Daily Devotions for Caregivers

I can't believe I did it, but I managed a short get-away. That's one reason I've been MIA for a few days, but I'm back. At one point I was thinking it was going to be easier to stay home than coordinate my son's care for while I was gone. I have some respite that I can use through the Advantage program which helped a lot. Then I have some really great friends and family to help at home. I really don't have to worry about him as he's well cared for on all counts. But getting it all together is something else! But I have to say it was worth it. I needed the break and I hope to take more later. I went to a lady's retreat at the beach. Just a few weeks ago I had put the beach on my List of Places I'll Never See Again.  But somehow, it all worked out and I spent four days there with a group of amazing women. I felt almost normal again. Ha! In the future, I'm going to try to plan more getaways. I came home rejuvenated, but tired, rolled up my sleev...

Sunday, when the family was gathered, my daughter sneaked over and got a "siblings" pic. I really think Chris is smirking at her. And he's looking at the camera like he knows what he's doing too! When I saw this photo on her Facebook wall, it brought both joy and sadness. It was a joy to have her take a siblings shot, but I know how difficult this has been for her. It's like I hurt for both my children. Double pain. I grieve over the loss of my son, and I hurt as I watch my daughter struggle to deal with it all as well. One of a mother's worst nightmares. I'm proud of the woman she has become and how she has let it bring her closer to God, but the journey, like each of ours, has been difficult. I guess caregiving really changes us, but we don't always realize how much or in what ways those changes are affecting us. They keep telling us that we are emerging a beautiful butterfly - but too often I still feel stifled in a cocoon with no flight in si...

 As many around the world, my family gathered for Easter Sunday. One thing about my family is we have a rich heritage in the Word and in ministry. It was a true blessing to sing a few songs around the piano and especially to take communion together. I'm proud of my Christian heritage, but that hasn't stopped "bad" things from happening. My head and heart were still full from yesterday as I awoke this morning. My emotions were still all over the place as I opened my Bible (yes I am old school - I want to touch it!) for my devotions this morning. My eyes landed in Psalm 86. David starts out with a prayer for God to hear his cry because he is afflicted and needy . Now, I don't think David was whimpering. In my mind, he was just stating how much He needed God. He says, save Your servant, who trusts in You. And then goes on with I cry to you all day long. He lifts his soul to the Lord - that's his mind, will and emotions. The part of David that made him uniqu...

One of the difficult things about becoming a caregiver is that life goes on. Please note, it's not  like most people mean that phrase. Life as we knew it, life as normal, life like everyone else does not go on. For many of us, life after caregiving is far different than before. But it seems like for everyone else - life goes on. There are two sides of this for me. On one hand it can be difficult watching all my son's friends go on with their lives as they should. they marry, have children, develop careers and have nice little lives. While my son struggles with learning to eat, move and talk again. The other side of that coin is far different though. It's the part of life goes on  that can be rewarding. My daughter married before my son's wreck, but she didn't start having children until a little later on. My daughter and I have talked about how we grieve that her kiddos will never know the Chris we knew. There's a real sadness there. Last night, my dau...

I've issued a challenge on many occasions and asked anyone brave enough to come follow me through a day in  the life of a caregiver. You wanna know how many takers I've had so far? Zilch. Zero. Nada. On one hand, I find that a bit amazing since there are so many people ready to lend advice - but not a hand. Of course, on the other hand, I'm not surprised in the least. Each day brings different challenges depending on the level and type of care we are providing for our loved ones. For me, one day my son is pleasant, easy to work with, eats well and is alert. The next day (or moment for that matter) his body can be rigid, stiff and he can be uncomfortable and upset. He might even sleep all day. Situations with agencies change constantly too. Yesterday, a nurse shows up without calling and announces that she's Chris' new nurse. (I liked the other one of course.)One month I get supplies, aides show up and I get some help. Other times, nothing seems to go right. As...

Do you get confused like I do when someone asks How are you? As you know by now, I'm an over-thinker and my mind can go a hundred different directions with what seems like a simple question. Do you want to know how I am as a caregiver? Not likely. Or perhaps you want to know how I am physically. Less likely - menopausal, but I did just run my 23rd half marathon, that can be intimidating.  Would you like to know how my work is going? Busy, as usual I can't keep up. What about emotionally? You really don't want to know that one - because I can be all over the place for no reason at all - pick an answer from ecstatic to depressed, I don't care. lol But we all know that no one really  wants an honest answer to the question, so we just say, Oh, I'm good.  Or maybe something about being fine and doing well. Because that's the  polite thing to do, and it's safer too because those who are not caregivers can't quite grasp where we are, but it's okay becau...

As you know, I love the psalms, and I've been studying them looking at them from a somewhat different angle. As I read them, I'm thinking of how David was both a psalmist and a warrior. This has been an interesting study and I've learned a lot. I am making a bit of progress on the project. Hopefully, I'll have something together on it soon and can share it with everyone. Last night I was looking over my notes and my attention was drawn to Psalm 18. I've always liked this particular psalm, but what I noticed last night was the difference in David in the first few verses and some of the latter verses. He starts out with that psalmist heart by (in my mind) singing - I love you O Lord my strength!  And by verse 40 he's talking about smashing the enemy. Now, I realize throughout this psalm, and many others, David gives credit to the Lord for strengthening him for the battle.  David says that God taught his hands to war, and that by God's strength he could run...