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Showing posts with the label hospital stays

Refocusing

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 Is it just me or does it seem like each day gives way to millions of thoughts? They aren't all bad - and that's a good thing, right? It just seems sometimes that there are so many things that happen over the course of 24 hours. My mind sometimes races from one thought to the next. Sometimes, it's dangerous. lol - Sometimes, it's calming.  Last night, for instance, my son had a mild asthma attack. My mind and emotions went a million directions all at one time as I packed Chris' tube feeding supplies and my coffee pot with coffee pods. (The two essentials for hospital stays!) He was able to kick it, and soon settled into a good night's sleep.  I wish I could say that I'm in a place where those seemingly little things don't trip me up or send me off the emotional cliff. Maybe you've got it all together, but I'll gladly admit my lack. I wish I had it all together - whatever "it" is. But I do not. What I do know, though, is that each time m...

No Sleeping on the Job!

Sometimes the caregiver is left floundering on their own and sometimes there are organizations or individuals who help them out. There are programs to help pay for aides and supplies that are very beneficial for helping us stay sane. When I have an aide it means I get out a little more to run, or run errands and that is good. There are nurses who come periodically to check my son out and see that he is healthy and being taken care of. Family members often sit with my son so that I can do things I enjoy or escape for a weekend. I am very appreciative of this "village" that helps me out from time to time. However, I learned a long time back when this caregiving journey first began that my help comes from the Lord.  I had no idea of the the types of situations and decisions I would be facing on a daily basis back then, but I knew if I was going to survive I would have to look at Him for my help. I began to meditate on Psalm 121 while we were still living in the ICU waiting roo...

Who Cares?

It can be easy for caregivers to think that no one cares. But in most instances, we know people do - they just do not know how to express it or show it. I remember when my son was first injured and how many caring people came through the SICU to see him. After 3 weeks we moved to an isolation room on a regular floor and still there were quite a few visitors that came through. As the hospital stay alone turned into a 4 month journey I knew that visitors would continue to taper off. I didn't take it personal; it's just the way it is. Sometimes this can feel like people do not care. But that's not really true it's just that they do not know what to do with the situation over the long haul. Very few people have what it takes to continue walking an extended journey with you. But that does not mean that their intentions are bad. Folks just don't know what to do when the battle continues on. A lot of people are very good at being there for someone who is in "fix it ...