Posts

Crazy Days of Caregiving

Image
Forgive me for my absence. Chris and I have both been sick with whatever viruses are running rampant right now. It's no fun being sick yourself, or watching your loved one feel ill. But I know you understand how difficult it is to care for someone else when you are not feeling up to par. As caregivers, we don't even get time to be sick.  What can you do, right? Our loved one still needs to be bathed, changed, fed, gotten up, etc. Who has time to lay in bed and recover? lol Add to that this frustration. I get up. I'm tired. I'm sick. I can barely get myself out of bed. I think, the aid will be here at 9. He can help me get Chris up.  Guess who doesn't show up? And guess who hasn't shown up for nearly 2 weeks now? Yup. A glimpse at the life of a caregiver. We have to laugh to keep from crying. Well, no matter what, I am upright once again and the doctor is coming to check Chris out today. Maybe we are on the mend, finally. As I get back around and try to get...

No Response

Image
What's on my mind this morning is not something new, I've talked about it a lot. You know as caregivers, we learn so much about caregiving, about life, about ourselves on this journey. I'm still learning about the depth of the love of God. I've said it before, but it bears saying again that I understand just a small piece of God's unfailing love for us. I remember standing by my son's bed one day and realizing it was a deep, intense love that held me there. I understood that it was that same love that held Christ on the cross for me, for you. Some may question it - and I don't think it will ever be understood. I'm talking about how we can love someone who cannot reciprocate openly. Maybe they cannot express it, but you know they love you. In some cases, those who have dementia or other issues like my mom become different. Often they are combative or very NOT loving. But we love anyway. I think about the way God loves us even when we can't rec...

Total Dependence

Image
Some nights when I get Chris to bed, I crawl up next to him to snuggle and tell him "good night." Sometimes he pushes on me like I'm in his space and he wants me to go away. lol Other times, like last night, he looks me directly in the eyes as if to communicate he loves me. At least that's what my imagination says, and I'm not going to argue. After I posted this picture in his group page on Facebook last night, I sat and looked at it for awhile. I've learned so much about love, self-denial, God's love and myself on this caregiving journey. But that's not where my mind went this time. This time, I thought about how Chris is dependent on me. For everything. His food. His safety. His comfort. His therapy. Literally everything. He can't do anything without my help, except complain about my help. That's okay though, it means I'm doing my job. As I thought about my son's utter dependence on me, I wondered what it might be like if I wa...

He Really Will

Image
Sometimes in caregiving it's easy to lose sight of the simplest things.Maybe it's all the tasks we have to do just to get through the day that sidetracks us. Perhaps it's just the day and time we live in. There are many nights when I look up and it seems I've been busy all day, but I still have so many things to accomplish before I can call it a day.  It's true I think even for non-caregivers. As I am writing this devotion this morning I've got a full itemized list of the things I need to get done today going through my head. They are spilling out onto paper as I make my "to-do" list for today. As I write things down, I put an asterisk beside the ones that simply cannot  wait until tomorrow. I'm already wondering how I'm going to get it all done. And of course, on top of that, the aid comes from 9 to noon so I can run errands (that isn't even on the list). But today the pulmonologist is coming. I guess that's a good thing, but it su...

Quick to Condemn

Image
Rest is not a word we hear much as caregivers. Well, let me rephrase that. If you are anything like me, you hear that you should rest  more. Of course, these statements are made by people who first of all haven't got a clue about how impossible that is. Secondly, they make no offer to help so it could be possible. I just let their words go like water off a duck's back. Poor souls really have no clue. (smile!) I will say though, that out of desperation, I've learned a few ways to sneak in a rest or two now and then. It took quite a bit of ingenuity and creativity, along with pure exhaustion to figure it out. But eventually, I got it. It's not that I didn't appreciate their concern - they just had no idea what they were talking about. Let's look at some differences here. First, there is a difference in being able to rest and knowing you need to rest. Many times, we know we need to, there's just no one to take up that slack so we can. Secondly, there'...

In all Honesty

Image
This morning I was reading along in 1 Corinthians 2 studying a particular topic and got to verse 3. I'm not sure quite why it shocked me as I'm sure I've read it numerous times before. But this morning, I just stopped and stared. Right there in the Bible - in the New Testament - on this side of the cross, were Paul's words. He said  I was with you in weakness, in fear, and in much trembling. I just looked at it for quite some time and read it over again and again. This is Paul, right? THE Paul who wrote a large portion of the New Testament. THE Apostle Paul who had a divine encounter with God. And he wrote it on this side of the cross. What kind of apostle is this who admits fear, trembling and weakness openly? The kind God can move through. I'm coming to understand how important it is to be totally honest with God. It's not like He doesn't already know anyway, right? He knows my weakness. He knows my fears. He knows my trembling and my crazy, all-over...

Forever is a Long Time

Image
I've been lost in thought the last few weeks, and of course busy with the holidays. Now that Christmas is past, I've turned my thoughts toward a new year. This morning I woke up thinking about some of the rough times that occurred this year. I immediately thought - but the word of God stands forever. It doesn't change due to our circumstances. I looked up the scripture reference and found it in 1 Peter. But he was simply quoting the verse from Isaiah 40. Verse 8 says this: the grass withers, the flower fades, but the word of our God stands forever. Since I like to look at things in context, I backed up a bit and started reading the first verse of the chapter. It's about comfort and how He is bringing an end to our warfare. Quite honestly, I got nothing on that. Caregiving is still going on. It's still complicated. It's still hurtful. It's still discouraging. However, in verse 3 I found something I could meditate on. Verse 3 of Isaiah 40 says this: A ...