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Showing posts with the label daily tasks

Who's Got Your Back?

Have you ever felt like no one really understands? It seems like it hurts most when it's people who are supposed to be helping. For example, last week my son was up for re-certification in the Advantage program. I was sitting at the table with his case manager and the nurse who will be overseeing his case. They are cutting the hours an aide will come to help because they just don't see what needs to be done.  They are cutting the aide from 17 hours to something like 6 or 8 per week. On one hand I could care less because I've found working with an aide to be more of a hassle than it's worth - unless you get a good one. I was dumbfounded at the ignorance of the situation and I sat and just listened to them talk back and forth about the things the aide is and is not allowed to do. While there are some limitations there are plenty of tasks they can help me with, if they want to. Most of them just want a paycheck. I felt so unimportant and defenseless and very  unsure of w...

She Does What?

This morning I was scrolling down facebook to see what happened in my world while I was asleep and saw a post from Jillian Michaels. She was out catching the premiere of a new movie. I always associate her with fitness and workouts and somehow in my mind she should not be at a movie. She should be somewhere kicking someone into gear and motivating them to get in shape! lol. When I see Jillian Michaels I always think of fitness or working out - her watching a movie did not fit with the image I had in my mind. I wonder what people think when they think of caregivers. Do they think that that is all there is to our lives? While caregiving for many of us is indeed a 24/7 job, we still have to do our day-to-day tasks just like everybody else - on top of taking care of another person's needs. Caregiving is a difficult and time consuming position, but we still like the things we used to  do before like reading, hiking, running, watching a movie or having dinner with friends. But in many ...