Posts

Exiting Crisis Mode

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There can be many aspects of caregiving that are weighty. Even though each situation is unique and has it's own set of circumstances, it's never "over" and you're never "done." Tomorrow always awaits with mostly the same tasks today demanded. And even though the initial trauma or gravity that may have occurred at the onset of the caregiving experience are over - the situation usually means we may live in a sort of crisis mode. (Maybe it's just me.) Two things have been on my mind over the weekend. One is the social isolation that is customary in a caregiving situation. The other is how people tend to act like you had a crisis in the past but they seem to think it's over now. I think this can contribute to the isolation many caregivers experience. For instance, when we lived in the hospital for the first 4 months of our journey, we had visitors frequently. Not as much toward the end, but people still came to visit from time to time. We could...

I Have Allies?

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As usual, I was busy before I got up this morning! That's not really much of an exaggeration, either. I was up around one this morning with Chris - he was uncomfortable. Then at 4:30 my alarm was not a pleasant sound at all; but I got up and around eventually. I was barely moving but my head and heart were running a foot race to see how my morning was going to start. I can't stress enough to never underestimate the power of a quiet spirit. I took some time to refocus and shift, worked a little bit and finally settled down into a be still  moment. Boy, was it worth it! I opened my Bible directly to Psalm 144 and read the first two verses as I had them underlined: Bless the Lord Who is my rock. He gives me strength for war and skill for battle. He is my loving ally and my fortress, My tower of safety, my deliverer. He stands before me as a shield, and I take refuge in Him. He subdues nations under me. I spent a few minutes meditating on these verses and I...

Time to Refocus?

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This morning I was busily working around the house. I started getting up between 4 and 5 in the morning to get some work done on my jobs. This helps me get in a few hours before the day gets out of hand. Well, that's the plan anyway - I can't say as it is actually working or not yet.  Since I have an aide now (thankfully!!!), I have to separate our laundry out again - I'd been doing it together but the aide doesn't need to mess with my stuff so I divided it out - and found I needed lots done and got started on it early this morning. I needed to get it done before the aide comes early this afternoon. I was trying to knock out the laundry, put some bread on in the bread machine, fix breakfast and Chris' early morning supplemental bolus. Felt like a busy little bee hurrying around to get things done. Soon though, I realized I was getting tense, upset and stressed out trying to get everything done. My mind was shifting into high gear. But underneath this turmoil...

Disappearing Words

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A caregiver's day is full; and that's an understatement. Many days I find myself running to Him to unload it all. It's scriptural. Paul said, or actually instructed us to bring all our cares to Him. For caregivers, that's quite a load. Some days it can also be hourly. Maybe that's just me. It's easy for our heart to be simply overwhelmed with caregiving itself. I touch on the daily tasks a lot - but they are many and can be expansive depending on the health and status of the loved one we are taking care of. For me it's the basic stuff - bathing, clothing, pureeing foods, cooking, feeding, changing, exercising...basically everything I might do for myself I do for my son. That's double daily tasks from the get-go. That just all the outside stuff. While those can keep me busy, it's the emotional stuff that can get me down. That's the real baggage and memories can tug on my heart. Personally, I deal with what is called living grief.  My son is ...

Help Us Remember

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This morning I skimmed through the story of Joshua and the Children of Israel. I wanted to refresh my mind on how God provided for them throughout their years of traveling in the wilderness. As I was glancing through chapter after chapter I realized how much they had to fight to get where God promised them they could be. I'm thinking it would have been a lot easier for them and God had He just picked them up and put them where He wanted them. But would they have grown? I read over how they faced struggle after struggle in many different ways. They marched around Jericho and saw it's walls crumble right before their eyes. The crossed the Jordan river, which sounds simple - but it's not. Because of Achan's sin they were defeated at Ai; but eventually came back and won the territory.The sun stood still as they fought at Gilgal. And the list goes on until they reached the promised land, divided it up and began to settle in. The Children of Israel faced so many ups a...

As Honest as a Psalmist

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I was working on a project over the weekend and found myself enjoying the depth of the Psalms once again. I know I spend a lot of time in these chapters, but I've always enjoyed them. Maybe it's because I am a songwriter, a poet or always running from a lion. (lol) For whatever reason, my love for the psalms and identifying with the psalmists who wrote them have grown over the years. The candidness about their true feelings and how they turn the related emotions around into pure worship amazes me. This morning I found myself back in Psalm 37, one of my long-time favorites. Although the entire chapter is wonderful, my focus remained on the last two verses where David says: The Lord saves the godly; He is their fortress in times of trouble. The Lord helps them, rescuing them from the wicked. He saves them, and they find shelter in Him. I zeroed in on two or three things that stuck out to me. First of all, not once, but twice , David mentions the Lord saving...

One More Day

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Did you ever feel like you're a bit schizo? I'm not making light of a legit condition, but as a caregiver it's so easy to be up one minute and bottom out the next. And on some days it seems like it takes very little to have those extremes. In my situation personally, I've found myself bottoming out lately. I see all the things my son's friends are now doing and I wonder where he would be if the accident had not occurred. I know it's futile - but the mind still goes there. It fills with questions about would he be married? Have children? Be a famous drummer? Would he have achieved his goals? Where would he have lived? How would he have interacted with his sister's kiddos? The list could go on I know for a fact because questions like these can wreak havoc in my head and heart. I'm sure it's not the same for every caregiver, but we each deal with our own set of questions. So this morning for my devotions, I turned to an old favorite, Psalm 42. I k...