Posts

One at a Time

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Sorry for my absence, but my son was in the hospital most of last week. Just part of the journey, right? But it sure does stir up a wide range of emotions. I'm not sure if the social isolation or the battle for the soul is more difficult. By the soul, I mean the mind, will, and emotions.  It sometimes feels like life has taken me captive and sentenced me to life without parole. The caregiver can struggle with so many things on an emotional level as the tasks of taking care of loved ones wears away at our heart. We do what we do because we love them - but that doesn't mean it's easy. Jesus died for us because He loves us - but that didn't make the cross a pleasant journey. Maybe I am only speaking for myself, but my emotions can be all over the place from one second to another. Fears and doubts try to chip away at faith leaving my heart and mind in shreds. Oftentimes, I feel like a prison caught between my faith and the reality of the day-to-day. As it all closes i...

Safe and Loved

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This morning as I bent over my son's hospital bed to kiss his forehead, I whispered, I want you to feel safe and loved.  Many times, our loved ones are so vulnerable and unable to protect themselves. As a mother and a caregiver, I have such a sense of needing to also be advocate and protector. My son cannot speak for himself, I have looked at some camps designed specifically for brain injury victims - they look wonderful. But I cannot stay with my son. Since he cannot speak, he would not be able to tell me if there was anyone hurting him in any way. I just can't take him. When I get respite for him I take him to a nursing home where my sister works. I also know several of the staff so I feel he is better watched over. Those who need caregiving are often the most vulnerable among us. I just wanted my son to be assured I was here to protect him and to ensure his safety. Specifically, I wanted him to know he is loved. He seems so alone sometimes even though I am with him alw...

Circle of Determination

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This photo may not look like much to you, but it means a lot to me. See the path that has been beaten along the outer edge? I've done that over the last few weeks. My treadmill malfunctioned and I was on a running streak (still am) and didn't want to give in. I measured the distance around my tiny backyard and it's .01 mile. That means running around it 100 times is a mile. I made it a tiny bit longer by adding the patio in the mix. It may look like a silly path but I call it my "circle of determination." I am on a fitness journey here. As caregivers, our own health often gets laid to the side because of all the duties we need to complete each day. The reality is, even though I hate  for people to remind me of it, that we have to be healthy for our loved ones, if not for ourselves. As much as I want to care for my loved ones, I also want to feel good while I do it as much as possible. So I laced up my running shoes and started putting some miles in - then my t...

I Will Care for You

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I will care for you When your strength is gone And you can’t do it on your own When you aren’t sure what to do Or don’t remember how to… I will care for you. When reality passes away Like it’s the end of a day Your mind’s in the clouds But you know everyone in a crowd Your memory starts to fail And your body is oh so frial.. I will care for you. You misunderstand the simplest stuff Don’t know if you’re hungry or had enough When you don’t know the time or the day I’ll take your worry away And I’ll care for you. I’ll assure you of my love Hug you and tell you  - you’re safe with me. I will care for you. I’ll help you dress And all the unspoken rest Showing you dignity even in my pain Tears in my eyes as I watch you fade I will care for you. When you can’t talk – I’ll be your voice If you don’t know – I’ll make the choice I’ll listen to your stories again and again Because soon they will be silent… Although w...

Better Set That Watch!

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Today is one of those days. My prayer this morning has been "set a watch over my lips, Oh God!" I'm stressed out beyond belief. My fellow caregivers understand. Everything has piled up and it takes very little to feel like you're falling off the edge into an abyss of emotions and struggling with depression. I love caregiving for both my son and my aunt, but there are those days when it seems overwhelming and it's not one particular thing you can put your finger on. My humanness shows and my cape is missing. lol Things pile up. We get tired. We feel lost, cut off from the rest of the world and like no one understands where we are or what we have to deal with on a day-to-day basis. This morning I was praying for the Lord to guard my heart and my lips. I looked up the scripture and found it in Psalm 141:3. The New Living says it this way: Take control of what I say, Lord and keep my lips sealed.  I backed up to read the previous two verses. David was calling ...

For Long-Distance Caretakers, Neighbors Can Be a Lifeline to Loved Ones in Need

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Are you providing care for a senior loved one who lives in a different city or state? When you’re a long distance caretaker, it can be stressful not knowing whether your loved one is safe when you’re away. But if your loved one has a network of neighbors and friends to help you out, it can make life a little easier for you both. Here are some ways you can get to know these neighbors when you live out of town: Send an Introduction Card   If you want to get to know your loved one’s neighbors, a simple card or handwritten note can be a warm way of introducing yourself. People love getting cards and positive pieces of mail. You can provide your contact information and some information about your loved one in the card, if you feel comfortable doing so. For neighbors that have already proven themselves to be helpful to your loved one, consider sending a thank you note or a little gift card to show your gratitude for their assistance. Don’t forget to keep these people ...

So Easily Forgotten

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Yesterday, a post by a friend got me to thinking. (That's not unusual, and it's very easy to do.) They stated how they are dealing with a serious condition and how lonely they were feeling. As their condition had progressed and they were sent home from the hospital, visitors waned until they were left all alone to deal with their own emotions and thoughts. Not only do those in these situations have to sort through such a wide range of emotional changes, fears, thoughts, and decisions - on top of all that they are left to deal with the loneliness of being forgotten. Those on the outside don't always see it that way. They would quickly say, Oh, you're not  forgotten. I think  of you all the time. I pray  for you daily. But this doesn't erase or dilute the sinking alone-ness that the ill or caregivers deal with. Reading her post reminded me of the day I was informed of my son's wreck. I had to fly from Chicago where I was living to Shreveport, LA where he had...