Daily Devotions for Caregivers

 Do you ever catch yourself talking to yourself? I suppose we all do it to some degree. Since my son is nonverbal, I talk to him a LOT, constantly. I'm sure when he starts talking, the first thing he'll say is something about me shutting up. Lol. As I've grown accustomed to being the only voice in my apartment, I have caught myself talking to myself more often. Sometimes, I mutter something about my lack of intelligence under my breath. I may hear myself say, well, that was dumb. Oftentimes, I find that I tell myself how silly I am or how I did something wrong or offer myself some other negative input. Not long ago, I decided to try to put an end to negative self-talk. I got a fresh notebook and began to write affirmations. So far, I've got about 21 affirmations for caregivers. I hope to turn it into an ebook and make it available in my bookstore  soon.  This morning, I heard myself again, so I decided to change the dialogue. As caregivers, we need to be our own best fr...

  Do you ever just feel alone? Social isolation is real for caregivers. Now that we are mostly post-pandemic and things are going back to something like normal, it reminds us that our lives are anything but normal. I've started taking Chris out more - mostly for stimulation. He acts differently when we are out - I think he's bored with our little 2-bedroom apartment. Lol. And while getting out is so good for both of us, pushing his chair around social settings and outings just serves to remind me how different we are. Most people have no idea what caregivers deal with on a daily basis. But what's worse is they don't want to get close enough to know. And having no one close is what seems to eat away at us many times. Now, I hope you have plenty of friends and family who are close and keep in touch with you. But sadly, too many caregivers feel stuck alone in their caves. That's where I have been this week. It's okay - I just have to adjust a little, so I don't...

Do you ever just assess your life? As caregivers, we can have such a sense of loss. Caregiving puts so many demands on us. Many have to change occupations or quit their jobs altogether to have the time to invest in caring for a loved one. We may grieve the loss of a lifestyle we enjoyed before caregiving. Sometimes, we feel the loss of freedom as we may not be able to just jump and run when we want to or hang out with friends freely. We may live with grief that stems from losing a person - while they are still here. This is the case with my son and with caregivers of loved ones with dementia. The sense of loss and feelings of grief can come from so many different areas in our lives, that they are often overlooked, or at best difficult to identify. After I did this morning's Facebook Live devotional "Peace Out!", I took my own personal assessment. (See video below!) I walked through my apartment and every few steps, I told myself "God is right here!" I'd take...

  It's so easy to feel insignificant, ignored, and shoved to the side of life. People don't always mean to be mean, but they often don't know what to do with "us." lol. Simple things become complicated. Like, which Sunday School class do I belong in? Should I go with Chris? Leave him alone in a class and try to find my own? Or do I even try to go since it'll be such a mess? Let's not even talk about trying to find a way to use a public restroom. Do I take my adult son with me to the women's or do I go to the men's? (That's a no.) For caregivers, simple daily tasks can become quite difficult. Others just don't understand and so it can be easy to begin to feel less-than and insignificant. These are some of the thoughts I let my mind wander down this morning after reading John 4 again. This chapter contains the familiar story of the Woman at the Well. We don't even know her name. We know very little about her past, except that she's be...

  This morning during my private devotions, I started studying 1 John to prepare for an upcoming live Zoom Bible study I'm hosting. (Let me know if you'd like a link to join!) I John is very connected to the gospel of John and I found myself reading the first chapter of this gospel over and over. It amazes me and pretty much blows my mind how God has orchestrated all this. Before He said, "Let there be light" He had already done everything. He'd already prepared the way for us to get back to Him, even before the fall happened in time. Jesus was crucified and raised to sit on the throne. Our sins were already forgiven before we ever even committed them. (We just need to accept His forgiveness.)  So I'm reading through John chapter one with my mouth wide open in awe! My mind is running around crazy just thinking about all the wonderous works of God. The Word of God - His very breath become flesh and walked among man for a brief 33 years. In verse 14, it says He ...

  Do you ever just get too tired? Do you ever want to quit? Do you ever sit down for a whole 30 seconds and think about not getting back up? Ever? Who am I kidding? Sometimes I forget who I'm talking to. Lol. As caregivers, burnout is real. But the problem for most of us, is we don't get a break even in the midst of burnout, right? Let's face it. If we had a bit more help we might  avoid burnout - but once we feel that we are in a season of burnout and stressed out - there's still no help. It's easy to feel stuck. I try to do a few things to avoid burnout and to cope. Someone told me one time that I had learned how to live even in the midst of the situation. I think she was right. I have learned to slow down and enjoy an afternoon cup of tea (or coffee!!!). I try to get outside as much as possible because sunshine and fresh air are essential to a healthy life. Some days that means sitting on the patio so I can see Chris in the recliner through the window. But I'...

  I have recently discovered that I say a lot of things and expect people to read between the lines.  You may do it too whether you realize it or not.  As caregivers, it can be difficult to find the words for our emotions. We can't always adequately describe our situations with words. And even if we can, there are many things we deal with daily that are taboo topics. Or, of course, we don't deal with some topics as we want our loved ones to have some dignity. So we speak in riddles and only those who really know - fully understand. What we really mean. I was thinking about this a lot yesterday and here are a few examples that I came up with, maybe you've got a few of your own. I need to get out more. - Really means I am so lonely. Wanna come over for a cup of coffee? - Means I am at the end of my rope. I feel neglected, alone, and I need a friend. I am eating myself out of house and home lol - Really means - I'm experiencing emotional eating and I don't know how to ...

 The social isolation of caregiving is one of the hardest parts for many of us. It's interesting now that during the pandemic so much attention is being given to being isolated and how it wears on mental health. Yet for many caregivers, it's been the norm for a long time. Yet when the rest of the world has to face the world we've lived in for decades, they fall apart. If it wasn't so serious, it would be humorous.  One of the things that continue to bring me consolation is realizing that God is in this mess with me. I'm not facing it alone, even when I feel like I am. So, this morning during my devotions, I found myself reading in Isaiah 43. In verse 19, God says through Isaiah, I will even make a road in the wilderness and rivers in the desert.  Sometimes, caregiving can feel dry and bare like the desert. Other times, like the wilderness there is plenty of growth, but no people to enjoy it with. A road in the wilderness would make way for many more people to traver...

As I was taking a card to my aunt out to the mailbox this morning, I thought of all that was on my plate for just today. Taking care of Chris is more stressful right now as he has some type of upper respiratory situation going on. Now an x-ray has been ordered for today adding one more thing to my plate. That's okay as my primary responsibility is to care for him. Of course, at the same time, work started coming in (which is a good thing - you know?) and the day got complicated quickly.  All this and more was weighing on my heart and mind as I made the short trip to the mailbox and back. I don't think I've felt this alone in a long time. I'm weary. I'm tired. And yes, those are two different things. I'm stressed - On top of all that are the growing fears of aging. How long will I be able to continue caring for him? I let out a huge sigh, and thought, I am okay today. I can do today... And for today - that is enough. The caregiver's journey is not an easy one...

 This morning I was reading through the psalms called the Song of Ascents.  These psalms include Psalm 120 through Psalm 134. As I understand them, they were sung as the journey to Zion or Jerusalem was made. They most likely sang them happily as they were excited about returning to the temple and the gathering of the people. Psalm 133 talks about dwelling together as brethren. David penned that it was pleasant and good to be together. I am sure for the church crowd the next couple of weeks will be like that. As the coronavirus winds down and things return to some sort of normal, people are excitedly returning to their church services. For the last few months, churches scrambled to have Sunday School, Bible Study, small groups, and services online. I had a slight sense of disappointment when it all started. Why? Because I'd been shut off for so long and none of this was available. But once they needed it - it became the new norm. Now that they won't need it again - thing...

One of my friends just had a brand new beautiful baby girl. Celebrating new births always makes me think of Psalm 139. It’s definitely one of my most marked-up psalms! I also had Jeremiah 1:5 running through my head. Before I formed you in the womb, I knew you. I read back through Psalm 139 again, it’s got so many encouraging spots in it if you haven’t read it in a while, it’s a great read for today! This whole psalm is great, but a couple of things stuck out to me this morning in particular. In the first verse, David says O Lord, You have searched me and known me   - and I added a note in my margin – “And it’s okay!” It’s okay that He knows our thoughts, our words before we speak them, when we get up and when we get down. I’m quite alright with Him seeing and knowing every part about me and my days. You see, He sees those parts no one else sees. As a personal example, I maintain a FB page for my son’s progress. I post to it every day or so as he does something notabl...

As caregivers, we can often be surrounded by a sea of people and still feel all alone. Our day to days are so different, we can't engage in some conversations. Long vacations, weeks off to do nothing, or retirement are out of our league. Others can't understand caregiving talk either - if they haven't walked it. It can be difficult to know where to put the emotions associated with such social isolation and alone-ness. Late last week I was working through these kinds of feelings and emotions when I thought about the scripture that says, David encouraged himself in the Lord. I found it in 1 Samuel 30:6. As I was meditating on it a thought occurred to me.  David was alone. Perhaps he was in the most alone spot in his life.  The Philistines had rejected his offer to join their efforts. He returned "home" to Ziklag to find it ransacked and all his goods, women, children and other stuff - gone! It says he was greatly distressed since all the people were talking of s...

Have you ever felt forgotten? I have. We can easily get sucked into the caregiver's fog and the rest of the world goes on without us. Today is my son's 35th birthday. These days are difficult. I opened up his facebook to read him his greetings only to be flooded with his friend's who have "gone on" with their lives, and they should. They stopped visiting and calling long ago when he couldn't answer them. I don't blame them, they were all so young when he was injured. But it still hurts my heart that he is forgotten and left to just deal. Then some caregivers have to deal with another side of being forgotten. It can yield a host of emotions from a totally different angle. That is when we care for loved ones with dementia or Alzheimer's. They forget us. My mom hasn't quite forgotten me yet, but most of the time it takes her a few minutes to figure out I'm not just someone who works there. Mid-conversation she'll look up and go, "OH...

Yesterday, a post by a friend got me to thinking. (That's not unusual, and it's very easy to do.) They stated how they are dealing with a serious condition and how lonely they were feeling. As their condition had progressed and they were sent home from the hospital, visitors waned until they were left all alone to deal with their own emotions and thoughts. Not only do those in these situations have to sort through such a wide range of emotional changes, fears, thoughts, and decisions - on top of all that they are left to deal with the loneliness of being forgotten. Those on the outside don't always see it that way. They would quickly say, Oh, you're not  forgotten. I think  of you all the time. I pray  for you daily. But this doesn't erase or dilute the sinking alone-ness that the ill or caregivers deal with. Reading her post reminded me of the day I was informed of my son's wreck. I had to fly from Chicago where I was living to Shreveport, LA where he had...

Yesterday I celebrated having Chris home for 8 years. While I celebrated I thought a lot about all the different things we've been through over this last decade. I didn't express it, but it took a lot just to get to that point 8 years ago. I'd gotten rid of almost everything and was headed to the mission field when I got the call he'd been in a wreck. There were times I felt like such a failure because I couldn't just "take him home." I'd been living with families for several years focusing on ministry. I felt like I had failed him by not providing that even though he and my daughter were both adults. When Chris got accepted into rehab in OKC, they wouldn't take him until I established a home so he'd have a place to go on discharge. When we moved him from New Orleans to Oklahoma, I started staying with some of my daughter's friends who generously gave me a place to stay while he was in the nursing home. Now it was time to get a place ...

The last few weeks I have felt the Lord speaking to me about getting up-close-and-personal with Him. I love the internet, it's been my lifeline. But I really want to know Him more, uninterrupted by the flow of the many voices that come across social media outlets. They are wonderful, don't get me wrong. But I want to step back for a minute or two and hear just from Him. This morning during my quiet time I had a verse come up in my heart. I thought it said, my heart follows hard after thee.  Yeah, I was raised on the old King James Version and so sometimes they still come up that way. lol When I looked it up, it actually says, My soul follows hard after thee.  It's Psalm 63:8. I decided to look it up in a couple of other versions too. The NASB translated this verse as my soul clings to You.  But then the NLT says it like I follow close behind You.  And my favorite is the Amplified which says My whole being follows hard after You and clings closely to You. My p...

Good Monday morning world! It's been a crazy place around here of late. I don't really know why I say that as caregiving makes for all days to be crazy! You know, just about the time you think you're holding your own, got the new norms all figured out and have settled in for the duration - everything changes. How does that happen? Why does that happen? For the first time since my son's accident I somehow got signed up for home health. We only get so many days a year since there's no actual insurance involved and I usually save them for "just in case" situations. I've only had two instances where I felt their services were necessary. Well, when the doc was here last Monday - she decided we should let home health come change his feeding tube out. Evidently she signed us up. It's already taking quite the adjustment. It may seem minor to those who are not caregivers - but even the things that seem the smallest and the simplest can turn everyt...

The last few days have been more hectic than usual around my house. I've had friends and family in and out to celebrate my birthday in one way or another. It's been a wonderful weekend and I'm all birthday-ed out. As we go into a new week, I think about how I'll deal with the alone-ness that is surely to creep back up on me. I think one of the things we have to deal with as caregivers is being alone. As a single caregiver, I can spend a lot of time all alone and since my son is non-verbal I used to go days without even hearing other's voices except on TV. Thankfully, my online jobs have changed that and I see and talk to people via video calls frequently. I have also had my health coaching classes I watch via video. It's certainly not as good as in-person, real discussions - but it's been better than nothing. Oddly enough, sometimes if I have a lot of outside  contact now - I actually deal with over stimulation. I have to chuckle at that, but it's ...

As a caregiver, emotions can be all over the place. I find that one second I'm feeling okay about everything, I have a positive outlook and I am ready to take on the world. The next second for no apparent reason, I'm upset, mad at the world and ready to call it quits. On everything. One second I'm in love with God and so thankful that He continues to strengthen me to do what I need to do; the next second I'm angry with Him for letting this happen. This can all be in a matter of a few minutes, or seconds depending on the day. But you know what? None of that scares God off. As to this date, He has never thrown up His hands, said I can't deal with this anymore  and walked away. People have told me that "not everyone can handle a large dose of you." Seriously - I was told that, by my mentor. Add things like that to living a life so totally different from the rest of the world  and it's easy to have an identity crisis. One thing that caregivers have t...

All of our Bible heroes faced some type of adversity. The stories about how they overcame or endured that adversity is what makes them our hero, isn't it? Noah is among those listed in the Hall of Faith in Hebrews 11. The writer reminds us that was warned by God about things not yet seen.  Noah took a huge leap of faith to obey God and began building the ark. He faced his own circumstances and lived in a generation of people who did not believe him. As far as we can tell no one helped him build the ark and no one stood with him. According to Genesis 6, Noah lived in a very wicked generation; he most likely lived in a very lonely place. The caregiver can live in a lonely place too. In many ways, even if we are able to get out some there are times of isolation. When we do have the joy of getting out it can look so much different than others. For me, it means dealing with my son in his chair. In some settings, that can be isolating enough - no one knows what to do with us; so they d...