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Showing posts from August, 2019

The Big Dipper

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As caregivers, our emotions are often running on the edge. For me, it doesn't take much to tip me over into a huge downward spiral. For today I'm calling it the "big dipper." Just a single word, an honest question, a picture from the past - it doesn't take much to send me into the dip of depression. I have developed a few strategies that work for me and being able to identify it early on means I don't always dip as far or I can head it off at the pass. But not always. With so many things on our plate it doesn't take a lot, does it? This last week was full of dealing with a faulty internet provider which is enough frustration by itself when you work online and were without internet for two days! lol. Sometimes it's bigger things - but sometimes it's those little things that chip away at sanity and peace. How are we supposed to deal with this "big dipper?" It's going to come for us. Some day. Some time. We may feel broadsided by i...

Helping a Senior Loved One Plan a Spouse’s Funeral

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Image via Pexels Losing a spouse is one of the most stressful events a person can go through. For seniors, that stress is even more dangerous. The depression and loneliness seniors feel after a big loss can put their health at risk. Grief also weakens the immune system, which makes them more susceptible to infection and other illnesses. Seniors dealing with dementia and related illnesses like Alzheimer’s have an even more difficult time with grief. Memory loss, emotional instability, and other symptoms of dementia make each day after a death a unique and challenging experience. Communicating about the loss and their emotions presents a difficult task you will likely have to go through multiple times.   There are many things you can do to help support a senior after the loss of a spouse. One of the most important things to do is to be there long after the death to listen and encourage healthy behaviors . However, if you want to help in a more immediate manner,...

The Invisible Woman

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Several things have occurred lately that remind me of the social isolation so many caregivers experience. Even in a crowd, many times we are alone. Even when people do talk to us on outings (if we can even get out!) they can't connect with us beyond the obvious. They only see us as a person behind the chair. I've done a few other blogs about being more than a caregiver and life behind the chair. But as we've been able to get out more frequently, it's come to light again - that invisible feeling. I'm starting to wonder if I'm just the invisible woman. lol It's not easy to do normal  things others take for granted. Things we really want to  do - but just are not feasible. Take going to church for example. Often, there's no fellowship - no one knows how to reach out because we stand out as so different. It's not their fault - they really don't know that they can still ask you out for coffee or lunch. Personally, I find myself in situations ...

God is Mindful

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Life is not "normal" for caregivers even though we find our own kind of normal to deal with our unique situations. We adjust. We proceed. We get through. But oftentimes, I find myself so on the edge emotionally that any little thing sends me flying off into the emotional pit of despair! lol (maybe that's just me......) This week has been more than enough for a normal life, let alone a caregiving life. I will spare you all the details, but the biggest problem by far was being without internet for nearly two days. I handled it well, I think. I painted, I learned some new chords on the ukulele and spent some great time with my grands. But I got behind on work, so now my frustration level is greater than it was before. That's just one  of the additional situations I'm dealing with on top of caregiving. Sometimes it feels like I am stretched tight like a rubber band and I'm going to pop with any more pressure. Life can feel really ugly sometimes, and I don...

My Own Personal Bubble

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As a caregiver do you ever feel like you live in a bubble? I sure do. For the most part, if I'm home I don't realize how un-normal my life is. Probably because it's become my new norm. It's a norm filled with lots of visits from case managers, nurses, doctors, and deliveries with a few surprise runs to the ER like yesterday. although each of our stories and days has differences, our norms include changes, dressing an adult, pureeing foods, tube feedings, spoon feedings, transfers, standing frames and range of motion exercises. Most of the time, we probably don't even think about those things - we just do. But when we get outside our comfortable norms, it can seem like we are in a bubble. Many times in public we are ignored. People cut in front of Chris' chair without a second thought. Others let doors go just as I am getting there - which is fine - I CAN do it myself - but it's just rude. Some of it, I'm sure, is my own awkwardness - conversations ar...

My Grandmother's Poem

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Yesterday was a rough day, rougher than usual. As caregivers, our emotions often stay on the edge and it doesn't take much to tip us off. Well, yesterday was my tipping off point. The everyday stuff for us is enough, isn't it? I mean, come on life - my mom has dementia, I am an LD caregiver for my aunt (I went to see yesterday), and I am a full-time caregiver for my adult son who is total care due to a brain injury. Too many things have happened in the last couple of days and my emotions, nerves, mind, etc. are all on edge. Why can't life just let up a little now and then? I came home from seeing my aunt in the nursing home and was a bit frazzled. My heart and mind were racing. For me, one strategy for not getting taken down in life's swifter currents is to do something different. Not work. Not my norm. I spied a briefcase I'd brought in from the garage as I've been going through my aunt's things. As I unlatched it and opened up the top to see a poem...

Hard Questions

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I woke up with a particular scripture on my mind this morning. It didn't take long until I found it in Habakkuk. Since the whole book only contains three chapters I decided to read the entire thing. I'm glad I did. It started out with the prophet asking a lot of questions. He was asking God for some answers. In the first chapter, Habakkuk starts with a question I believe to be common for some caregivers. O Lord, how long shall I cry, and You will not hear? David asked similar questions in Psalm 13... On this caregiving journey, I must say I have wondered if God still hears my cry - if He still understands my heart. Habakkuk goes on to ask God why He allows me to see trouble.... God did answer Habakkuk, but the prophet came up with more questions. The discourse continues for the first couple of chapters. Chapter 3 is Habakkuk's prayer which ends with the verse I was looking for. Before I get to that, let me say God is not scared of our questions.  I've asked some h...

Everything is Beautiful

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My mom has dementia. I am not her caregiver, my dad handles everything. I know a lot of caregivers who are taking care of family members suffering from this horrible disease. I told Daddy that mama isn't the one suffering, it's us. Mama is happy. She sings all the old hymns. Randomly. While she's eating. In the middle of your sentence.. or her own. lol. She's as content as she can be. This was the first time she didn't know me at all. She usually figures it out after I am there a while. But not this day. It was hard on me - even though she was just as chipper as she could be. Even though she cannot remember, I have lots of memories of the things we used to do. We were good friends and worked in ministry together often. It doesn't seem fair.  She was vibrant, joyful, super talkative - never met a stranger. Mama was a Bible student and taught any time she was asked to. She was a Sunday School teacher, evangelist, youth pastor, and pastored a couple of times....