heart wrenching agony. And it went on for years. We read the story of Joseph in a matter of a few minutes sometimes without realizing the impact of the number of years that  passed. He sat in prison. And sat. Then sat. And then sat some more. And the prison he was in was not anything like our prisons today. As harsh of an environment as today's prison are they would be plush and luxurious by comparison. I have to wonder what he tho...