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Showing posts from 2014

Trying to See Past Today

One of the difficulties I've had as a caregiver is trying to plan the "future." It's just so uncertain - everyday is uncertain. You just never know what is going to unfold, what's going to work, break or who is or isn't going to show up. It's tough enough getting through each day one step at a time without giving consideration to the future too. In my devotions this morning I sort of stumbled across a scripture that helped me see just a little bit past today. In 2 Corinthians 4 Paul explains that we have the treasure of Christ in this "earthen vessel," or our bodies. What's interesting to me is that after sharing this wonderful bit of information with us he goes on to discuss how much trouble we can face in this clay pot. Caregivers can relate to these situations I think - we are: hard pressed - but not crushed perplexed - but not in despair persecuted - but not forsaken struck down but not destroyed Even though we can go throu...

Hangin' Out at His House

Psalm 27 has been a long time favorite of mine and as I was reading it recently there were a few things that really stuck out to me. Verse 5 really rings true for me today: In the time of trouble He shall hide me in His pavilion.  I really like that for two reasons - the first one is that the psalmist says "in the time of trouble." This indicates that he experienced times of difficulty in his own life. It doesn't say "since God got me out of trouble" or "helped me avoid trouble," it says IN the time of trouble. There's not always a quick escape! The second thing that sticks out to me is that during troublesome times- He hides me at His house.  I really like that. He does not cast me aside or treat me like I am unworthy or meaningless - but He puts me up in His own house when I am experiencing trouble. David indicates that he works hard to stay in God's house. His desire was to be in the Lord's presence and dwelling constantly with Him s...

Never Disqualified

I've run a few races where certain actions can disqualify you. For instance, if you are not lined up at the start line when the gun goes off - you are disqualified. One race course in OKC goes through an affluent neighborhood and if you step on the grass you get disqualified. Sometimes it can feel like we got disqualified from living our lives when we became a caregiver. For me and many others lives not only changed drastically - they changed completely.  It can take years to feel like you are "living" again. Thankfully when it comes to God and His presence caregivers are not counted out! This morning I was reading in Psalm 24 and verse three is taken right out of Psalm 15. It says: Who may ascend into the hill of the Lord? Or who may stand in His Holy Place? The psalmist answers his own question in verse 4: He who has clean hands and a pure heart, who has not lifted up his soul to an idol. We do not get cast away because we are caregivers even if our lif...

The Tenacity to Trust

Today's Bible heroes are Shadrach, Meshach, and Abednego; or as we usually refer to them the three Hebrew children.  They faced great adversity even at a very young age. They were first of all taken as captives and slaves into a foreign land where they were treated anyway but kindly. Of all the slaves these three and Daniel along with many others were taken to be trained as servants for the king. They were removed from their families, mutilated, lost life as they knew it and were kept as prisoners in a foreign, pagan land. But I love their faith and tenacity - two things the caregiver needs to survive the day! In Daniel 3, the king had set up a golden idol and everyone was instructed to bow when they heard the music playing. The 3 refused to do so pledging their allegiance to God alone. The edict stated they would be thrown into a burning furnace if they did not bow to the idol set up by the king. When they did not bow the king was angry and when he questioned them they made this...

Tis so Sweet to Trust in Jesus

Another favorite Bible hero of mine is Job. I know he didn't lead an army, build a boat or slay a giant, but he intrigues me nonetheless. I cannot fathom the sense of loss that he went through. First of all losing all his children in a day would be too much to bear. But he also lost his crops, livestock, and ways to provide for his family. Then ultimately he even lost his health. My mind just really cannot wrap around all of that. One of the things that stands out in this story isn't really about him at all - it's about his friends. Even though they were not perfect, when they heard of his hardship - they came. And they sat. For seven days they felt his pain and grief so strongly that they sat in silence with nothing to say. As a caregiver I can say that those friends that just sit during the time of trouble are priceless...and few. But what gets me about Job is actually his level of trust. I think that's why he's my hero. In Job 13:15 he stated that even if God...

Who's to Blame?

I've been thinking about some of my favorite Bible stories the last few days and on Hebrews 11 where we see so many of our heroes of the faith listed. None of them would have been heroes at all had they not faced and overcome some sort of adversity. This week, we'll be taking a look at a few of them. Today, we'll start with Joseph. The story of Joseph is found in Genesis. His brothers were jealous of him because of their father's favoritism. They also didn't like the fact that he had so many dreams which didn't always seem to be too favorable to them. So they sold him as a slave and told Daddy he died. Talk about sibling rivalry ! He spent years and years as a slave in a foreign nation and then was thrown into prison on false charges. But he maintained his faith. He continued to believe and trust in God. Joseph didn't have a neighborhood church to attend to help him keep his morale and faith intact. Actually, he was in some pretty dark circumstances. The...

Feeling Left Out

Because our lives are so different from the main stream, it is easy for us to feel left out. Watching others go on vacation, make a coffee run or just meet up with friends can make us feel like we're sitting on the couch while the rest of the world is enjoying itself. Social isolation is real for the caregiver as people in general just don't know quite what to do with us. "Church" presents its own set of problems in this arena. Many of us can't attend church services or have so many obstacles to get there it's not feasible. The good thing is that we are part of the universal body of Christ. Just because we are separated from a physical church building on the corner, does not separate us from the body. We are no less a part of the true body of Christ than others. We may just need to broaden our ideas about what and who the body really is. The body of Christ reaches beyond the church downtown, it's time inclusive. That means that we are part of the body ...

Resident Strength

One of the areas caregivers must deal with on a regular basis is tiredness. Even in the "best" situation possible, caregiving is a strain and makes you tired. One scripture I run to frequently is found in Isaiah 40:28 which says that the Lord never  gets tired or weary. You know, it is way beyond me to even be able to imagine never getting tired. But God has "resident strength" or a strength that abides at all times. He never throws in the towel because He can't go on one more step. When I finished my first marathon I really thought at times I could not go on one more step. But I kept going and completed it. The finish was far from pretty - but it was done. God does not get "done." He just keeps going and going and never runs out of steam. He's never too tired to carry us. Keep that picture of His unending strength in your mind as we look at Ephesians 3:16 which says: that He would grant you, according to His riches in glory to be stren...

Digging Deeper

In yesterday's blog we talked about "let." It's a little word, with a huge impact. Today we'll look at the very next verse in Colossians 3. Verse 16 says to Let the word of Christ dwell within you.... Once again, the word "let" is synonymous with allow. Paul is urging the young Christian church to allow God's word to put down deep roots into their hearts. He's talking about a lot more than just a simple surface relationship - Allow His word to indwell you. It's easy for circumstances to crowd out our entire belief system if we do not guard our hearts carefully, When my son was injured in an automobile accident - the happenings that followed for months shook my faith to its core. That's totally natural; but I was faced with a choice. Am I going to continue to trust God? Situations will have impacts on us, but it's up to us what we choose to hold on to. In my own personal struggle there were times when my greatest frustration was th...

Follow Peace

The caregiver's life can feel anything but peaceful. There are just so many things that have to be done for your loved one every day. For me, my son is not capable of doing anything for himself. That means that I am responsible for doing everything from getting him bathed, dressed, up in the chair, to making sure he is fed. That's all just the start of the day. One way to gain an understanding of what the caregiver does is to think about all those basic things you do each day -eating, bathing, dressing, brushing your teeth, washing your face, going for a walk, etc. But because you are doing for another - you are doubling all of those efforts. That coupled with having to fight with insurance companies, various health providers and aids, can all lead to very not-so-peaceful days. My Uncle Calvin had a saying that he always used when someone was facing any type of decision or situation - follow peace.  Sounds simple, but in real life applications it can be confusing and difficul...

Can we just be Honest?

There are some topics that caregivers are not going to discuss with others - not even other caregivers. Our emotions can be too raw too much of the time and there's no place where the pain or grief totally stops. Many days we just suck it up and continue to care for our loved one and give no regard to our own emotions and feelings. Sometimes this is how we actually survive the difficult role we must play for another. We can get very absorbed into their care and forget about our own pain and suffering. But then there are times when it can all come crashing in on us; emotions and thoughts run through our hearts and minds like crazy. What do we do with the rushing river? As I was reading Psalms 15 this morning one phrase really stuck out to me. O Lord, who may abide in Your tent? Who may dwell in Your holy hill? He who walks with integrity, and works righteousness And speaks truth in his heart. Psalm 15:1,2 No matter how good or how bad our day is going or how crazy o...

I'm a Refugee!

Last night as I was laying in bed reading trying to find sleep, I came across Psalm 16. I know it's been there all along, but last night several of the verses really spoke to me and my situation. I'll spend this week sharing devotions from this particular Psalm. The first verse grabbed my attention right away. David starts out with Preserve me O God.  In my mind, "preserve" translates to "save." I hear David's heartfelt cry for God to help him. I don't have to tell other caregivers how many days have begun with a similar prayer; and how many days have ended with the same prayer. It's not even that we need to be saved  from our situation, but we desire our souls to be preserved in the heat of the furnace . One of my prayers throughout this whole ordeal has been for God to help me keep my faith strong. I've prayed that I would not let these trials make me bitter - but help me emerge stronger in Him. That's what I think of when I pray ...

Wisdom, Peace and Coffee

Caregiviving can mean some very long nights; sometimes it seems like they won't ever end! That's how I felt this morning as I went in my son's room after a long night of listening to him cough. It's not that parents aren't used to it - it's just that you can get so tired, so weary. I had already started his breathing treatment just a little after 5, made my coffee and was getting his bolus together. While trying to decide what medicine to try to see if it would make him feel better, and trying to decide if we need to make yet another trip to the ER, I heard myself utter this simple prayer: Lord, today I really need wisdom...and your peace...and my coffee of course! It's difficult when you are making choices that affect another person's life and well being and sometimes it weighs on you heavily. Not only can He give His wisdom and offer our hearts His peace - He can make sure the coffee doesn't run out! (lol) This has been a long year with lots an...

Who Cares?

It can be easy for caregivers to think that no one cares. But in most instances, we know people do - they just do not know how to express it or show it. I remember when my son was first injured and how many caring people came through the SICU to see him. After 3 weeks we moved to an isolation room on a regular floor and still there were quite a few visitors that came through. As the hospital stay alone turned into a 4 month journey I knew that visitors would continue to taper off. I didn't take it personal; it's just the way it is. Sometimes this can feel like people do not care. But that's not really true it's just that they do not know what to do with the situation over the long haul. Very few people have what it takes to continue walking an extended journey with you. But that does not mean that their intentions are bad. Folks just don't know what to do when the battle continues on. A lot of people are very good at being there for someone who is in "fix it ...

When There's No End in Sight

Most of the crises in life have an end. Something happens, we work through it; we live through it and move on. I've received notes from individuals who were even in a caregiver's role for a short time due to an accident or illness. But for many caregivers there is not necessarily any end in sight. For some of us the rest of our lives looks like this...whatever "this" is to you. That can be a difficult thing to swallow. This morning I was thinking about Isaiah 43 and how the Lord promised that we would face the fire and the flood; and that He'd be with us through them. But even these scriptures indicate we'll get through  them at some point. But for some that either looks impossible or very far away at best. What do you do when there's no end in sight? How do you cope when there is no promise that this trial will be over soon? You hold on. Eternity will come; but it can be difficult to set our gaze on eternity when our pain is so in our face.  Can etern...

Doing Our Part

When I started with the theme about being still this week I really didn't know it was so much work (see yesterday's post!). But as I went through the different scriptures I realized there is a lot resting on our shoulders to be still. Exodus 14:14 is one I have heard all my life and it says: The Lord will fight for you while you keep silent. (NASB) The context is Moses and the Children of Israel standing on the edge of the Red Sea with Pharaoh's army pressing in from behind. In verse 13, Moses tells them that they are going to see the Lord's salvation and God's going to take care of the oppressor. Verse 14 then goes on to say He will fight for them. However, they have to do their part as well - keep silent. I let my mind form the picture of what is happening here as if I was standing there listening to Moses. I have an army of people who really do not like me and I do not know if they want to take me back into slavery or just kill me. Then in front of me is  a rag...

Being Still is Hard Work

Last week I thought a lot about God's presence and how it is always with us so we are never really alone. That led my thinking to Psalm 46:10 which says Be still and know that I am God.  This was the theme for yesterday's broadcast Actions Required . On one hand being still before our wonderful God seems like it would be a very simple thing. But it's not really about just getting quiet, which can be very difficult for the caregiver to begin with. That little conjunction "and" indicates to me that further action is required. Be still and know He is God. Being still goes beyond finding a quiet place to read and study, or simply stilling our souls to meditate on Him, although that is part of it. Finding time may be a more difficult task in that the caregiver's day can be filled with activity. In many cases we hit the floor running long before dawn and don't stop until late at night. We live a hectic life even if we are mostly contained in our homes. But it ...

Making a Move

I don't know anyone who really likes to move. Maybe you do, but I really don't like it at all. But when we do have to move from one location to another don't we take all of our possessions with us? We may discard a few items that we have learned we can live without - but as a general rule the basic concept of moving is taking all of our stuff from point A to point B. In John 14:23, Jesus said If anyone loves Me, he will keep My word; and My Father will love him and We  will come to him and make Our abode with him.  When we make a move we take all our stuff and so does God. We did not get just a little piece of God - when He moves in He brings it all! Paul says that we have the great treasure of Christ in this earthen vessel. Earlier in John 14, Jesus said that He would give us the Spirit of Truth  and that He would be in  us. Not just walking alongside, which is good - He lives in us . He is a part of us and we are a part of Him. I love verse 20 of that chapter t...

Where did He Go?

I'm taking comfort today from the fact that God is not only with me - but He cannot leave me. If we are honest, as caregivers we do experience those times that we feel  like He has abandoned us altogether. But today I have been thinking about the fact that it is literally impossible for Him to leave us. After all, where would He go?  We can at least understand the basic concept of His omnipresence with our finite minds. This means that He is literally everywhere  so that leaves nowhere  for Him to go . He really cannot leave us so there are no truer words spoken than Hebrews 13:5b - I will never leave or forsake you. But these words go back way before the author of Hebrews reiterated them. They were spoken to Moses in Deuteronomy 31. And then God reminded Joshua in the first chapter that He would not leave. Today this means a lot to me. On one hand I can understand that God cannot leave me - it's an impossibility. On the other His words to his children in Deuterono...

God don't live at Church

Despite how we may feel at times, we are never alone. One thing that I realized this weekend was how the traditional "church" can make a caregiver feel when they cannot attend meetings. On our end, it can be discouraging because the fellowship is really valuable. But it's important for us (at least for me) to remember that God don't live at church. Yesterday morning one of the groups that I had joined on facebook had a post for everyone to share what they learned at church. Well, I cannot go to church - and the church certainly does not come to me! That got me to thinking and I set up an account with blog talk radio and did the first broadcast yesterday called God don't live at church.  Honestly, once I got started I really encouraged myself. You can hear it if you want:   Coffee with Caregivers As I was sharing, it really hit me how this enormous, powerful and creative God lives right here inside of me. I was in awe. I read Isaiah 40 and how the prophet descr...

Out of Obscurity

Most of the caregiver's world can be lived in obscurity. Many times our ability to get out is limited by the level of mobility of the one we care for, or the availability of those who relieve us. For most of us, much of our time is spent living in the quietness of our homes and we are obscured from the rest of the world who does not understand us or know what to do with us. (smile- it's okay and we aren't contagious!) I started thinking about this during my morning devotions. When I picked up my Bible this morning it was opened to 1 Samuel. I started reading about Samuel who happens to be one of my favorite OT prophets. God told him to go anoint one of Jesse's sons as the next king to replace Saul who had been rejected. Jesse didn't even bother to bring David out. Samuel looked at each of Jesse's other sons and knew they were not the one to be anointed as king and finally he asked Jesse if there were any more sons. Jesse said, "well there's the younge...

Can I do that?

Every day for the caregiver is not unpleasant, but it is tough. We have our moments when things are bright. For me it is when my son seems to connect and shares a spontaneous smile, or does something new that he had not been able to do before. There are days that go by with no great incidents - I like those days. So even though it is a stressful position to be in doesn't mean it's always heavy to bear. There are small moments of relief here and there that help keep us moving on. Caregivers are unique people in that they are taking care of the needs of others, usually before their own. As a caregiver we can be sort of a refuge  by providing a safe place for our loved ones to rest, recuperate, recover or just live. Actually, we go to great lengths to try and make them as comfortable as possible in the present situation. We don't want them to suffer any more than is absolutely necessary - and any is too much at all. Our homes are a haven where we provide protection and provi...

You Can't Order that Online!

In many cases the caregiver is not able to get out of the house much, or at least not very easily. Because of this, over the last few years I've learned you can order almost anything online. I order toilet paper, cleaning supplies, clothes, household goods, furniture, electronic devices, books, music, movies, medical supplies and that's just all I can think of off the top of my head. I even order frozen foods! There are some places that ship fresh fruit - but so far I haven't found it to be cost effective. But I've also learned that there are a few things that simply cannot be ordered online. Things like milk and butter, hair cuts, manicures, massages and dog grooming just cannot be ordered online! I have found that in most instances caregivers are very frugal and creative; they have this knack for problem solving and figuring out how to get the impossible done. Whether we ask for help, order it online or find some other way to get it done - nearly everything is possi...

Ishmael? - That's a good name!

Growing up in the Western church I always heard about Ishmael in a negative light. He was "Abraham's mistake." It's not Ishmael's fault he was born! I've met a few people named Ishmael over the years and wondered why anyone would choose the name of a "banished vagabond" as a name for their child. Even though I understand the prophecies the Lord gave Hagar about Ishmael, I see it a little differently today. As I awakened to start my crazy day at 5 AM like I do every day of the week, I was already tired. It's difficult to start out the day tired, but caregivers understand that things just have to be done, tired or not. My early morning thoughts were about Hagar at the well and how she was elated that God could see her and her unborn son. So I opened up my Bible to Genesis 16 and scanned through the chapter. Hagar ended up in this position because of an injustice. Her master was Abraham and his wife, Sarah. Hagar was given to Abraham for the pur...