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Showing posts with the label aloneness

Feeling Left Out

Because our lives are so different from the main stream, it is easy for us to feel left out. Watching others go on vacation, make a coffee run or just meet up with friends can make us feel like we're sitting on the couch while the rest of the world is enjoying itself. Social isolation is real for the caregiver as people in general just don't know quite what to do with us. "Church" presents its own set of problems in this arena. Many of us can't attend church services or have so many obstacles to get there it's not feasible. The good thing is that we are part of the universal body of Christ. Just because we are separated from a physical church building on the corner, does not separate us from the body. We are no less a part of the true body of Christ than others. We may just need to broaden our ideas about what and who the body really is. The body of Christ reaches beyond the church downtown, it's time inclusive. That means that we are part of the body ...

Who Cares?

It can be easy for caregivers to think that no one cares. But in most instances, we know people do - they just do not know how to express it or show it. I remember when my son was first injured and how many caring people came through the SICU to see him. After 3 weeks we moved to an isolation room on a regular floor and still there were quite a few visitors that came through. As the hospital stay alone turned into a 4 month journey I knew that visitors would continue to taper off. I didn't take it personal; it's just the way it is. Sometimes this can feel like people do not care. But that's not really true it's just that they do not know what to do with the situation over the long haul. Very few people have what it takes to continue walking an extended journey with you. But that does not mean that their intentions are bad. Folks just don't know what to do when the battle continues on. A lot of people are very good at being there for someone who is in "fix it ...

It's a big, big house...

One of the difficult parts of being a caregiver is being separated from the mainstream. There are many times that we can feel very alone. And this alone-ness can eat away at your soul. You can feel very disconnected from friends and even family as time goes by. It's not always an every day thing but there are certainly periods of time that you can feel this deep loneliness.It's not really anybody's fault - they mostly just do not know what to do with us since our lives are so different. But we are a part of something much bigger. Ephesians 2:19 says this you are no longer strangers and aliens, but you are fellow citizens with the saints and are of God's household... Somehow even in the loneliness there is comfort in knowing that we are a part of His household. We are not separated from God nor the true body of Christ. If we think about how huge His household must be it helps to bring comfort and wash away a small bit of the alone-ness. We think of our household as t...

Where Would He Go?

The caregiver's life is full....of caregiving! Our days are filled with assisting another perform their own SDLs. (skills for daily living) This can range from minimum assistance and supervision to complete 24/7 care. No matter what level of assistance we give, it's not easy taking care of someone else. We are very quick to put our own needs on hold to serve our loved one. In essence, we already lost our lives - at least the one we knew before - to care for them. And it's not always easy working through the emotions that go along with any given caregiving situation. So how do we deal with it ?  The first thing to consider is that Jesus put His "life" on hold to take care of us too! He left eternity to walk through time only to be mistreated, persecuted and killed. In His darkest moment at Gethsemane, He did not consider His own emotions, feelings, wants or desires more important than completing the task the Father had sent Him to do...and that wasn't for His...