Posts

The Good, the Bad and the Ugly

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Aren't you glad we don't have a screen on our foreheads displaying our every thought? Sometimes it might be useful, but I know there are lots of things that run through my mind every day that I would not want anyone to know about. Caregiver's thoughts are busy - they have to be because we have so many things to work out every single day. Many times I've condemned myself for my own thoughts not realizing it really is the way we work through  stuff. But there are lots of thoughts that simply cannot be shared with others. For the caregiver there can be lots of things that we choose not to share. When I first brought my son home from the nursing home and started working with him full time, I realized how difficult life was for him. He struggles to do anything. I had some thoughts many would find unacceptable. The only one I dare share is that my thoughts were that it would've been better for him to die in the wreck rather than live this way. Immediately I condemne...

So Great a Love

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One of the best things I have purchased as a caregiver is a baby monitor. I found I was not getting up as much throughout the night because if I heard my son I could glance at the monitor and just see if he needed me or was just moving around a bit. It also allowed me to go outside for my coffee and Bible study but still be able to keep an eye on him and hear him. This is very helpful especially on the mornings he chooses to sleep in a little bit. As a caregiver for someone who needs help with just about everything but breathing I have to watch and listen for him constantly. There are not many breaks and this little monitor lets me hear and see him in a way that gives me a little bit of freedom too. Just like I keep an eye on my son and an ear open for his every sound, God is always leaning in our direction.  He always has His eye on us; and He is always listening for our voice. 2 Chronicles 16:9 states that the eyes of the Lord run to and fro throughout the whole earth, to s...

On this Journey

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Ever have one of those days when you just need to be reminded that He is with you? I've had a few. He can send subtle reminders that He is near through a beautiful sunset, a rainbow stretched across the sky or the laughter of a child. Somehow these little lights in our day can help us remember that He is with us and He has not placed us on this earth and forgotten about us. I try to remind myself that we have the promise that He will never leave or forsake us. That is found in Hebrews 13:5 but it's actually a quote from Deuteronomy 31. In this chapter Moses is prepping the Children of Israel for a shift in leadership. He first tells the people that God is not leaving or forsaking them. Then he turns to Joshua and tells him that God is going with him and will never leave or forsake him. Then in Joshua 1:5 when God gives Joshua his charge He specifically tells Joshua again that He will never leave or forsake  him on the journey. Hebrews is just a re-quote of what God told J...

Attitude Latitude

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One thing that I have learned as a caregiver is how much attitude comes into play. I think it really helps to choose to have a positive attitude. But sometimes our latitude  or position as an advocate makes it difficult on our attitude. We are many times in positions where it takes some true grit to endure and to get things done on behalf of our loved ones. Many would say that because of our latitude  we have a "right" to let some things get out of control. I have to admit that there are days when it's a very big struggle to try and keep my attitude in line with Christian values. There are many emotions accompanying the caregiving package. We do get angry sometimes, sad at other times and emotions can just be all over the place some days. There's a lot on our plate every single day. But our attitude has a lot to do with how we handle an overloaded plate. Running on overload does not excuse poor decisions or bad behaviors. We are still accountable for every word ...

Who's Waiting on Who?

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Caregivers often wake up tired, do you ever do that? It seems that if we are in bed for any length of time we should wake up refreshed and ready to go.  We deal with so many different areas and are pulled in numerous directions everyday that it's easy to get and stay tired. Just because we became a caregiver doesn't mean that we stopped being everything else. Besides caregivers we are often also: grandparents, teachers, parents, sisters, children, siblings, athletes, homemakers, writers, and the list could go on. To be a caregiver we didn't have to stop being in all these other roles because as we learned real quick - life does go on. Besides all the tasks associated with a normal  life, we have caregiving chores too. And to be totally honest sometimes I get tired. Sometimes I stay tired too! (smile) I get tired of dealing with politics and health care stuff.  ...tired of dealing with social workers ...tired of dealing with aides that don't want to w...

Reminders that Life is Fragile

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As if caregiving by itself was not enough of a reminder of the fragility of life, there are plenty of new ones. Just Saturday I learned of three deaths. One was a long time family friend who actually named my daughter, another was a Facebook friend who brightened every day with humor, and the other was a local sportscaster tragically killed in an accident. These all left huge holes in my heart and reminded me that we cannot take a single day with our loved ones for granted. As a caregiver, every day can be lived in pain - sometimes it's like everything hurts and even the small things are magnified. But when it's big things like watching your mom in the beginning stages of dementia or losing a close friend, it can be more difficult to handle. Times are tough and emotions are high when you are a caregiver. Many days it takes everything we've got just to keep ourselves together to perform all the associated duties. Let one little (or big) unexpected thing happen and it c...

Is it Okay to Sing Again?

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As caregivers we know that days are full of lots of things. We can easily run on high all day long and still feel like we got nothing done at the end of the day. Perhaps part of this is due to the fact that we do the same things over and over and over day after day after day. This is the way it is when you are caring for another person. It can be a life of repetition with the caregiver doing everything for their loved ones and then those same things for themselves. It's endless, isn't it? Sometimes I wonder just when it's all going to end. It feels like never. And if I am not carefully guarded, I can slip into a very depressed state and whine a lot.  Not that it helps. BC (Before Caregiving) I was a worship leader in the church. I stayed up on the latest trends in worship music and learned the newest songs. Tragedy has a way of robbing you of the things you love. For me one thing I loved was music. Actually, because my son was a musician prior to the accident, I could...