Daily Devotions for Caregivers

Yesterday I celebrated having Chris home for 8 years. While I celebrated I thought a lot about all the different things we've been through over this last decade. I didn't express it, but it took a lot just to get to that point 8 years ago. I'd gotten rid of almost everything and was headed to the mission field when I got the call he'd been in a wreck. There were times I felt like such a failure because I couldn't just "take him home." I'd been living with families for several years focusing on ministry. I felt like I had failed him by not providing that even though he and my daughter were both adults. When Chris got accepted into rehab in OKC, they wouldn't take him until I established a home so he'd have a place to go on discharge. When we moved him from New Orleans to Oklahoma, I started staying with some of my daughter's friends who generously gave me a place to stay while he was in the nursing home. Now it was time to get a place ...

This morning as I got up and started doing my early morning caregiving tasks I had a part of a song stuck in my head. It was playing over and over. The phrase, there is no God like Jehovah!  is part of the song, "Days of Elijah." It was going over and over in my head so I started thinking about that. After I got Chris changed and bolused I looked up a couple of scriptures. In Isaiah 45 and 46 there are several verses that use the phrase there is no other God  besides our Lord. As I read through the verses I thought about how there isn't any god like our God. As caregivers it can feel like we are thrown away by society or that there is no place for us in normalcy. But God never tosses us away. He chooses  to walk through the dark days and nights with us. He's there for us when things go smoothly and times are bright too - He never leaves us. Actually, He doesn't even think  about leaving us in our pain. The thought never crossed His mind. I let my thoughts sett...

This weekend, the weather was beautiful so Chris and I signed up for a race. I was all set to push him but the two young men in the photo asked to push him for me. They were so eager, I nervously gave them my baby. I laugh, but in all honesty, it was difficult to allow him to be in someone else's hands for that little bit of time. It did, however, free me up to run the race. I think what moved me about it all was that they were so eager to push my son. They wanted  to and as you can see by their expressions when we passed on the course, they enjoyed  it. They were not enduring it or doing it because they felt they had to. I have to say - it was a true blessing and it touched my heart in a way I've not even been able to describe with words yet. It's far too often that caregivers and their loved ones are avoided. We can start to think we have the plague or something contagious. People tend to ignore us and avoid us. Or maybe it seems that way. Many times, it's bec...

I was studying this morning in preparation for some online Bible courses I'm starting to write and I found myself in Jeremiah 2 and this part of the second verse jumped off the page and into my heart. God is speaking to His people and says: I remember.....your following after Me in the wilderness, through a land not sown. Now most of us did not plan as a child to grow up and be a caregiver. It's a strange land for most of us when we find ourselves there.It's an unknown land and we didn't spend time directly cultivating the skills we would need. I mean really, who knew we would need to know how to do some of these things? Not only did we not really plan  on being a caregiver in most instances, it can be a lonely and dry place. We eventually find a new normal and learn to function and work with what we have; but loneliness and social isolation are definitely areas we find ourselves having to deal with. It can be a real-life wilderness. And that's why this verse ...

We ended last week in Psalm 34 and I want to start out this week with it. Last week I shared several points that stood out to me but one particular verse really stuck with me. The first part of verse 7 says this: the angel of the Lord encamps around those who fear Him.... What really got my attention was that "angel" is singular and not plural. In my mind when I've seen, read or heard this verse I've interpreted it as the "angels of the Lord" were camped all around me. I actually had a visual of me sitting by a nice, cozy fire in the middle and thousands of angels surrounding me on all sides. So when I was reading this Psalm last week the fact that it is just the "angel of the Lord" really grabbed my attention. It honestly messed up my picture I had saved in my mind. Just one angel?  Is that because I am not important enough for a whole troop? (lol) Or is it because the angel is so powerful - we only have need of one? (Think about that for a ...

When I woke up this morning I was having lots of trouble adjusting my attitude. I'm sure that's foreign to many of you - but after a night of tossing and turning it just happens. When sleep evades me - attitudes abound. Did you ever just doubt it all? I doubt He loves me, doubt He cares for me, doubt  He is with me, doubt He protects me... and the list goes on and on. My mind goes fast so in a matter of seconds I can have every area "covered" in doubt and frustration. My thoughts run along lines like if He loves me and truly cares for me why has this happened to me? Is this  what He really thinks about me and my son? I'm sure I'm the only one who has these little switches that get flipped and then a barrage of questions are hurled out all at one time. It seems worse during times of illness whether it is me or my son. This morning I got my son bolused and situated and then brought my coffee to my recliner kicked my feet up and started trying to sort thr...

Last night as I was going through our bedtime rituals. I just stopped and looked at my son. He was lying down, resting and soon to fall asleep. I think all mothers like to watch their kids sleep. I just stood there by his bed and let my mind wander a bit. I thought about our journey and all we've come through to this point.  And I rehearsed some of my fears of what may happen when I get my ticket out of this place called time - or I get too old to care for him. The thought of him being left in a home made me shutter. I thought of the people we met along the way and the ones I saw literally, just walk away. It's never been in me to do that. I thought of how much I love my son and how that holds me at his side no matter what. I felt the bond between us strengthen as I grabbed hold tighter with my heart. It made me more determined to be sure things are in order so he doesn't ever have to feel abandoned. I can't imagine putting him somewhere and walking away. In that ...

I wear a little fitness band by Withings. It tracks my steps each day and at night I can set it to monitor my sleep. Yesterday this is what my sleep looked like! I got in bed late and had some restless sleep and then my son spiked a fever and we headed to the hospital. It ended up not being anything serious - but with him, as with many you just never know. We were back home in just a couple of hours but there are times under similar conditions when we've been admitted and faced a hospital stay. We just never know. Over time as caregivers we don't really get used  to these trips, but we do adjust to them being just part of our lives. fortunately these trips do not occur as often as they have in the past, but they sure wear me out when they do. Days like today I have to think about my go-to scripture in Isaiah 40:28 that says The Everlasting God, the Lord, the Creator of the ends of the earth does not become weary or tired.  I sure would like to know how that feels. How ca...

When my son was first injured and we were living in the hospital, I knew I had to find a way to get adequate exercise so I took up running. I thought it was an inexpensive sport that I could virtually do anywhere. It's been sort of a lifeline for me over the years. Running has become what I do  to deal with the difficulty of caregiving. It helps me physically but it also helps me beat depression and clears my brain. It's really about the only thing I do, and the only reason I get out.  Yesterday, I ran my 16th half marathon. I proudly added my finisher's medal to my overloaded rack on the wall. But I had something happen during my race that had to do with caregiving. As I neared mile 5 of the course there was a drumline playing. It totally caught me off guard. My son was the drum caption and the center snare for his college drumline before his accident. Seeing a drumline live brought back a flood of memories and I collapsed in tears. Eventually, I gathered myself and cont...

Sometimes there's no rhyme or reason for the way caregivers feel. A day can be going along fine and our routine normal and then out of nowhere comes a wave of emotions or depression. Some days I wake up and am overcome by the mere thoughts of the day's tasks that lie ahead. Today is one of those days. How can I be tired before I even get started? And how can I be running behind before one task is done? I don't know. It can be difficult to determine  the exact cause of emotional distress. No matter what lies behind it, it must be worked through to finish the day's tasks. Days like this are simply tiring but I'm afraid caregivers have many of them. How do we find encouragement and strength to get through the day and get everything done? No one is going to give us a day off ! That's for sure. We find ourselves needing to dig down deep to encourage ourselves to keep putting one foot in front of the other. David found himself in a position where he was all alone ...

Sometimes it bothers me when I hear complaints about it being Monday. It seems to me that on many levels the caregiver's days are all the same. There's not much relief on the weekends and our chores remain the same for the most part with maybe some small changes. I don't think that a day is necessarily bad or good just because of its position in the week. Even in our crazy not-so-normal lives our attitude can go a long way in making a day "good" or "bad." We cannot always change anything about our circumstances and we cannot always find ways to lighten the load - but we can always change our attitude and make the best out of what we have. We all have days that are better than others but some days seem to bring a lot more of a struggle. What are we supposed to do on those days? Typically my thoughts run to the scriptures when I am overwhelmed, and particularly the psalms. Sometimes what seems like the simplest phrase can bring healing and restoration. T...

Have you ever had someone tell you that because your loved one wasn't healed you lacked faith? Sadly enough, I have. Yet if we look at all our Bible heroes we'll see that we admire them because of the trials they endured. Each of them give us a picture of how to trust God in adversity; and how to keep faith during intense testing and trials. Adversity is actually the true test of faith. It's in the midst of the trial that we find out just how much we trust God. Can we trust Him when our lives are less than perfect? The caregiver's life is definitely "less than perfect" if we compare it to others. For some of it caregiving can mean that we are locked up in our own little cave unable to get out and about. For others, there may be some getting out - but there's not quite the freedom we see in the rest of the world. Caregiving can complicate everything on a variety of levels. We can't use the struggles of caregiving to measure our lives. We also cannot u...

Psalm 27 has been a long time favorite of mine and as I was reading it recently there were a few things that really stuck out to me. Verse 5 really rings true for me today: In the time of trouble He shall hide me in His pavilion.  I really like that for two reasons - the first one is that the psalmist says "in the time of trouble." This indicates that he experienced times of difficulty in his own life. It doesn't say "since God got me out of trouble" or "helped me avoid trouble," it says IN the time of trouble. There's not always a quick escape! The second thing that sticks out to me is that during troublesome times- He hides me at His house.  I really like that. He does not cast me aside or treat me like I am unworthy or meaningless - but He puts me up in His own house when I am experiencing trouble. David indicates that he works hard to stay in God's house. His desire was to be in the Lord's presence and dwelling constantly with Him s...

I'm taking comfort today from the fact that God is not only with me - but He cannot leave me. If we are honest, as caregivers we do experience those times that we feel  like He has abandoned us altogether. But today I have been thinking about the fact that it is literally impossible for Him to leave us. After all, where would He go?  We can at least understand the basic concept of His omnipresence with our finite minds. This means that He is literally everywhere  so that leaves nowhere  for Him to go . He really cannot leave us so there are no truer words spoken than Hebrews 13:5b - I will never leave or forsake you. But these words go back way before the author of Hebrews reiterated them. They were spoken to Moses in Deuteronomy 31. And then God reminded Joshua in the first chapter that He would not leave. Today this means a lot to me. On one hand I can understand that God cannot leave me - it's an impossibility. On the other His words to his children in Deuterono...

I've always heard that we should never say "never." I guess that's basically because we really never know what a day may hold. But last night while I was reading, I came across this scripture in Psalm 8. Verses 9 and 10 say this: The Lord is a shelter for the oppressed, a refuge in times of trouble. Those who know your name trust in you, for you, O Lord have never abandoned anyone who searches for you. (NLT) If anyone can use the term "never" it'd be Him! Far too many times I have heard stories of caregivers who feel that their family and friends have abandoned them. On one hand, I really do understand that for the most part, people do not know what to do with us. We cannot always "get out" like others and when we do not fit the mold of the world, and sadly the church, we can be abandoned. Isn't it comforting to know that He will  never abandon us? I love the passage in Isaiah 43 which says: When you go through deep waters and great...

There are a couple of passages that really bothered me for a long time because they contained similar questions which brought about very different responses by God. Both of the questions  are in some way asking, where is God? That's actually a question I have asked many times. If God is near why has all this happened? Why am I suffering? Why doesn't it seem like He's answering my cries? Those questions usually pop up on long, dark nights when my son is having some sort of issue that it appears God does not care about. I hate to tell you (assuming you've asked similar questions at least once), but others have already had the same question go through their minds - we're not original at all! Finding people in the Bible who've asked similar questions is not difficult at all really. (Check out Psalm 13) But in Exodus 17 and Judges 6 the same question came up. The children of Israel asked Moses , Is God with us or not? It says that they tested God by asking if H...

My mentor told me one time that I was ambiguous but I didn't know what it meant at the time and so I had to go look it up. After I discovered what it meant, I realized I had two very different opinions about a lot of things. Over the last few days I've felt sort of divided about how I feel about God too. (It's okay - He understands and isn't mad at all!) On one hand - I love God with all my heart and trust Him fully. On the other hand I really don't understand why bad  or difficult  things have to happen in life; or how come He allows them. I think I found a Psalm to help me sort it all out. It's Psalm 42 and it starts out with the psalmist discussing how they long for God. As the deer pants for water - that's how my soul longs for God.  I feel that way; even wrote a chorus about being thirsty for His presence to invade every part of my life. Verse 4, talks about how the psalmists remembers hanging out with God's people. I recall being very involved...

I'm still reading Job and really enjoying it. One thing that is standing out in my mind is how his friends keep arguing that there is some sort of flaw in Job or he would not be in this terrible situation. I guess it stands out to me so much because I had people say these same types of things to me when I was very ill in 1986. (It's a long story I'll try to write somewhere else - but obviously I lived!) Job's "friends" attack his character each time they speak because they were trying to analyze it according to their own religious dogma. Yet all the way through Job maintains that he has not sinned to cause all the tragedy to come upon him. Isn't that among some of our first thoughts after a tragedy strikes and we try to settle into a new normal? In Job 13:15 Job makes one of the most faith-filled statements that is contained in scriptures. He states that even if God slays him - he will still trust Him. Some versions say still hope in Him.   While this...

It is very important for caregivers to try to find the positive things to rejoice in each day. We can rejoice in any small improvement in our loved one we are caring for, be glad the aide actually showed up to help, rejoice that at least the few necessities that are provided and covered by insurance showed up, or be thankful for a call or visit from a friend. Although the battle can be difficult, small things can help lighten our load on many days. There are those days where we just struggle - with everything . And some days we just get through. After a series of days, weeks, months of just trying to get through yesterday one of my favorite worship leaders posted a new song he had written. It is called, "When I Worship You." It was the song of the day for sure. I played it over and over. It's on the front page of his website if you want to check it out: www.dennisjernigan.com The phrase that stuck out to me yesterday was about Him being with me. Somehow that simple th...

One of my all time favorite passages is Psalm 46. There are several things that you can pull out of there to use! Of course, those who know me very well know I can camp out on Be still and know I am God. And the phrase the God of Jakob is with us is mentioned twice. But verse 1 I am pretty sure I memorized at a very young age and have carried it with me all these years. God is our refuge and strength, a very present help in times of trouble. This verse is usually one of the first ones my mind pulls up when trouble shows up. It has brought comfort and strength to me over the years. Earlier this week I was sharing a devotion on a conference call and this scripture came out during the teaching. And right then and there it hit me that He is a present help. I had always thought about it in the sense that He is present like He's here. He is present and ready to help. But as the words spilled out of my mouth I thought of it a little differently. The fact that He is present , He...