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Showing posts with the label difficulties

Short Days

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  Are the days getting shorter? They must be because I keep running out of time and energy before I'm done! Can you relate? When Chris came home from the hospital a couple of weeks ago, he had to have IV antibiotics three times a day for 10 days. Man, did that stretch my scheduling and organizing abilities! lol But we got it done and yesterday, the nurse removed the med line. I was so relieved! (I'm sure he was too!) I didn't realize how much hooking up an IV and removing it three times a day would take out of me. Sounds a little bit silly to those who don't understand, right? As caregivers, our days (and nights) are already packed full of tasks and responsibilities. Adding one more might not seem like much, but it is when you are already on overload. (I know you understand!) Most nights I go to bed feeling like I failed because there is still so much left to do. I've had to change the way I talk to myself though. Instead of beating myself up, I started saying- You ...

Emotional Roller Coaster Rides

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  This morning, I was talking to a friend about emotional health. We were rolling lots of thoughts and strategies around. The topic came up because during my Facebook live devotions (video below), I mentioned I wasn't bragging, but I can go from the apex of wonderful to the valley of despair in as fast las two seconds. I think all caregivers may have those moments. We talk a lot about how difficult caregiving can be logistically and physically. But we often forget how often we deal with emotional roller coasters. In a given day, hour, or minute even, we can swing from elation to weeping, from crying to joy. Back and forth it goes all day some days. If we are lucky, we land somewhere on solid ground in between. Over the years, I've learned some personal strategies that have started to help me balance emotions out more quickly so that I don't end up in the valley of weeping all day long. Managing my day as much as possible helps me keep some of the in check. Identifying the b...

Invisible

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  Do you ever feel invisible as a caregiver? Pain is invisible. Grief is invisible. Our tears are usually invisible to others too. I guess about the only time I don't feel as invisible is when I go to the store - then I feel like we stick out like a sore thumb. I push Chris in front and pull a cart behind like a slow-moving train through the store. Can't miss that now, can we? lol Sometimes, people can't and don't want to imagine our pain. Maybe they can't fathom our living grief. Maybe for some, seeing us reminds them of their own pain or grief they don't know how to deal with. Since I am the aide now, I take Chris with me everywhere - even to my doctor's appointments. They "accommodate" him - but they do not speak to him - or ask about him in any way. Does that strike you as strange? Maybe it feels odd since my whole life is wrapped up in taking care of him. Idk. But every once in a while, someone breaks from this silent norm and steps out of all...

All In a Day's Work

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 Caregivers are an amazing breed. That's been my experience anyway, with all the caregivers I've been privileged to meet. Daily tasks are quite difficult for most - no matter what level of caregiver you feel you are. Even long-distance caregiving has it's set of difficulties. Making choices for another person just isn't easy. Some days are so difficult just trying to decide whether Chris (my son with a TBI) would prefer to sit in his wheelchair, the recliner, or the rocker - can be so hard to decide. For the most part, we just take those difficulties in stride. It's all in a day's work,  isn't it? Then there are days like my Tuesday this week. You know those days - something gets chunked in the way to change up our already complex navigations. For me, this week, it was a major asthma attack. On top of that, I actually had plans for Tuesday night. I was supposed to teach a Bible Study class at the church we've started attending. Being type A - having ...

Abraham's Faith

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So this morning I'm reading through Romans 4 about Abraham and his faith. In the 20th verse, it says his faith never wavered. Let me explain first thing - I'm no Abraham.  I am honest and open about the fact my faith has  wavered; and the first to admit I've totally lost it a few times along the way. It makes it difficult to face challenges in life when we are indirectly (and sometimes directly) taught that circumstances occur because we don't  have faith. Faith-ers have this distorted view that says if you believe hard enough and are good enough at it nothing bad will ever happen to you or your family. That just simply doesn't bear out in scriptures, as we've discussed here before. If faith prevents difficult situations there's be no faith building stories like David and Goliath, Moses and the Red Sea, Joseph in prison, Paul and Silas in Prison or Jesus on the cross. That's just to name a few. It was in  the struggle we see their faith, not the fa...

Philippians 4:13

If you've been exposed to church circles for any amount of time perhaps you've heard this scripture thrown around a lot. We see it on facebook posts and on various sites. WE tend to use it to talk ourselves through to victory - and its application is broad. I am not sure we understand it in context though.  A quick look at the preceding verses lets us see some of the apostle Paul's heart. He states in these verses that he had learned to be content  in whatever circumstances he found himself in. Although he gives very little detail, he says that whether he had plenty or had little it was enough. He also says that he was content whether his stomach was empty or full... and that these extremes were manageable because Christ in him gave him strength to face each situation.  The context of Phil. 4:13 is not just taking a dive off the positive side of things and trying to make every thing into a facade of ease. But rather it is saying that there's no room to stress; if th...