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Those Who Mourn Get to Play Too!

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The other night, I was headed to taekwondo and glanced over in time to see the sun rays escaping through the clouds. I thought of how dark the clouds had become, how close to earth and how just a tiny little break allowed sunlight to flow through and reach my line of sight. The sun is never gone, we just don't always see it. On a cloudy day, we don't really forget about the sun, we don't consider that it might be burnt out or displaced. We have an understanding that it is right where it's supposed to be but we can't see it. I think sometimes for the caregiver, life can cloud our way and we can't see, feel or experience God like we'd like to. There are some days between caregiving and working online I barely have time to breathe. But our God is always right here with us -whether we see Him, feel Him, know Him or not. And He is anxiously waiting for us to turn to Him. He's sort of like the sun - hiding behind the clouds waiting for just a slight brea...

The Point of No Return

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This morning I continued reading in Isaiah 61 and there are several things that keep leaping off the page and into my heart. Just for the record, I needed that right about now. This passage is very familiar to us church-goers and we recognize it as the same passage that Jesus read when He first stood in the temple. It's easy for us to visualize Jesus saying The Spirit of the Lord is upon Me because He has anointed me to proclaim the good news. But it becomes difficult for us to read it for ourselves. I think that difficulty is magnified even more as caregivers. Sometimes we can be made to feel as though we don't play a significant role in society. I know for me, at least at first, I felt like more of a drain on society, definitely not a benefit. We become absorbed into caregiving - we have  to. This can make it hard to see beyond our little box. How can we influence a generation?   How can we proclaim the Kingdom of God? How can we share the good news? We demonstrate it....

Some Things Never Change

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Change is inevitable, whether you are a caregiver or not, it's just a part of life. But for the caregiver, change can be the only constant in our lives. Even though every day can seem like we do the same things over and over again, there's always a new wrench or kink thrown in to disrupt, it seems. Frequently (sometimes daily) I have to stop, take a deep breath, and get a grip before proceeding to make a move or decision of some kind. This weekend I was thinking about how much life changes with caregiving. There have certainly been some times when I wanted to throw in the proverbial towel - and throw anything else in "there" with it....I am typically very routine and living in a state of constant change not knowing what the next second is going to bring, has been difficult. Period. But this morning I started thinking of what hasn't changed over the last 8 years. I was reading in Isaiah 61 about rebuilding the ancient ruins, and I thought of how my faith walk...

Office Hours?

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Good Monday morning world! It's been a crazy place around here of late. I don't really know why I say that as caregiving makes for all days to be crazy! You know, just about the time you think you're holding your own, got the new norms all figured out and have settled in for the duration - everything changes. How does that happen? Why does that happen? For the first time since my son's accident I somehow got signed up for home health. We only get so many days a year since there's no actual insurance involved and I usually save them for "just in case" situations. I've only had two instances where I felt their services were necessary. Well, when the doc was here last Monday - she decided we should let home health come change his feeding tube out. Evidently she signed us up. It's already taking quite the adjustment. It may seem minor to those who are not caregivers - but even the things that seem the smallest and the simplest can turn everyt...

Exiting Crisis Mode

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There can be many aspects of caregiving that are weighty. Even though each situation is unique and has it's own set of circumstances, it's never "over" and you're never "done." Tomorrow always awaits with mostly the same tasks today demanded. And even though the initial trauma or gravity that may have occurred at the onset of the caregiving experience are over - the situation usually means we may live in a sort of crisis mode. (Maybe it's just me.) Two things have been on my mind over the weekend. One is the social isolation that is customary in a caregiving situation. The other is how people tend to act like you had a crisis in the past but they seem to think it's over now. I think this can contribute to the isolation many caregivers experience. For instance, when we lived in the hospital for the first 4 months of our journey, we had visitors frequently. Not as much toward the end, but people still came to visit from time to time. We could...

I Have Allies?

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As usual, I was busy before I got up this morning! That's not really much of an exaggeration, either. I was up around one this morning with Chris - he was uncomfortable. Then at 4:30 my alarm was not a pleasant sound at all; but I got up and around eventually. I was barely moving but my head and heart were running a foot race to see how my morning was going to start. I can't stress enough to never underestimate the power of a quiet spirit. I took some time to refocus and shift, worked a little bit and finally settled down into a be still  moment. Boy, was it worth it! I opened my Bible directly to Psalm 144 and read the first two verses as I had them underlined: Bless the Lord Who is my rock. He gives me strength for war and skill for battle. He is my loving ally and my fortress, My tower of safety, my deliverer. He stands before me as a shield, and I take refuge in Him. He subdues nations under me. I spent a few minutes meditating on these verses and I...

Time to Refocus?

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This morning I was busily working around the house. I started getting up between 4 and 5 in the morning to get some work done on my jobs. This helps me get in a few hours before the day gets out of hand. Well, that's the plan anyway - I can't say as it is actually working or not yet.  Since I have an aide now (thankfully!!!), I have to separate our laundry out again - I'd been doing it together but the aide doesn't need to mess with my stuff so I divided it out - and found I needed lots done and got started on it early this morning. I needed to get it done before the aide comes early this afternoon. I was trying to knock out the laundry, put some bread on in the bread machine, fix breakfast and Chris' early morning supplemental bolus. Felt like a busy little bee hurrying around to get things done. Soon though, I realized I was getting tense, upset and stressed out trying to get everything done. My mind was shifting into high gear. But underneath this turmoil...