Posts

Who's Waiting on Who?

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Caregivers often wake up tired, do you ever do that? It seems that if we are in bed for any length of time we should wake up refreshed and ready to go.  We deal with so many different areas and are pulled in numerous directions everyday that it's easy to get and stay tired. Just because we became a caregiver doesn't mean that we stopped being everything else. Besides caregivers we are often also: grandparents, teachers, parents, sisters, children, siblings, athletes, homemakers, writers, and the list could go on. To be a caregiver we didn't have to stop being in all these other roles because as we learned real quick - life does go on. Besides all the tasks associated with a normal  life, we have caregiving chores too. And to be totally honest sometimes I get tired. Sometimes I stay tired too! (smile) I get tired of dealing with politics and health care stuff.  ...tired of dealing with social workers ...tired of dealing with aides that don't want to w...

Reminders that Life is Fragile

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As if caregiving by itself was not enough of a reminder of the fragility of life, there are plenty of new ones. Just Saturday I learned of three deaths. One was a long time family friend who actually named my daughter, another was a Facebook friend who brightened every day with humor, and the other was a local sportscaster tragically killed in an accident. These all left huge holes in my heart and reminded me that we cannot take a single day with our loved ones for granted. As a caregiver, every day can be lived in pain - sometimes it's like everything hurts and even the small things are magnified. But when it's big things like watching your mom in the beginning stages of dementia or losing a close friend, it can be more difficult to handle. Times are tough and emotions are high when you are a caregiver. Many days it takes everything we've got just to keep ourselves together to perform all the associated duties. Let one little (or big) unexpected thing happen and it c...

Is it Okay to Sing Again?

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As caregivers we know that days are full of lots of things. We can easily run on high all day long and still feel like we got nothing done at the end of the day. Perhaps part of this is due to the fact that we do the same things over and over and over day after day after day. This is the way it is when you are caring for another person. It can be a life of repetition with the caregiver doing everything for their loved ones and then those same things for themselves. It's endless, isn't it? Sometimes I wonder just when it's all going to end. It feels like never. And if I am not carefully guarded, I can slip into a very depressed state and whine a lot.  Not that it helps. BC (Before Caregiving) I was a worship leader in the church. I stayed up on the latest trends in worship music and learned the newest songs. Tragedy has a way of robbing you of the things you love. For me one thing I loved was music. Actually, because my son was a musician prior to the accident, I could...

Remembering the Promises

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This weekend I went to the Dallas area to run a half marathon. On the night before I took time to take a walk and got back to my room just in time for the rain to start. After it was over this beautiful rainbow stretched across the sky and I had a perfect view of the whole thing. It was wonderful - nearly breathtaking from the 9th floor. As I sat and watched the rainbow unfold and deepen in color I thought about the first rainbow. The one God painted in the sky after the flood, then told Noah it was the symbol of His covenant with man and the seal of His promise to never destroy man and earth by flood again. I wonder if Noah and his family were nervous the next time it rained. Did they glance in the direction of the ark and wonder if they should seek safety? Or did they fully trust God's promise to them? Could they rest in His promises? Rest is the key word there for me today. A friend of mine has reminded me of how important it is to rest  in Him. She suggested I take some ...

I'm Not Super-Human?

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Caregiving can consume us so much that others and ourselves forget we have other things going on in our lives. Since I started on this caregiving journey I've become a runner, a writer and a grandma! I have another adult child who can really feel like she lost her mom in the deal. And what's frustrating to me about it is that I can't do a thing to change it. We have started having a mother/daughter weekend every year around her birthday; and we got to make a trip to Indianapolis recently to attend a good friend's wedding. She helps me out a lot and I watch the grandkids sometimes to help her out. Today she's having a surgical procedure and I can't be there with her. It is certainly not because I don't want to be there for her, it's because there's no one to sit with my son during the week. Even the help I do have (paid or not) have other responsibilities and jobs. Of course, I don't even have an aide right now (one of our chief frustrations...

At Day's End

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Caregiver's tasks are endless and almost every evening I have this sinking feeling like I didn't get enough done. It doesn't matter how much I did  get done in a day, I feel like I fell far short of all I needed  to get done. Does anyone else ever feel that way? We already have enough on our plate just in taking care of another whole person or two. I say this as I not only take care of my son who is total assist, but am shifting into a caregiving role with my parents as well. My son can do absolutely nothing on his own but breathe. I not only have to puree all of his food or blend up shakes to put in his tube, but I also have to take the time to feed him. Each day I bathe him, dress him, get him up, stretch him, stand him, entertain him, etc. It starts early in the morning and goes until late at night. Even when he's in the bed early mornings or late evening he has to be bolused, changed, turned, and kept comfortable. It's my pleasure. Add to the daily chores ...

Aged to Perfection

After a very busy weekend away, I sat down with my coffee this morning and opened my Bible. The Bible I've been using is still packed in my bag, so I grabbed the closest one and it fell open to Isaiah 26. I read through the entire chapter but my eyes and my mind went back and settled on  verse 3. My mom taught me this verse as a child. It says: You will keep him in perfect peace all who trust You. I grew up with the old King James Bible being the "only" Bible and it states the last portion as whose mind is stayed on thee.  The verse has significance to me because my mother had what was called a "complete nervous breakdown" just after I was born. She spent months in a mental hospital all drugged up and endured the maximum number of shock treatments. That was the treatment of choice back in the early 60s. So I grew up listening to her quote this scripture as part of her testimony of how God had brought her out and healed her; and I learned to meditate on scriptu...