Daily Devotions for Caregivers

Do you feel like you are in a constant state of change? Sometimes I am afraid to put my feet down so to speak, as everything is bound to be different before I get them settled. Today will be different too, as each day is unique and yet redundant at the same time. We do the same caregiving tasks over and over, day after day. Today, though I have the promise of an aide. And now that I have settled in to an aide-less routine, that means changing it all up again. It sounds silly and like it wouldn't matter, but it really does change a lot. For instance, I want to make sure our laundry is sorted out because when aides are not coming regularly I do some of it together. I also have to get Chris fed, bathed or up (depending on his sleeping schedule) before the aide comes - or figure out when it fits in. I pretty much have to change the way I do my mornings since I have word he's really going to come. (His boss told him if he didn't show up today, she'd restaff him. Why sh...

I was reading Isaiah 55 this morning and several things jumped out at me. One of them was verse 10 which says He was pleased to crush Him . That made me think of how they make essential oils (which I use daily) and how perfume is made as well. In either of these processes, it's the crushing that brings out the sweet fragrance. Now, I have to admit that sometimes in the crushing - the fragrance that has been released was not pleasant. Remember crushing stink bugs as a kid - that was not nice, nor did it smell good. Crush a garlic and you'll smell garlic. But you will get whatever is inside of what's being crushed. Caregiving can be a crusher that lets us know what's truly inside. As a matter of fact, it's more like a constant crushing, I refer to it as living in the furnace. It never stops. This can reveal our character - what we are really made of - what we really smell like. I've seen both as it pertains to myself. There are times when the crushing come...

It's so easy to get lost in the shuffle. We don't have to go through the list of all the things we have to do in a day, or the numerous people who come through weekly to check on our loved one, or the paperwork we have to keep up with - all to provide proper care. But most of these activities are based around the one we are caring for - not around us. My "love language" is time. If you spend time with me I feel loved. You can lavish gifts on me  (not that anyone has tried that recently! lol) and I won't necessarily be able to translate that as love.  But spend time with me and I will feel like you care. The social isolation of caregiving and the always feeling like you're out of step with normal  can start to wear on you. Lately, I'm so much more comfortable with caregiving - and not struggling as much about going into public places. I guess that happens when you don't have an aide for an extended period of time and you just have to adjust. I ...

One of the things I do to "deal" with caregiving is run. I started while my son was initially in the hospital because I was looking for a way to be active. We spent almost 4 months in the hospital after his wreck. I stayed with him and never left except for very short outings to do laundry and such. I read a lot, but finally started a running plan just to get some activity in as the sitting wore me out. It took me three weeks to work up to the beginning program, but eventually I trained for that first 5K. I found running to be a great stabilizer for me. When I run, my body releases tension, my head seems to clear and I just feel better in general. Yesterday I finished my 22nd half marathon. I hadn't trained properly for it so it was a tough one. That and the fact that I'm coming off an injury I sustained in an 8 mile trail race  back in January made for a rather painful race. On a tough race like that all the "good thoughts" disappear about 7 miles in....

When I became a caregiver, everything changed. It was both instant and gradual. Instantly I was thrust into learning all about brain injuries and how to provide personal care for another adult. As time went on, as it tends to do, I learned more until now I'm literally helping write a course on it. A caregiver pretty much lives in a state of adaptability. We never know what a day may bring and we have to be ready to change on the fly in order to handle whatever might come up. But we are still sons, daughters, moms, sisters, dads, brothers, etc. Many friends walk away, the church doesn't know what to do with us and usually our jobs either adapt to our new responsibilities as caregivers, we no longer have them or we adjust in some other way like working online. I think our Christian walk is similar in this way. The second we accept Christ - we are changed. Bam! We are a new creation. But over time a we learn more about Him and become more like Him we see continued changes. T...

You know how caregiving days go. Even though there's nothing easy about it, some days are good, some are better and a few are downright rough. There can be a number of reasons for a rough day. It might be physically rough, mentally rough, emotionally rough or a combination of any of those plus any number of other reasons. Yesterday, I just felt broke. I'm learning to take it all to Him. He's not afraid of my broken state. Yesterday, I was thinking about how broken I was and in the process I realized there are three basic types of "broke." I can be financially broke - which thank God for His provision - I am not. I can be broke - like not working and needing to be fixed broke. Or I can be broke - like broken before God, humble and broken.  I'm in the middle of a challenge called the psalmist challenge.  I designed it myself as part of a project I'm working on. For 30 days I have to take a few minutes to play, sing and pray. So far, every day I have wr...

This morning, I am tired. I know the day has not even started but I've already sighed three times. Just knowing all that will need to be done today makes me weary. It's really not an unusual day, just another day. Caregiving has to be one of the craziest things I've ever done, and I've done some crazy things - and had some extreme jobs. One just really has no idea what to expect on any given day. Like yesterday with no warning the company showed up with my son's new bed. I had no idea he was coming (what happened to common courtesy?), but here he stood acting shocked that the old bed was still standing in the place the new bed belonged. I just looked at him in the same shock. How was I supposed to know he was coming if he didn't call? (smh) He said, "We can set up the new bed but we aren't allowed to move the old one. It's company policy." I said, "Well, had I known you were coming, I'd have had this one moved out of the way. So ...