Daily Devotions for Caregivers

It's been another crazy week around here, sometimes I wonder what happened to my cave. I used to go days without talking to a soul and now it seems my apartment has a revolving door and my phone doesn't stop. Sometimes I think I need a bit of a break, but most times I actually like it because it's more like my true "norm." My house has always been a hub of activity and my friends know I have an open door policy . Basically, anyone's welcome anytime. It's just who I am. But it can keep me on my toes when it comes to balancing out caregiving, jobs and the rest of life. Last night was a late night as many have been lately. I had a project due for a client and lots of work on my plate. I did change my alarm this morning to a bit later so I could get a little sleep. I know it's necessary but it can seem like such a waste. (slightly joking) Do you know what I could get done in that 4-6 hours? I get frustrated because I'm human and my body demands it....

You really never know what a day is going to bring. Many of us became caregivers because of a tragic event like I did with my son. Others may care for parents or loved ones who are in a slow decline like my Mom. Either way, we do the best we can with what we have to work with each day. No one knows this path unless they walk it. There are many difficulties, as well as many blessings along the way. For me, one of the most difficult parts of this journey has been hooking back into scriptures. It took some time as I was so angry with God for allowing this to happen. Then it took more time for Him to reshape my faith and help me understand Him more fully. He's not a magical potion that keeps trouble away - but instead a powerful force that carries me through. Sometimes when I read familiar passages I can still feel the struggle between what I thought faith was and how it actually plays out in our day to day lives. This morning was one of those times as I was reading in Isaiah. I ...

Do you ever read the Bible and get frustrated? I do. And immediately afterwards I feel guilty. But feelings are feelings now, aren't they? This morning after making coffee, changing and bolusing my son, I sat down with my Bible and a fresh cup of coffee to read a bit. My pen was in Zechariah so I just started reading there in chapter 8 which starts talking about God's passionate love for Mount Zion and Jerusalem. It continues talking about how He is going to rescue His people and restore them. Zechariah says God will bring all His people back home and basically restore their fortunes, reestablish them and give them peace. In verse 12, God says He is going to plant seeds of peace and prosperity among them. I wonder what that looks like when it plays out in real time. For a long time, I thought God was going to ride in on a white horse and rescue me and my son too. Of course that didn't happen. Then I struggled with anger, bitterness and frustration. Caregivers have to ...

Do you feel like you are in a constant state of change? Sometimes I am afraid to put my feet down so to speak, as everything is bound to be different before I get them settled. Today will be different too, as each day is unique and yet redundant at the same time. We do the same caregiving tasks over and over, day after day. Today, though I have the promise of an aide. And now that I have settled in to an aide-less routine, that means changing it all up again. It sounds silly and like it wouldn't matter, but it really does change a lot. For instance, I want to make sure our laundry is sorted out because when aides are not coming regularly I do some of it together. I also have to get Chris fed, bathed or up (depending on his sleeping schedule) before the aide comes - or figure out when it fits in. I pretty much have to change the way I do my mornings since I have word he's really going to come. (His boss told him if he didn't show up today, she'd restaff him. Why sh...

I was reading Isaiah 55 this morning and several things jumped out at me. One of them was verse 10 which says He was pleased to crush Him . That made me think of how they make essential oils (which I use daily) and how perfume is made as well. In either of these processes, it's the crushing that brings out the sweet fragrance. Now, I have to admit that sometimes in the crushing - the fragrance that has been released was not pleasant. Remember crushing stink bugs as a kid - that was not nice, nor did it smell good. Crush a garlic and you'll smell garlic. But you will get whatever is inside of what's being crushed. Caregiving can be a crusher that lets us know what's truly inside. As a matter of fact, it's more like a constant crushing, I refer to it as living in the furnace. It never stops. This can reveal our character - what we are really made of - what we really smell like. I've seen both as it pertains to myself. There are times when the crushing come...

It's so easy to get lost in the shuffle. We don't have to go through the list of all the things we have to do in a day, or the numerous people who come through weekly to check on our loved one, or the paperwork we have to keep up with - all to provide proper care. But most of these activities are based around the one we are caring for - not around us. My "love language" is time. If you spend time with me I feel loved. You can lavish gifts on me  (not that anyone has tried that recently! lol) and I won't necessarily be able to translate that as love.  But spend time with me and I will feel like you care. The social isolation of caregiving and the always feeling like you're out of step with normal  can start to wear on you. Lately, I'm so much more comfortable with caregiving - and not struggling as much about going into public places. I guess that happens when you don't have an aide for an extended period of time and you just have to adjust. I ...

One of the things I do to "deal" with caregiving is run. I started while my son was initially in the hospital because I was looking for a way to be active. We spent almost 4 months in the hospital after his wreck. I stayed with him and never left except for very short outings to do laundry and such. I read a lot, but finally started a running plan just to get some activity in as the sitting wore me out. It took me three weeks to work up to the beginning program, but eventually I trained for that first 5K. I found running to be a great stabilizer for me. When I run, my body releases tension, my head seems to clear and I just feel better in general. Yesterday I finished my 22nd half marathon. I hadn't trained properly for it so it was a tough one. That and the fact that I'm coming off an injury I sustained in an 8 mile trail race  back in January made for a rather painful race. On a tough race like that all the "good thoughts" disappear about 7 miles in....

When I became a caregiver, everything changed. It was both instant and gradual. Instantly I was thrust into learning all about brain injuries and how to provide personal care for another adult. As time went on, as it tends to do, I learned more until now I'm literally helping write a course on it. A caregiver pretty much lives in a state of adaptability. We never know what a day may bring and we have to be ready to change on the fly in order to handle whatever might come up. But we are still sons, daughters, moms, sisters, dads, brothers, etc. Many friends walk away, the church doesn't know what to do with us and usually our jobs either adapt to our new responsibilities as caregivers, we no longer have them or we adjust in some other way like working online. I think our Christian walk is similar in this way. The second we accept Christ - we are changed. Bam! We are a new creation. But over time a we learn more about Him and become more like Him we see continued changes. T...

You know how caregiving days go. Even though there's nothing easy about it, some days are good, some are better and a few are downright rough. There can be a number of reasons for a rough day. It might be physically rough, mentally rough, emotionally rough or a combination of any of those plus any number of other reasons. Yesterday, I just felt broke. I'm learning to take it all to Him. He's not afraid of my broken state. Yesterday, I was thinking about how broken I was and in the process I realized there are three basic types of "broke." I can be financially broke - which thank God for His provision - I am not. I can be broke - like not working and needing to be fixed broke. Or I can be broke - like broken before God, humble and broken.  I'm in the middle of a challenge called the psalmist challenge.  I designed it myself as part of a project I'm working on. For 30 days I have to take a few minutes to play, sing and pray. So far, every day I have wr...

This morning, I am tired. I know the day has not even started but I've already sighed three times. Just knowing all that will need to be done today makes me weary. It's really not an unusual day, just another day. Caregiving has to be one of the craziest things I've ever done, and I've done some crazy things - and had some extreme jobs. One just really has no idea what to expect on any given day. Like yesterday with no warning the company showed up with my son's new bed. I had no idea he was coming (what happened to common courtesy?), but here he stood acting shocked that the old bed was still standing in the place the new bed belonged. I just looked at him in the same shock. How was I supposed to know he was coming if he didn't call? (smh) He said, "We can set up the new bed but we aren't allowed to move the old one. It's company policy." I said, "Well, had I known you were coming, I'd have had this one moved out of the way. So ...

I know the scripture says His mercies are new every morning, but maybe it should have explained that there would be mornings we'd have to look a little harder to find them. Maybe it's just me, but my mind is racing with the day's responsibilities almost before I get both eyes opened. And then of course, any tiny thing out of step or above and beyond the caregiver's "norm" can catapult us into another state. Personally, I battle depression and anxiety. That'll wear you out right there. I can be floating along doing real good and something unexpected happens and my emotions flat-line. But that's okay because once my head kicks back in, it goes 900 miles an hour with possible scenarios of things that are not likely to ever even happen. I can be emotionally spent over the tiniest adjustment to my day. It's probably because as caregivers we run on the edge all.the.time. There's no break. We live in a state of caring constantly for another pers...

I want to apologize. I'm truly sorry but I just didn't want to get up and write a devotion this morning. Not that I don't love you guys, but I'm just tired, and it's my own fault really. I was up late last night finishing up an overdue project for a client and this morning I really wanted to sleep in. But as you fellow caregivers know, that's not always an option.  Things just have to be done. They can't be put off, can't wait for another day - each day is laden with tons of things that simply have to get done when you are providing total care for another whole person. My early morning routine looks something like this: Hit the snooze (repeat 5-6 times) Hit the button on the baby monitor to see if Chris is awake yet Stumble to the kitchen to put on coffee Get Chris' bolus together Push the button on the coffee pot Open the other eye Change and bolus Chris Stumble back to the kitchen to pour my coffee Drag myself, my laptop and my B...

Sorry I missed a day and I'm running late. To say my plate is full  would be an understatement - but I know my fellow-caregivers understand that. Just today I've dealt with a home health nurse and a case manager. It was all routine but all before noon, really? I finally got to sit down and enjoy a cup of coffee (okay so it's my third pot - hey I was up late!), grabbed my Bible and just started reading. I was actually preparing for a lesson I'm going to teach tonight but something caught my heart. In 2 Timothy 2, Paul told Timothy this, God's truth stands firm like a foundation stone with this inscription: "The Lord knows those who are His." I just stopped when I read that. My thoughts went to my new normal life. Most of you are all too familiar with the daily grind. But the other day I was talking to a friend about the not-so-daily part meaning the emotions  that can be a struggle. We discussed the depression, anger and frustration that can lie just ...

I've always been open and honest about my feelings and how I have dealt with caregiving. I usually at least try to clean it up a bit before I spill it out on the page for the world to see though. Maybe a "thank you" is in order! (Just kidding - lighten up!) It seems I've found a way to deal with caregiving at least a little more gracefully than when I started the journey. There are daily struggles, as you all know, and numerous battles along the way. Caregiving isn't for the faint in heart. We give up our dreams, our goals, our jobs, other relationships, and our lives to serve the one we love. On one hand, it's the obvious choice and it seems easy; and on the other hand it's the most difficult job in the world. One of my biggest struggles personally was giving up ministry. I had goals and dreams and passions that seemed to fall by the wayside as I stepped into the role of caregiving. Over time, I've seen God stir some of those up and even though ...

Sorry to be MIA of late - I had my plate full last week as my mom was staying with me for a few days. She has some sort of dementia and requires lots of TLC right now so it was my pleasure to have her stay with me. However, it meant that my plate, which was already full, was piled just a little fuller. So I did what I could to keep my head above water.....so I went missing. Over the last few weeks, my mind and heart have been busy processing stuff. Life, really. And as usual, there are tons of things going through my head and heart all at the same time. When I wake up in the morning it seems like my head is already going a hundred miles an hour, and maybe more! I have no idea what the series of thoughts were that brought me to the passage in Daniel, but I'm sure it was a logical sequence. I opened my Bible to Daniel 3, verse 17. This is where Daniel's three friends were facing the fiery furnace. It's their statement - their dedication to the fire that piqued my intere...