Posts

Remembering the Promises

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This weekend I went to the Dallas area to run a half marathon. On the night before I took time to take a walk and got back to my room just in time for the rain to start. After it was over this beautiful rainbow stretched across the sky and I had a perfect view of the whole thing. It was wonderful - nearly breathtaking from the 9th floor. As I sat and watched the rainbow unfold and deepen in color I thought about the first rainbow. The one God painted in the sky after the flood, then told Noah it was the symbol of His covenant with man and the seal of His promise to never destroy man and earth by flood again. I wonder if Noah and his family were nervous the next time it rained. Did they glance in the direction of the ark and wonder if they should seek safety? Or did they fully trust God's promise to them? Could they rest in His promises? Rest is the key word there for me today. A friend of mine has reminded me of how important it is to rest  in Him. She suggested I take some ...

I'm Not Super-Human?

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Caregiving can consume us so much that others and ourselves forget we have other things going on in our lives. Since I started on this caregiving journey I've become a runner, a writer and a grandma! I have another adult child who can really feel like she lost her mom in the deal. And what's frustrating to me about it is that I can't do a thing to change it. We have started having a mother/daughter weekend every year around her birthday; and we got to make a trip to Indianapolis recently to attend a good friend's wedding. She helps me out a lot and I watch the grandkids sometimes to help her out. Today she's having a surgical procedure and I can't be there with her. It is certainly not because I don't want to be there for her, it's because there's no one to sit with my son during the week. Even the help I do have (paid or not) have other responsibilities and jobs. Of course, I don't even have an aide right now (one of our chief frustrations...

At Day's End

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Caregiver's tasks are endless and almost every evening I have this sinking feeling like I didn't get enough done. It doesn't matter how much I did  get done in a day, I feel like I fell far short of all I needed  to get done. Does anyone else ever feel that way? We already have enough on our plate just in taking care of another whole person or two. I say this as I not only take care of my son who is total assist, but am shifting into a caregiving role with my parents as well. My son can do absolutely nothing on his own but breathe. I not only have to puree all of his food or blend up shakes to put in his tube, but I also have to take the time to feed him. Each day I bathe him, dress him, get him up, stretch him, stand him, entertain him, etc. It starts early in the morning and goes until late at night. Even when he's in the bed early mornings or late evening he has to be bolused, changed, turned, and kept comfortable. It's my pleasure. Add to the daily chores ...

Aged to Perfection

After a very busy weekend away, I sat down with my coffee this morning and opened my Bible. The Bible I've been using is still packed in my bag, so I grabbed the closest one and it fell open to Isaiah 26. I read through the entire chapter but my eyes and my mind went back and settled on  verse 3. My mom taught me this verse as a child. It says: You will keep him in perfect peace all who trust You. I grew up with the old King James Bible being the "only" Bible and it states the last portion as whose mind is stayed on thee.  The verse has significance to me because my mother had what was called a "complete nervous breakdown" just after I was born. She spent months in a mental hospital all drugged up and endured the maximum number of shock treatments. That was the treatment of choice back in the early 60s. So I grew up listening to her quote this scripture as part of her testimony of how God had brought her out and healed her; and I learned to meditate on scriptu...

No Walking Out

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I wear a little fitness band by Withings. It tracks my steps each day and at night I can set it to monitor my sleep. Yesterday this is what my sleep looked like! I got in bed late and had some restless sleep and then my son spiked a fever and we headed to the hospital. It ended up not being anything serious - but with him, as with many you just never know. We were back home in just a couple of hours but there are times under similar conditions when we've been admitted and faced a hospital stay. We just never know. Over time as caregivers we don't really get used  to these trips, but we do adjust to them being just part of our lives. fortunately these trips do not occur as often as they have in the past, but they sure wear me out when they do. Days like today I have to think about my go-to scripture in Isaiah 40:28 that says The Everlasting God, the Lord, the Creator of the ends of the earth does not become weary or tired.  I sure would like to know how that feels. How ca...

Mighty Warrior

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Have you ever had someone tell you they admire you and how they think you, as a caregiver, are so strong ? It happens all the time - but I really don't feel strong at all. It feels  like I am just surviving and not doing that very well some days. And then sometimes, like this weekend while on our first big walking adventure - I notice people looking at us with such sympathy - like they feel so sorry for us and our situation. How people see a caregiver relies a lot on the types of life experiences they have had themselves. Maybe they have had their shot at caregiving and they feel like it takes an enormous amount of strength. Or maybe some have never been in the position and think there's no way they could do it. (I was in that class BC - before caregiving. ) The truth is we may not feel strong at all - but others likely see us that way. We know as caregivers that we have moments where we can take on the world. These usually occur after winning a loooong fight with a healt...

Rainy Days and Mondays

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I'm a 70's child and I remember when "Rainy Days and Mondays" was popular on the radio.It's got such a smooth sound it can get stuck in your head. For the caregiver "Mondays" doesn't mean too much really, since everyday  can look pretty much the same. We get up on Monday mornings with just as much to do as we had when we got up on Sunday morning. The caregiver's responsibilities don't change much, if any, from day to day. I usually try to make some small variances on the weekends, like letting my son sleep in just a little bit longer; but the primary responsibilities do not change with the day of the week. When you are caring for another whole person these do not change much. There's still bathing, pureeing foods, feeding, transferring, dressing, and lots of other things that have to be done every single day. If we are blue because it's Monday, we are likely blue every day of the week! I went in search of one of the scriptures w...