Posts

Can We Laugh Yet?

Image
 I had a very awkward moment while talking with a nurse yesterday. She called to schedule my appointment with a cardiologist. After we had it scheduled, I explained that I am a caregiver and I don't have a sitter for my son. I asked about COVID protocol and if it was okay if I brought him to this initial appointment. She said it was fine and that there are no limitations on visitors in place. She said - as long as he will wear a mask. I assured her that he can wear a mask - then I chuckled and said - "He'll have to - he can't move his arms so he can't take it off." I thought it was funny but then a very awkward silence followed.  Now I admit I can have a weird sense of humor, and I can make a joke about almost anything. While it wasn't an awkward moment for me, I felt bad if I made her feel uncomfortable. She'll get used to me - I know it's an adjustment. (lol) But it made me do some thinking about when it's okay to laugh. That statement wouldn...

Big Enough

Image
 Change is inevitable as we ride out the waves of caregiving. Even though we figure out a way to survive from day to day, the unexpected can occur at any time. These can be little, big, or huge! We just sort of learn to roll with the tide, don't we? The tougher part is that our emotions can roll with those tides too. Maybe there's a big swell of sadness, grief, or happiness. Then we may dip down to despair or despondency. We just never really know, for real! But we just keep riding it out day after long day. But you know what's cool? God rides it out with us. He is big enough to carry us and keep us secure in all the rolls and turns of caregiving. No matter how high or low the tides of emotions go, no matter how joyous or sad a day becomes, and no matter how difficult or easy navigating the day-to-day is - He is big enough to handle it. He's big enough to handle my emotions, my tears, my joys, my everything-in-between. We literally never have to worry about if He has th...

Grace for Today

Image
I don't want to brag, but I can go from I'm okay, I've got this to the depths of emotional despair on a dime. Is that just me? The day is rocking along. I'm in control. I've got it, getting things done. And then Bam! Out of seemingly nowhere a thought, a photo, a song, a memory, a whatever else - snaps my emotions in two. I'm wiping tears from my eyes, thankful for the memory, but wondering why. I have a feeling it is very common among caregivers. Even though our journeys tend to be widely different, they often lead us along similar emotional paths. We are good one minute and not - the next.  That's why I love His grace so much. In 2 Corinthians 12, Paul was whining. Don't tell them I said so, but apostles seem to be a whiney lot. (LOL - lighten up!) He did not  like what he was going through. As a matter of fact, he admitted to asking God three times to remove it from him. God did not.  Paul begged God to remove his "thorn in the flesh" - his ...

Perfect Timing

Image
  As caregivers all our days can seem difficult, some are just more difficult than others. I was trying to explain to a friend what it was like to provide total care to another human being. lol. As I found my description falling short, I finally asked, "What all did you do this morning to get yourself ready today?" He listed all the things he did - shower, shave, put on clothes, drink a cup of coffee, and more. I then said, "double it." Everything you did to get ready now has to be done for another whole person. Think of it like twice everything. That doesn't even take into account the various decisions we often have to make on their behalf, medications they have to be given, feedings...and more. Btw, these are facts - not burdens. Whether we are long-distance or in-home caregivers, there is a lot more to it than meets the eye. I try not to spend too much time worrying about the future because each day has a long list of demands that must be met. So, this mornin...

Questions, Questions, and More Questions

Image
  This morning as I was finishing up reading Genesis, I found myself asking a lot of questions. Of course, I know how the story is going to turn out and that's what sparked the questions. For instance, why didn't all of Jakob's sons go bury him and then just stay there after he died? Had they not come back - they wouldn't have been enslaved for all those years. Why were the Egyptians slaves too - but no one ever mentions that? Pharoah owned them. During the famine, they bought food with their money until it was gone. Then they bought it with their livestock - which they still cared for but no longer owned. Once all the livestock was Pharoah's, then they traded their land for food. Yet, they still worked the land as before. But now, they had to give 20% of everything they raised to Pharoah. But the big question was why Joseph did that?  Joseph is one of our big-time Bible heroes. He held on to faith when it looked like the dreams God gave him couldn't possibly co...

What? No White Horse?

Image
 Early on in my caregiving journey - before I even realized I was on the journey - I kept thinking God was going to ride in on His white horse and rescue me. I recall sitting in the SICU waiting room thinking I would either wake up and it'd be a horrible bad dream. Or that Chris would just wake up and start getting better. I never dreamed I'd be still caring for him 13 years later. There was no way I could have even imagined here - from there. I had no idea what here  looked like. Needless to say, there was no white horse; and there was no dramatic rescue.  However, what did happen was that time after time, day after day, moment after moment, God kept rescuing my soul from the emotional dungeon that was trying to drag my heart into its pit. He never abandoned me or left me no matter how bad it got or how badly I behaved. (Yes, I did that.) Instead, I found His calming presence always nearby waiting for me to calm down enough to accept and embrace His peace. God didn't rid...

To Be Loved

Image
  Most of us care for a loved one and it's all out of the love we have for them. My son is nonverbal. He makes some sounds and can definitely let me know when he doesn't like what I'm doing. lol - I do not know where he is mentally, I can only make assumptions. I also don't know how his thinking processes are working since he cannot tell me. One thing I tell him over and over is that I love him. One of my deepest desires is for him to feel loved. I want him to know how much I want to take care of him and provide for him. But mostly, I want him to feel loved. Over and over every day I tell him he is loved. Every task and every chore is due to the love I have for him. I'm sure as caregivers, you can relate.  As much as I love my son, and we love our caregivees, it can still be difficult to communicate that love even though every action is bathed in love for them. That makes me think about our Father. 1 John 3:1 says behold the manner of love the Father has bestowed on...